Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2019

Sleep Out

Just want to say I did it - I slept rough for the homeless (and raised £500+ for Glass Door). No pmr problems despite the hard floor. If only my neighbor did...

Just want to say I did it - I slept rough for the homeless (and raised £500+ for...

whitefishbay

•5 years ago

17 Replies

I'm not the only person to feel like this!!

SOOOOOOOO glad to have found this forum. I was diagnosed with PCR about 4 mths ago and had a superb response to Pred. initially. Hadn't felt so good in...

SOOOOOOOO glad to have found this forum. I was diagnosed with PCR about 4 mths...

ledgemoorlady

•5 years ago

13 Replies

Chichester support group monthly meeting.

Chichester support group meeting this Wednesday October 9th 2pm at Pagham Village Small hall Pagham PO21 4NJ Visit by a Pharmacist to answer all those thorny...

Chichester support group meeting this Wednesday October 9th 2pm at Pagham Villag...

PhoebeMum

•5 years ago

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Do I agree to take AA?

I’m going to see my doctor on Wednesday and I have a feeling he’s going to try persuade me to take Alendronic acid. It was recommended for me 2 years ago and...

I’m going to see my doctor on Wednesday and I have a feeling he’s going to try p...

margiebell4

•5 years ago

28 Replies

Humming noise in my left ear

This humming noise ( like tv when the channel has finished broadcasting) started a few days ago. It’s only in one ear.. I am now on 5mg of Prednisone after...

This humming noise ( like tv when the channel has finished broadcasting) started...

YuliK

•5 years ago

12 Replies

Diet to help Stress

As we are told to avoid stress I thought you may be interested in this stress diet!

As we are told to avoid stress I thought you may be interested in this stress di...

piglette

•5 years ago

54 Replies

B..... weather!!

Today it has been 96% humidity - great for arthritis!! Just wanted to let you all know I'm in agony!🥴😂

Today it has been 96% humidity - great for arthritis!! Just wanted to let you al...

Constance13

•5 years ago

11 Replies

Quick question

Hi all, just a quicky, has anyone been suffering with a sore mouth on pred, the last couple of days I've had a sore roof of my mouth, yesterday my tongue was...

Hi all, just a quicky, has anyone been suffering with a sore mouth on pred, the ...

Poppylop

•5 years ago

6 Replies

Help me help

Hi I posted a wee while ago to say that I am in the process of undertaking research through university. I'm looking into the effect and treatment of chronic...

Hi I posted a wee while ago to say that I am in the process of undertaking resea...

Singr

•5 years ago

150 Replies

Adrenal glands starting to work

Hi I am tapering well and I am now down to 6 mg and was wondering at what point does your own adrenal glands start working

Hi I am tapering well and I am now down to 6 mg and was wondering at what point ...

irisweeder

•5 years ago

14 Replies

High blood pressure and prednisone

Hello everybody Brief history again Was diagnosed in December 2018 with PMR and finally got to see a rheumatologist in February 2019 he started me out on 30...

Hello everybody Brief history again Was diagnosed in December 2018 with PMR and...

jensen0518

•5 years ago

16 Replies

J-A-N

Hi All --- was dx 9yrs ago, GCA then PMR -- 1yr ago RA. Started on 65mg Preds reducing to 25 then follow on down. Started MTX in 13 at 25mg. Had many...

Hi All --- was dx 9yrs ago, GCA then PMR -- 1yr ago RA. Started on 65mg Pre...

j-a-n

•5 years ago

14 Replies

Rheumatologist app

So, after waiting 7 months for my NHS App , was given a cancellation app yesterday . Saw the same Cons. as I saw Privately. He had ordered muscle scans and...

So, after waiting 7 months for my NHS App , was given a cancellation app yesterd...

Breconblue

•5 years ago

49 Replies

Strange happenings!

I have noticed a strange thing....whenever I have an infection of some type, cold, UTI etc my PMR is so much better even to the point where I think it has gone...

I have noticed a strange thing....whenever I have an infection of some type, col...

Orpheus82

•5 years ago

13 Replies

Struggling Newbie

Hello all , first post on this forum so please bear with me. I am a 54 year old male, Married ,children ,a career firefighter ,foster parent and until PMR very...

Hello all , first post on this forum so please bear with me. I am a 54 year old ...

firesetter

•5 years ago

27 Replies

GCA, help... Pred not helping

Just dx GCA biopsy and blood work... Prednisone is Not helping!!! Rheumatologist doesn't know what to do. Telling me it must be something else even though...

Just dx GCA biopsy and blood work... Prednisone is Not helping!!! Rheumatologis...

twriller

•5 years ago

29 Replies

Homeopathic Treatment

Progress Report on my Homeopathic Treatment. I would like to tell you how I am doing now, even though on my first report two month ago I was 'booed' out of the...

Progress Report on my Homeopathic Treatment. I would like to tell you how I am d...

km5yx7

•5 years ago

31 Replies

V Pillow - great investment

After a very busy, productive day I am having an early night so have just relaxed in bed with my v pillow! When it occurred to me that some of you may not have...

After a very busy, productive day I am having an early night so have just relaxe...

Marilyn1959

•5 years ago

23 Replies

PMR

Saw my Rheumy on Thursday and he agreed that I do have PMR as well as GCA which I have had for three years and I am now on 15mgs steroids he said I should...

Saw my Rheumy on Thursday and he agreed that I do have PMR as well as GCA which ...

Gran6

•5 years ago

13 Replies

Causes of petechia ?

I have been blaming the petechia I have been experiencing on PMR. and the prednisone. Mine isn't horrendous but bad enough. When is it a good idea to have it...

I have been blaming the petechia I have been experiencing on PMR. and the predni...

Linny3

•5 years ago

8 Replies

Flu vaccine

Interesting comment from one of the doctors in my surgery. Not my usual doctor. I was asking if I should have flu jab. His initial reply was there were some...

Interesting comment from one of the doctors in my surgery. Not my usual doctor. ...

Rosina1871

•5 years ago

40 Replies

Should I still have flu jab tomorrow?

Have had really loose tummy since yesterday.... Feeling washed out! Should I still attend?... Advice gratefully received...

Have had really loose tummy since yesterday.... Feeling washed out! Should I st...

Oumaof2

•5 years ago

7 Replies

Opposite effect from Prednisone

Interesting that so many mention brain fog and fatigue while on Prednisone.I have PMR and currently am taking 15 mg.I do not experience either of those...

Interesting that so many mention brain fog and fatigue while on Prednisone.I hav...

Darcy2000

•5 years ago

37 Replies

Just diagnosed and anxious

After a very worrying couple of months have been diagnosed with pmr, am on 15mg of steroids for 2 weeks, 12.5 mg for 2 weeks, 10 mg for a month and then...

After a very worrying couple of months have been diagnosed with pmr, am on 15mg ...

Arflane97G

•5 years ago

33 Replies

Rheumatologist app at last!

I have been waiting 7 months to see a new Rheumatologist and was given a last minute cancellation.. this afternoon ! In the meantime, the GP prescribed...

I have been waiting 7 months to see a new Rheumatologist and was given a last mi...

Breconblue

•5 years ago

2 Replies

Post op

Just to let all you lovley people hubby came through quadruple bypass surgery Doing very well I upped my dose of steroids to 10mg from 5mg after all your...

Just to let all you lovley people hubby came through quadruple bypass surgery Do...

Lynnray

•5 years ago

10 Replies

Tapering terrors

I spotted this on a running forum. It’s for those training for the marathon at the end of the month and starting to run shorter distances as race day...

I spotted this on a running forum. It’s for those training for the marathon at t...

GerriMc

•5 years ago

10 Replies

Reflux pain ( indigestion)

This is my second year of Prednisolone ( with 4 month gap, PMR returned) last year was incredibly straightforward monthly tapering down to nil no real side...

This is my second year of Prednisolone ( with 4 month gap, PMR returned) last ye...

Breconblue

•5 years ago

13 Replies

High dose Pred advice

I am on 50mg a a day, taking three times daily after meals and spreading relatively evenly 30,20,20 to minimise stomach problems. I have since read that it...

I am on 50mg a a day, taking three times daily after meals and spreading relativ...

clachaig

•5 years ago

15 Replies

How to manage a flare?

Hi, I was diagnosed in December 2018 and have managed to get down to 7mg pred. Been managing to control symptoms until last couple of weeks when niggling...

Hi, I was diagnosed in December 2018 and have managed to get down to 7mg pred. B...

Smithson

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2019

Sleep Out

I'm not the only person to feel like this!!

Chichester support group monthly meeting.

Do I agree to take AA?

Humming noise in my left ear

Diet to help Stress

B..... weather!!

Quick question

Help me help

Adrenal glands starting to work

High blood pressure and prednisone

J-A-N

Rheumatologist app

Strange happenings!

Struggling Newbie

GCA, help... Pred not helping

Homeopathic Treatment

V Pillow - great investment

PMR

Causes of petechia ?

Flu vaccine

Should I still have flu jab tomorrow?

Opposite effect from Prednisone

Just diagnosed and anxious

Rheumatologist app at last!

Post op

Tapering terrors

Reflux pain ( indigestion)

High dose Pred advice

How to manage a flare?

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