Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,663 members • 38,832 posts

All posts for August 2019

Jaw pain and prednisolone

Evening all. Me again ! Each time I've seen a doctor on this whole gca journey, they've seemed to lose interest when I confess that I haven't had any jaw pain...

Evening all. Me again ! Each time I've seen a doctor on this whole gca journey,...

Linda3009

•5 years ago

32 Replies

Ostio ARTHRITIS

Im Back. Still off pred. But now have Ostio Arthritis. One thing bugs me is sfiff joints in morning. Getting worse. I

Im Back. Still off pred. But now have Ostio Arthritis. One thing bugs me is ...

Rocketronzy

•5 years ago

37 Replies

GCA and travel insurance

Hi everyone. This is my first time posting although I have been following the group since I started on my GCA journey in June 2019. Has any one recently...

Hi everyone. This is my first time posting although I have been following the gr...

soulgirl65

•5 years ago

11 Replies

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Tapering Prednisone

I recently started tapering prednisone from 11.5 to 10.5. I am just starting 3 days new dose. This morning I woke with a slight pain in my right shoulder,...

I recently started tapering prednisone from 11.5 to 10.5. I am just starting 3...

Summerrental

•5 years ago

5 Replies

Prednisone Actemra and MTX

Does anyone have experience taking prednisone, Actemra and MTX all at the same time?

Does anyone have experience taking prednisone, Actemra and MTX all at the same t...

Lauren103

•5 years ago

10 Replies

Overdosed pred by mistake

I think I have taken today's 6mg pred twice. Not sure though. Will I be ok going back to 6mg tomorrow. Thanks

I think I have taken today's 6mg pred twice. Not sure though. Will I be ok going...

Healthworrier

•5 years ago

9 Replies

Discontinuation of prednisone

After tow years and three months I managed to get to 0.5 mg and taking some paracetamol here and there and always a 10 mg amytriptiline tablet at night....

After tow years and three months I managed to get to 0.5 mg and taking some para...

Kaaswinkel

•5 years ago

31 Replies

PMR and prednisone

Hello, I have just joined this group, I hope I am in the right section. I was told about HealthUnlocked by someone on the Mayo clinic site, which is awesome,...

Hello, I have just joined this group, I hope I am in the right section. I was t...

LemonZest11

•5 years ago

37 Replies

Let's talk about esophageal spasms, please.

The first time I was visited by this horrendously painful spasm was when I was on 50 mg of prednisone for GCA back in Feb. 2018. It really did feel like a...

The first time I was visited by this horrendously painful spasm was when I was o...

Blurry62

•5 years ago

40 Replies

HACKER???

I just got a notification that I had a private message from hthmk and there was a photo and I clicked on it (stupidly in the email) and I think it is a hacker....

I just got a notification that I had a private message from hthmk and there was ...

yogabonnie

•5 years ago

25 Replies

Frustrated PMR vs RA

I saw the rheumatologist yesterday fully expecting her to agree with my PCP’s dx of PMR, increase my pred dose slightly since I still have 1-2 days of mild...

I saw the rheumatologist yesterday fully expecting her to agree with my PCP’s dx...

cranberryt

•5 years ago

38 Replies

On start dose of 15 mg Pred—- best way to do first taper?

More advice please lovely ladies! I am seeing my GP tomorrow for the first time since starting 15 mg Pred. He is bound to talk about decreasing it. What...

More advice please lovely ladies! I am seeing my GP tomorrow for the first tim...

Smokygirl

•5 years ago

28 Replies

Atypical PMR flare up

A few months ago I started to get symptoms of pain and stiffness in all my joints which I have not experienced before. I saw my rheumi who did a full range of...

A few months ago I started to get symptoms of pain and stiffness in all my joint...

PMRHortons

•5 years ago

17 Replies

Doing well but....

Have posted before. On 4mg Pred for PMR. Went off for 2 weeks but symptoms were returning. So went back on low dose. No pains now. According to one reply, they...

Have posted before. On 4mg Pred for PMR. Went off for 2 weeks but symptoms were ...

Heinrich7

•5 years ago

21 Replies

Toothache as a symptom of PMR?

Has anyone else had toothache around the time of diagnosis? I suffered for months with an aching jaw which gave me a dull ache in my teeth and ended up having...

Has anyone else had toothache around the time of diagnosis? I suffered for month...

LynnTLeeds

•5 years ago

7 Replies

PMR

Could you please tell me what PMR is ?

Evyb

•5 years ago

10 Replies

Rapid tapering?

My rheumatologist is recommending that I drop my prednisone dosage from 10 to 7.5 and then in a month drop from 7.5 to 5 mg. Her thinking is that I was did as...

My rheumatologist is recommending that I drop my prednisone dosage from 10 to 7....

Navion

•5 years ago

5 Replies

Random question about ESR level and taper

Is ESR 33 an okay level? It's been creeping up as I taper. At 9.5. I feel not bad.

Is ESR 33 an okay level? It's been creeping up as I taper. At 9.5. I feel not ba...

Achybreakyheart

•5 years ago

14 Replies

Feeling low, follow up to 3 months of stress

Hello everyone, I’m sorry I haven’t replied yet to everyone who responded to my earlier post about all the stress of the last months plus a move. Thank...

Hello everyone, I’m sorry I haven’t replied yet to everyone who responded to...

Mstiles

•5 years ago

23 Replies

Ataxia

Hi I have SCA type 6. I feel so tired most of the time. If there is anybody that feels the same or has done in the past, can you tell me what is the best way...

Hi I have SCA type 6. I feel so tired most of the time. If there is anybody that...

Frank11

•5 years ago

4 Replies

To wash or not to wash - soap is the question ...

We talk about this quite a bit - the state of our skin while taking pred. A few of us swear by never using soap products. Here is an article to back us up:...

We talk about this quite a bit - the state of our skin while taking pred. A few ...

PMRpro

Ambassador•5 years ago

158 Replies

PMR and tapering.

Looking for advice and more information. I have been taking 5mg, tapering, for 16 days. I was surprised that yesterday I did the longest walk in the park,...

Looking for advice and more information. I have been taking 5mg, tapering, for ...

Noosat

•5 years ago

8 Replies

Coated pred/ppi

Need some advice please. Currently on 10mg pred, have been on uncoated pred apart from a couple of times when needed a 2.5mg tablet to make up dose which were...

Need some advice please. Currently on 10mg pred, have been on uncoated pred apar...

Iloveholidays

•5 years ago

12 Replies

LONG TERM EFFECTS OF PRED?

Just interested to know. Are there any long term effects of Pred.? i understand , Ones Adrenal glands stop working,( whatever they are), but apart from that?

Just interested to know. Are there any long term effects of Pred.? i understand ...

Stifffingers

•5 years ago

7 Replies

Flare??

Hello all you lovely people. I have a question please. I was diagnosed 3 and a half years ago with pmr and I am now finally down to 2.5mg this last month....

Hello all you lovely people. I have a question please. I was diagnosed 3 and a h...

jenerino

•5 years ago

12 Replies

Am I the only one never to have seen a "rheumy"?

My GP diagnosed PMR but confirmed with a blood test. Definite diagnosis within 24 hours. He follows the NICE recommended route of a course of prednisolone...

My GP diagnosed PMR but confirmed with a blood test. Definite diagnosis within 2...

HamishPMR

•5 years ago

16 Replies

Worrying symptoms

Thanks for assurances, most likely new pmr symptoms which hopefully will eventually resolve.

Thanks for assurances, most likely new pmr symptoms which hopefully will eventua...

Ann-1

•5 years ago

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FINALLY

Finally after 4 year of PMR. Going through the same aches, pains and mental anguish as everyone on this forum, I do believe that I'm finished with that...

Finally after 4 year of PMR. Going through the same aches, pains and mental angu...

Woodcarver201

•5 years ago

19 Replies

Different side effects

Mine aren’t this visible 😱

aladymo

•5 years ago

31 Replies

Opinions on this taper plan suggested by my rheumy for GCA diagnosed 17 th may 2019

prednisalone at 50 mg. a day to reduce by 5 mg every week down to 10 mg a day and thereafter by 1 mg for 3 weeks at a time until finished Steroid side...

prednisalone at 50 mg. a day to reduce by 5 mg every week down to 10 mg a day...

Purpleprimrose

•5 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2019

Jaw pain and prednisolone

Ostio ARTHRITIS

GCA and travel insurance

Tapering Prednisone

Prednisone Actemra and MTX

Overdosed pred by mistake

Discontinuation of prednisone

PMR and prednisone

Let's talk about esophageal spasms, please.

HACKER???

Frustrated PMR vs RA

On start dose of 15 mg Pred—- best way to do first taper?

Atypical PMR flare up

Doing well but....

Toothache as a symptom of PMR?

PMR

Rapid tapering?

Random question about ESR level and taper

Feeling low, follow up to 3 months of stress

Ataxia

To wash or not to wash - soap is the question ...

PMR and tapering.

Coated pred/ppi

LONG TERM EFFECTS OF PRED?

Flare??

Am I the only one never to have seen a "rheumy"?

Worrying symptoms

FINALLY

Different side effects

Opinions on this taper plan suggested by my rheumy for GCA diagnosed 17 th may 2019

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