Ostio ARTHRITIS : Im Back. Still off pred. But... - PMRGCAuk

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Ostio ARTHRITIS

Rocketronzy
Rocketronzy
37 Replies

Im Back.

Still off pred. But now have Ostio Arthritis.

One thing bugs me is sfiff joints in morning. Getting worse.

I

37 Replies
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MrsNails
MrsNailsModerator

Hi Rockerronzy

Good to hear from you, sorry about your joints in a morning.

Are they giving you any treatment, ie Meds for the OA?

I think the mornings are bad for a lot of us.

If you are taking Meds, do you take any at night?

MrsN

1 like
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PMRpro
PMRproModerator

Sure the increasing stiffness in the morning isn't your friend PMR? OA may make you stiff but it shouldn't increase at a noticeable rate.

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SheffieldJane

It’s not fair is it? The same thing has happened to me. One day they will make the link. At least it responds to painkillers and exercise.

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HeronNS

Beware of meds for OA. Nsaids, including our friend aspirin, interfere with cartilage regeneration. Keep warm (not hard this year) and keep moving.

I have taken glucosamine (1000 mg morning and evening, capsules not tablets, with food).

A fellow sufferer

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lindanna

Hi everyone,

I have had O Arthritis in my knees since 1995. Of course I have no cartilage and all my joints are now involved. If you read my entrees you will see I used the Nsaid Voltaren. Big

mistake, my stomach threw out a big ball of pain and it woke me up. So I had to find

something else safe for my joints so I can keep moving. I did find what works for me. That is ginger oil. I make my own. Olive oil and ginger infusion. Easy to make. My knees swell up with inflammation. I rub on the oil and within 10 minutes the swelling is gone. It does not take the pain away 100% but low enough so I can walk. And my shoulder joints, no pain at all as long as I apply it in the morning and include the elbow joints. Also used for my back, Degenerative Discs and TMD muscles around my face. I always had pain at the biopsy sight for GCA ( error made by surgeon) not any longer with ginger oil.

But as with anything you have to check the interaction with drugs you take or sensitivities.

Can't overuse also and it generates heat.

My DR. laughed at me but a week ago I found and ad on line that had DR.s backing the use of ginger oil for inflammation.

Research it might be a useful tool.

GCA since 2015 tapering 6 to 5.5.

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HeronNS
HeronNS
in reply to lindanna

I believe you. I have an infusion of ginger root (ginger tea made with grated root) every evening and I feel it does help my PMR and it is also good for some headaches.

1 like
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lindanna
lindanna
in reply to HeronNS

Me to ginger tea every day and I have been getting a low headache for a few weeks. I have so much going on like TMD and a spot on top of my head that hurts and sinus issues. So I added the ginger rub to all and headaches are gone. I think the massage may also be helping!

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Blearyeyed
Blearyeyed
in reply to HeronNS

Keeps those bugs and infections at bay , eases a dry throat , and helps settle your stomach each day too , if you can take the ginger , and it's ok with your other health issues it's definitely worth it , fresh is best.

Makes a great hot drink with added orange and lemon juice and zest , a spoon of your honey and a teaspoon of turmeric, inch or two of grated ginger and green or ginger tea steeped in the hot water for ten minutes first then allowed to cool a little before adding the juice , then blitzed in a blender to make it easier to drink.

Great for immunity and colds , but I like it in the summer too , l keep it in a bottle in the fridge and drink it on lots of ice to help clear the sinus from all those summer allergies.

It really does reduce the inflammation and pressure in your head and sinus that increases the headaches.

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HeronNS
HeronNS
in reply to Blearyeyed

I like the ginger straight up, nothing added except boiling water. Never have been a fan of any flavoured teas or tisanes! And flavoured coffees smell wonderful and taste atrocious!

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Blearyeyed
Blearyeyed
in reply to HeronNS

I know , I do like my ginger "neat" too , I'm happy to get a real punch in the face from it , I make this juice/ tea for the added goodness of the other ingredients , plus it gets drunk by the other " ginger wimps" in the house as well . It really helps the girls hayfever. Most people can't take the fire without a little sweetness.

I think our love of the hot stuff must be proof of our horns!👿 ( Thinking of the cartoon the other day😇)

Have you ever tried Mrs Crimbles Gluten Free Ginger cake , it's great for a treat , and literally surrounded by chunks of good candied ginger. Nairn's ginger oat cakes , gluten free and lower sugar than a standard biscuit, very nice and spicy too.

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HeronNS
HeronNS
in reply to Blearyeyed

No. I have had Nairns regular oatcakes, they are available here. I hate to sound boring but I usually only buy sweet baked goods from my daughter in law who makes her living by baking Cookies and Treats.

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Blearyeyed
Blearyeyed
in reply to HeronNS

Not boring at all , if you have access to good home baked goods for your odd treat why on earth would you choose something from a packet instead.

I do like Nairn's oatcakes in general , I like the fact that they are packed in portions individually so it's easy to pop in your pocket for a walk , they have also saved many a trip out with a Diabetic on my arm😋😁

1 like
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PMRpro
PMRproModerator
in reply to Blearyeyed

Don't think you should have told me about that ...

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Blearyeyed
Blearyeyed
in reply to PMRpro

What the drink , the cake , the oatcakes or about my hidden horns👿😱😂😂😂😘

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PMRpro
PMRproModerator
in reply to Blearyeyed

The cake ...

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Blearyeyed
Blearyeyed
in reply to PMRpro

It is gorgeous , especially warmed with a little creme fraiche or your favourite ice cream!!

I have to get it via the big company starting with A now as they stopped selling it locally in Holland and Barrett , at one point the only way I could get my fix was by stocking up at the Hospital shop.

It did make going for appointments more bearable though , I could pretend I was only going because I needed to buy some cake 😋😂😂😘

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PMRpro
PMRproModerator
in reply to Blearyeyed

I can't find gluten-free ginger cake on the Crimbles website - just the one with rye flour????

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Blearyeyed
Blearyeyed
in reply to PMRpro

I'm confused , have you looked on Amazon , I bought some a couple of weeks ago so it was still available then , please don't tell me that I'm going to be hit by the curse of the " Discontinued Line" again !!!!😨😨😨😨😨

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PMRpro
PMRproModerator
in reply to Blearyeyed

All I can see is the rye flour one - no mention in the gluten-free list but I didn't find the site particularly easy to use.

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Blearyeyed
Blearyeyed
in reply to PMRpro

It looks like the final death knell has occurred on the gluten free version !!!

I've checked on the sites I have bought it from , and they only seem to stock the wheat free with rye now too .

The one with rye flour tastes much the same , I've had it , just a little chewier than the fully gluten free . Looks like after this last loaf , unless I find a random one in a little health shop I will be getting the rye version but wont be able to eat it very often.

Another totally gluten free treat bites the dust!

Drat!!😣😣😣😣

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PMRpro
PMRproModerator
in reply to Blearyeyed

Write to Crimbles - show there IS a demand!

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Blearyeyed
Blearyeyed
in reply to PMRpro

What of 2!!😂😂😂😂

Can you eat rye?

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PMRpro
PMRproModerator
in reply to Blearyeyed

I can, yes, But it is the principle of the thing. It is actually not difficult to make generic recipes gluten-free - inclusivity ...

1 like
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Hidden
HiddenAmbassador
in reply to PMRpro

You do realise that I want some parkin now.

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PMRpro
PMRproModerator
in reply to Hidden

Sorry! :(

1 like
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Hidden
HiddenAmbassador
in reply to PMRpro

(◕ᴗ◕✿)

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nickm001
nickm001
in reply to Blearyeyed

Here in Japan ginger is very common. The best way I like to eat it is pickled. It is served thin sliced. Spicy and delicious.

2 likes
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Blearyeyed
Blearyeyed
in reply to nickm001

Yes I love pickled ginger , I get some concepts versions from the Chinese Deli

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PMRpro
PMRproModerator
in reply to nickm001

It certainly is!

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Blackcat1M
Blackcat1M
in reply to lindanna

Hi lindanna, how much oil do you use, and how much ginger please, I am a great believer in ginger too.

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lindanna
lindanna
in reply to Blackcat1M

Morning:

I put 1.5 cups virgin olive oil in an oven proof casserole dish and add 1 cup shredded ginger root. I include the skin. In oven on as low as you can, my oven is 170 degrees for 2 hours. Then you remove the pulp, I find you are left with a sludge so I let it settle and just save the clear liquid. It will be a golden color or green depending what olive oil you use. I keep mine in little glass spice bottles in the fridge. The oil will harden but melts soon after you take it out. I leave the bottle I am using out, don't keep putting it in and out of the fridge. I dip a finger in and rub it on the skin. It really relaxes you and works quickly. For me I include rubbing the oil on back of knees as well as front as it will relieve the muscle pulls.

You can buy it and I have read it is much better than homemade because of the way they extract and infuse the ginger. I will try it when I find some.

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PMRpro
PMRproModerator
in reply to lindanna

I'm assuming that is 170F????? Which would be 75C. I use 170C for roasting things.

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Stella3
Stella3
in reply to lindanna

I also have osteoporosis. I have GCA and am now down to 2mg of Prednisone (from 60). It’s been a long rough ride....the doctor told me that when you decrease your Prednisone all the aches and pains from before you got GCA return....I am so interested in the ginger infusion I am going to try it. I also just ordered some glucosamine/Chondroitin. Yes, early mornings are hard....swimming helps.

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PMRpro
PMRproModerator
in reply to Stella3

It all depends though doesn't it? If the aches and pain from before GCA were actually PMR as a symptom of GCA they will only reappear if the PMR is still active, which it may be. Other causes of aches and pains are a different matter.

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Stella3
Stella3
in reply to PMRpro

Yes you are right PMRpro. I am 74 years and I got GCA when I was 72 which apparently is the average age for it....although I know it varies. I am trying glucosamine Chondroitin ... and am going to try the ginger/oil recipe. I have osteoporosis too, although that doesn’t cause pain, but more vulnerable to breaks if one falls. Arthritis runs in my family, so frankly I am hoping that the stiffness...fatigue that I am feeling now is not a sign that PMR has not gone away. I am not at home right now but will be visiting my doc when I return. I guess another blood test for inflammation. NSAIDs are not for me...bother my stomach. Thank you for your reply it was much appreciated.

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Blearyeyed
Blearyeyed
in reply to Stella3

Yes , it's all a matter of trial and error and finding the balance between doing what's good for all of your conditions while not triggering the other.

I put a ginger drink recipe in a reply to Heron up above on the post you might like too , using ginger from within is as good for you as a topical solution.

I find straight ginger oil can make my skin a bit itchy or cause a rash , especially now that I'm on steroids and my skin is more sensitive , so if I use it on my skin I mix it with a little cooling moisturiser lotion or coconut oil 1:1.

I do this with menthol or peppermint oils too .

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lindanna
lindanna
in reply to Stella3

So where I am at. As I decrease the pain in the knees goes up and I can take nothing internally for pain. The ginger works so well I am afraid it will stop! Tumeric is another non med anti inflammatory but it comes with a lot more side effect and interactive

issues.

You give me hope 2 mg from 60 congrats!

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