Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,669 members • 38,856 posts

All posts for August 2019

Itching!

DO ANY OF YOU ITCH? I KNOW IT HAS TO DO WITH THE PMR OR THE PRED. mY ANKLES ITCH , THE TOPS OF BOTH HANDS ITCH, MY LEGS, MY CHEST! I CAN HARDLY STAND IT!...

DO ANY OF YOU ITCH? I KNOW IT HAS TO DO WITH THE PMR OR THE PRED. mY ANKLES IT...

stonecreek

•5 years ago

16 Replies

What is DSNS?

Good afternoon. This is my 1st post, so forgive my ignorance. I've read a number of posts talking about reducing prednisolone by the DSNS method. Can some kind...

Good afternoon. This is my 1st post, so forgive my ignorance. I've read a number...

PMRgo

•5 years ago

12 Replies

Advice please

Hi all, I would be most grateful for your advice. Currently on 11mg of Prednisolone using the DSNS plan. I’ve started to feel that my shoulders are slightly...

Hi all, I would be most grateful for your advice. Currently on 11mg of Predniso...

SueMacD

•5 years ago

15 Replies

Want to take advantage of all our features? Just log in!

Down to 2.5 mil for 2 day

Only been here once before and it did not last long. So happy to to back at 2.5ml hope it stays. Doing a few new thing and it’s working. Gluten free. Cbd oil...

Only been here once before and it did not last long. So happy to to back at 2.5m...

Mjhollywood1

•5 years ago

4 Replies

Haïr loss

Hi all, This is my first post and gratefully I’ve just recently been introduced to this site. I have had PMR for just over two years and feel lucky to have...

Hi all, This is my first post and gratefully I’ve just recently been introduced...

Jimmy2008

•5 years ago

14 Replies

Tendonitis

I’d like to plug a question into the collective experience bank about tendons. So, started on 60mg in March 2017 for GCA and now on 1.5mg as of 2 weeks ago....

I’d like to plug a question into the collective experience bank about tendons. S...

SnazzyD

•5 years ago

75 Replies

Tapering

Since my first post I have been following all recent posts with interest and would be grateful for further advice. After initial dose of Pred, 20 mgs daily...

Since my first post I have been following all recent posts with interest and wou...

Billswife

•5 years ago

19 Replies

GCA OR STIFFNESS FROM PMR

GCA OR stiffness from PMR? While waiting to see Rheumatologist I have a Question. I have tenderness in the base of my skull and not sure if it is a result of...

GCA OR stiffness from PMR? While waiting to see Rheumatologist I have a Question...

Darcy2000

•5 years ago

11 Replies

Hair thinning - does it ever stop?

Obviously the answer to this is yes - when I stop taking the little pills - but as I am going to be on them long term does it mean that the diffuse thinning...

Obviously the answer to this is yes - when I stop taking the little pills - but ...

jaycee444

•5 years ago

49 Replies

My Post will be Thankful

I don't post very often, as you know. But I would like to say when I was down a few weeks ago, I had such huge responses, which was lovely I am ok, most...

I don't post very often, as you know. But I would like to say when I was down a ...

morrison

•5 years ago

20 Replies

Going backwards...again. 10mg wall? Advice please

Advice please, I’m really struggling. Brief background; PMR symptoms undiagnosed for > 3 years prior to Pmr diagnosis by rheumatologist Aug 2018. Immediate...

Advice please, I’m really struggling. Brief background; PMR symptoms undiagnose...

Hidden

•5 years ago

23 Replies

How can 1/2 mg make so much difference?

For the past month I have been tapering from 13&1/2mg pred. to 12&1/2 mg. I was at 13mg for 2 weeks and was feeling ok. Decided it was an ok time to taper by...

For the past month I have been tapering from 13&1/2mg pred. to 12&1/2 mg. I was ...

Linny3

•5 years ago

20 Replies

Increasing my medication

I have been struggling for 5 months and still dont seem to have my symptoms anything like under control, for any length of time despite trying raising to 18,...

I have been struggling for 5 months and still dont seem to have my symptoms any...

spearce

•5 years ago

11 Replies

In remission with PMR and climbing one of the World's most dangerous mountains

Today the Durham Times (UK) has reported my forthcoming attempt in Oct/Nov to climb Annapurna IV (7525m / 24,700ft) to raise awareness of my condition...

Today the Durham Times (UK) has reported my forthcoming attempt in Oct/Nov to cl...

Skinnyjonny

•5 years ago

13 Replies

Keto and PMR

Almost 2 years PMR diagnosis, started Keto diet 1 week ago, also tapering to 7 mg of Pred (very slowly). Any reason not to do Keto? Thanks for your wisdom and...

Almost 2 years PMR diagnosis, started Keto diet 1 week ago, also tapering to 7 m...

Neck680

•5 years ago

18 Replies

Major flare gca

For PMRpro and anyone who feels free hop in. I have been ok on Actemra twice monthly also 9 mg pred. Stopped the Actemra for two weeks for eye surgery and...

For PMRpro and anyone who feels free hop in. I have been ok on Actemra twice mon...

Nap1

•5 years ago

14 Replies

Update - weird 'allergic' reactions

I wrote a while ago about weird reactions that I had been having to chemical like perfumes, cigarette smoke, sprays and foods, supplements , any additives,...

I wrote a while ago about weird reactions that I had been having to chemical lik...

Slosh

•5 years ago

52 Replies

Should I go on holiday?

I was diagnosed with PMR and possible GCA in May 2017. Spent many months on 30 or 40mg Pred (long story!) but have now reduced to 7mg. I don’t have the pain...

I was diagnosed with PMR and possible GCA in May 2017. Spent many months on 30 o...

Janann25

•5 years ago

18 Replies

Back pain

I have GCA. Diagnosed in October 2019. Stared at 60 prednisone. Now on 22. My SED and CRP are good. But every time. I do Minor activity I have back...

I have GCA. Diagnosed in October 2019. Stared at 60 prednisone. Now on 22. M...

alvertta

•5 years ago

5 Replies

Thanks everyone

Hi everyone wanted to update you after my recent scares. Firstly I was discharged by the gynae team today following a hystoscopy. Ouch that hurt. Saw my GP...

Hi everyone wanted to update you after my recent scares. Firstly I was discharge...

JulieR2

•5 years ago

5 Replies

Blood Tests

Hi again, I have a blood test booked for Monday now my GP has received Consultants letter suggesting I may have Polymyalgia Rheumatica. So I have 2. Questions...

Hi again, I have a blood test booked for Monday now my GP has received Consultan...

HJC321

•5 years ago

23 Replies

Progress and a bit of fun

I wrote a silly ditty for someone on her quite a while back. Am posting it here now so I can delete from my iPad as iCloud alarmingly getting full and I don't...

I wrote a silly ditty for someone on her quite a while back. Am posting it here ...

Pongo13

•5 years ago

24 Replies

Mountains are definitely a metaphor of life ...

I'm in remission with Polymyalgia Rheumatica and I'll be climbing one of the world's highest, remotest, coldest and deadliest mountains as the ultimate...

I'm in remission with Polymyalgia Rheumatica and I'll be climbing one of the wor...

Skinnyjonny

•5 years ago

40 Replies

Can we talk about foot cramps, too?

Since starting my GCA journey in 2018, I've been plagued with extremely painful toe and foot cramps. They occur while I'm resting. My toes literally draw up...

Since starting my GCA journey in 2018, I've been plagued with extremely painful ...

Blurry62

•5 years ago

27 Replies

Need advice on reducing to the big Zero!

Hi everyone, have successfully been on 1mg for a while now and feel ready to tr y for zero. What would be the best way to do it do you think? I can't cut the...

Hi everyone, have successfully been on 1mg for a while now and feel ready to tr ...

Attic

•5 years ago

11 Replies

Cheesed off

Each time I go into Health unlocked I have to sign in. I haven’t done this for a couple of years I usually go straight through is this a new law.? If it...

Each time I go into Health unlocked I have to sign in. I haven’t done this f...

Perkey

•5 years ago

12 Replies

How long did it take for a diagnosis?

Thought this might be of interest here. This is a copy of my reply to the question How long did it take for a diagnosis? on Vasculitis site. Eight weeks since...

Thought this might be of interest here. This is a copy of my reply to the questi...

Teekay2

•5 years ago

11 Replies

HOW LITTLE OUR GP'S KNOW

Saturday Had a great day went out with friends and no problems. I was very happy Sunday I woke up very short of breath and eyes were not focusing properly....

Saturday Had a great day went out with friends and no problems. I was very happ...

shazstep

•5 years ago

23 Replies

Pred withdrawal symptoms?

Hi everyone. GCA diagnosed March 2017 and been tapering ever since. Had my share of high spirits ( Pred euphoria due to high initial dose...quite liked it!)...

Hi everyone. GCA diagnosed March 2017 and been tapering ever since. Had my share...

Judy211

•5 years ago

10 Replies

Depression has hit

I have slowly tapered to 7.5mg from 8mg over the last 7 weeks I've been on straight 7.5 for the last 5 days and depression has hit me today feeling awful,...

I have slowly tapered to 7.5mg from 8mg over the last 7 weeks I've been on strai...

Hidden

•5 years ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2019

Itching!

What is DSNS?

Advice please

Down to 2.5 mil for 2 day

Haïr loss

Tendonitis

Tapering

GCA OR STIFFNESS FROM PMR

Hair thinning - does it ever stop?

My Post will be Thankful

Going backwards...again. 10mg wall? Advice please

How can 1/2 mg make so much difference?

Increasing my medication

In remission with PMR and climbing one of the World's most dangerous mountains

Keto and PMR

Major flare gca

Update - weird 'allergic' reactions

Should I go on holiday?

Back pain

Thanks everyone

Blood Tests

Progress and a bit of fun

Mountains are definitely a metaphor of life ...

Can we talk about foot cramps, too?

Need advice on reducing to the big Zero!

Cheesed off

How long did it take for a diagnosis?

HOW LITTLE OUR GP'S KNOW

Pred withdrawal symptoms?

Depression has hit

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive