After tow years and three months I managed to get to 0.5 mg and taking some paracetamol here and there and always a 10 mg amytriptiline tablet at night. However my singing voice was still poor, which is very traumatic and sad for a singer.
So now one week ago I took the bold or foolish step to ditch the prednisone completely and after one week my singing voice has improved. I use two times a day ibuprofen 200 mg and probably three times a day one paracetamol tablet 500 mg each, while still continuing with my amytrip at night. Yes, there is some more pain, and I know the pmr has not gone, we know the kind of pain pmr produces , but I can just manage the Joel thing. The fact that my singing voice is better for me is so important that I elect to put up with some more pain, and “ wait and see” what happens. I have to say I have never had “ a flair up “ like so many of us describe.
I am not after anybody’s advise whether this is a good or bad plan, I just want to know if anybody else has done this: ditch the steroids and replace it with NSAID s for the higher good of being able to sing, or any other higher good that you might have had, and what your experiences have been: did you manage it, or did u have to review your initial plan.
I know it is quite early to judge, ( one week of steroids only) and today I did have a blood test to see what the levels of inflammation are. Looking forward to hear your story. Kind regards.