Need advice on reducing to the big Zero!

[Attic]

Hi everyone, have successfully been on 1mg for a while now and feel ready to tr y for zero. What would be the best way to do it do you think? I can't cut the pills in half as they are coated.

I am so nervous and jus t hope it is successful. All advice will be gratefully received.

Thank you, Jenny x

I

[cranberryt]

That’s exciting! I am new so not experienced at all but you could do two days 1mg, 1 day none. Or you could do morning one day, evening the next to stretch out the time between pills. Will be curious what experienced members say! Good luck!!

[SheffieldJane]

Hurrah! Go for it Jenny! What about every other day for a week? Then increase your no Pred days each week, listening to your body at each step. There is no rule that says we can’t take the odd 1 mg when the need arises.

You are right to be cautious every mg counts. Good luck. Let me know if you try this ( I am not there yet and it’s theoretical). 3 years 5 months PMR on 4 mgs Pred. X

[DorsetLady PMRGCAuk volunteer]

Use one of the slow tapers -

healthunlocked.com/pmrgcauk...

Or -

healthunlocked.com/lupusuk/...

[PMRpro Ambassador]

It isn't any different from any other taper step - just don't rush it! This is such a low dose there is no need. And while not wanting to be a party pooper: be aware. There have been plenty for whome 1mg was keeping things under wraps. Don't deny any return of symptoms.

[SnazzyD]

Hello. Is there a reason why you can’t do normal Pred now? Pred was like lava in my stomach but now just half a mg is fine. Good luck!

[Blearyeyed]

Good luck , be calm and confident on your last step and take it slowly , with the slow taper , but also extend it out if you need to .

[Paulamac77]

I achieved the big lovely zero by using the DSNS slow taper recommended here (couldn’t have done it without this method). Pred free 3 months and counting .......

[Blearyeyed in reply to Paulamac77]

Amazing well done you , fingers crossed for many, many more months and years ahead😘

[Paulamac77 in reply to Blearyeyed]

Thank you so much.

[Attic]

Hi everyone, thank you so much for your support. I will start reduction next week. I am so nervous as I tried to get off a few weeks ago and it didn't work. I had to increase for a few days, but have been on 1mg for a while, so time to try again I think.

Wish me luck, Jenny x

[PMRpro Ambassador in reply to Attic]

Just try and try again with a month or so between. One day it will work. It is such a low dose there is no point trying to force it - that way lies disaster!