I’d like to plug a question into the collective experience bank about tendons. So, started on 60mg in March 2017 for GCA and now on 1.5mg as of 2 weeks ago. Previously at 54 I was very fit and active. Around the 20’s my muscles vanished and I was affected from top to bottom with a high susceptibility to injury. At about 10mg this started to reverse and my strength and injury resistance has increased, but my muscle bulk is still nothing like it was. After the first couple of months when I was too weak I made sure I walked 2-3 miles a day with the dogs with no ill effects but my upper body was useless.
My problem now is progressive tendonitis for the last 4-5 months especially in my Achilles which are thickened and tender. Getting out of bed can be a trial but it loosens quickly after my first hobble to the loo. The next bad bits are in my forearms at the elbow end and at the base of my skull if my posture is bad (keyboard use!). Other ligaments can be tight but all my muscles are fine. On my recent cruise holiday I walked on totally flat surfaces and carried no more than my book and it improved immeasurably. I even managed to run/walk on a treadmill daily for half and hour plus walk about 5-8 miles a day on pavements; I thought I was cured. I was ecstatic. Back to home and within a day it’s back and I’m gutted. I so need to get proper exercise and am fed up with having my wings clipped for over 2 years.
I do have previous with my tendons when I was crippled for 18 months after regular use of Quinolone antibiotics in 2004 which resolved spontaneously. Then it was my Achilles and forearms. I also have gait problems due to my feet with a bunion starting when I was 16, but with good footwear I have so far avoided my mother’s feet. Two podiatrists haven’t been much help (didn’t inspire much confidence at the time) and physios have never helped but I am willing to believe they were the wrong people.
My working theory is that the Pred effect on my musculoskeletal system has probably done for my silently still damaged ligaments from yesteryear. I am at a loss as to what avenue to go down because I’m terrified of the wrong person crippling me for life. I will go to my GP but suspect all I’ll get is advice to take NSAIDs, rest and physio who’ll just give me an exercise sheet for what I already do now. Any thoughts?