Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,291 members • 38,015 posts

All posts for August 2019

Face and neck perspiration

Does anyone else suffer with severe perspiration on their head, face and neck whilst taking prednisolene. I’m only of 5mg but any exertion or sitting in warm...

Does anyone else suffer with severe perspiration on their head, face and neck wh...

Pinkpepper

•5 years ago

48 Replies

Alondric acid

My doc, who I have complete faith in , wants me to go on alondric acid following my recent bone scan. There have been lots of negative comments about this...

My doc, who I have complete faith in , wants me to go on alondric acid following...

Rosina1871

•5 years ago

38 Replies

Tocilizumab(Actemra) withdrawn

I am due to inject tomorrow and only discovered my Actemra had been withdrawn due to funding 5 days ago after I had been told they had no prescription for me....

I am due to inject tomorrow and only discovered my Actemra had been withdrawn du...

christine2715

•5 years ago

26 Replies

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Fasting/feasting

Read a report in todays Times(UK) about some research that suggests fasting on alternate days may have a beneficial effect on auto-immune diseases. Anybody...

Read a report in todays Times(UK) about some research that suggests fasting on a...

paulus65

•5 years ago

11 Replies

Survived the weekend

I'm welcoming Wednesday.. its almost the end of the week! you know that feeling when you have had a fun filled weekend, missing it and all that lovely...

I'm welcoming Wednesday.. its almost the end of the week! you know that feeling ...

Anne-NRAS

•5 years ago

10 Replies

NewYork Times article

If possible please read the comments that come with this article. Lots of interesting ideas, including some suggestions I have not come across before.

If possible please read the comments that come with this article. Lots of inter...

Notaddi

•5 years ago

5 Replies

After 3 Weeks at 40mg

Morning all. Any advice please on higher dose initial tapering. Diagnosed on 27 July with the last 3 weeks on 40mg pain free. I take 20mg am and 20mg pm and...

Morning all. Any advice please on higher dose initial tapering. Diagnosed on 27...

Fredddie

•5 years ago

14 Replies

Tapering from 2.5mg pred.

I have been taking steroids since 2013 and after a few hic-ups/flare ups I eventually got down to 2.5mg daily and was feeling OK. In April this year however...

I have been taking steroids since 2013 and after a few hic-ups/flare ups I event...

GpaJ

•5 years ago

13 Replies

Facial Hair

I understand facial hair is one adverse reaction to Prednisone...I seem to have more now, so assume it is a result of Prednisone. I have tapered from 20 mg....

I understand facial hair is one adverse reaction to Prednisone...I seem to have ...

Gary1310

•5 years ago

18 Replies

Now my brain is working I realise my mistake.

It's Cortisol and/or Adrenaline which caused my issues. I knew it didn't sit right but couldn't put my finger on it. Took 7.5mg today....will await the...

It's Cortisol and/or Adrenaline which caused my issues. I knew it didn't sit ri...

IdasMum

•5 years ago

6 Replies

GCA , tapering of pred at 12.0 mg and darkening of facial skin ?

I have GCA, am tapering pred from 60 mg down currently to 10 mg. I have noticed a perceptible darkening of my face , not so much the rest of the body . Has...

I have GCA, am tapering pred from 60 mg down currently to 10 mg. I have noticed ...

Iwillwin123

•5 years ago

11 Replies

Cured of PMR?

I am 78 now and I was diagnosed with PMR 4 years ago. Started with dose of 15mg prednisolone and gradually through the months the dose was lowered and then...

I am 78 now and I was diagnosed with PMR 4 years ago. Started with dose of 15mg ...

suracon

•5 years ago

9 Replies

how to begin a slow reduction from 20 mg?

Following my recent post about the synacthen test I had done, I got lots of good advice and I concluded that the best idea is to go on a slow reduction from...

Following my recent post about the synacthen test I had done, I got lots of good...

Tiredcat

•5 years ago

26 Replies

Advice please

I won’t go back over my history but I have been up and down on pred and tried lots of steroid sparing drugs, all to no avail. Anyway I have been struggling for...

I won’t go back over my history but I have been up and down on pred and tried lo...

Griggser

•5 years ago

36 Replies

Feeling Supported

I have been having a torrid time over the last few weeks. It's like the Pred is no longer working (diagnosed in May 2017). I stagger around like a half dead,...

I have been having a torrid time over the last few weeks. It's like the Pred is...

Louisa1840

•5 years ago

33 Replies

Amitriptyline added to assist with prednisone tapering : GCA patient diagnosed feb 2018

Hey everyone! I've been to see the specialist who advised I try taking 10mg of amitriptyline for pain associated with moderate steroid withdrawal. I'd have...

Hey everyone! I've been to see the specialist who advised I try taking 10mg of a...

Blurry62

•5 years ago

25 Replies

I don’t believe it

In the Telegraph today there is an article that people are having their appointments cancelled up to 10 times. Apparently this is often done with a short lead...

In the Telegraph today there is an article that people are having their appointm...

piglette

•5 years ago

61 Replies

I have PMR

I was diagnosed in April 2019. Have been on Prednisone and it helped immensely. I am tapering slowly under care of rheumatologist. Thankful for Prednisone...

I was diagnosed in April 2019. Have been on Prednisone and it helped immensely....

Hidden

•5 years ago

6 Replies

Anxiety again

This is day 4on 20mg pred ,feel disappointed that I don't feel much better. But must be a little as I haven't needed a heat patch on shoulders ,but was...

This is day 4on 20mg pred ,feel disappointed that I don't feel much better. But...

Lancashirelass07

•5 years ago

20 Replies

Dr. Das Gupta's lecture in Bristol

I was very interested to see the post today, giving details of Dr. Das Gupta's lecture in Bristol. I don't know how I managed it, but I've lost that post...

I was very interested to see the post today, giving details of Dr. Das Gupta's l...

greenheath

•5 years ago

2 Replies

There is ( unbelievable , but true) some life with PMR

Re my previous post with DH asking ( during a horrible flare up) if I could see my way clear to cutting the grass.. He is on holiday this week. He is the proud...

Re my previous post with DH asking ( during a horrible flare up) if I could see ...

Breconblue

•5 years ago

8 Replies

Not sure what's happening to me

I wrote recently about my emergency hospital treatment due to VERY high blood pressure. Since then, my BP averages 140/76 - which is still more than...

I wrote recently about my emergency hospital treatment due to VERY high blood pr...

Janann25

•5 years ago

13 Replies

Looking for reassurance

Diagnosed with PMR in April this year, symptoms were well controlled on 10mgs of preds. Unfortunately, following a month of increasingly worrying symptoms I’ve...

Diagnosed with PMR in April this year, symptoms were well controlled on 10mgs of...

Ann-1

•5 years ago

8 Replies

NY Times article on PMR.

There was a big article in the science times recently. I thought people here might be interested in reading what the NY Times science writer had to say about...

There was a big article in the science times recently. I thought people here mi...

Hindags

•5 years ago

44 Replies

Can't cope

I've been on 7.5mg for nearly 4 weeks now and I'm just not coping, depression is awful no appetite, feeling sick, dizzy pain in my lower back, no pmr...

I've been on 7.5mg for nearly 4 weeks now and I'm just not coping, depression is...

Hidden

•5 years ago

17 Replies

Vitamin D

Just curious what dose of Vitamin D has been prescribed for most. I was reading where if you do not have enough you can have aches and pains. My Reumy has me...

Just curious what dose of Vitamin D has been prescribed for most. I was reading ...

Robinsnest72

•5 years ago

40 Replies

Tapering

My tapering from 15mg to 6mg had been pretty uneventful. However on 12th August I went to 5and a half all still ok and then down to 5mg on 16th August....

My tapering from 15mg to 6mg had been pretty uneventful. However on 12th August ...

Healthworrier

•5 years ago

10 Replies

Anxiety, panic, agoraphobia

I am now down to 4mg with only a few aches and pains. My problem is that I wake up with such anxiety for the last week or so. My geriatric psychiatrist tells...

I am now down to 4mg with only a few aches and pains. My problem is that I wake ...

Lanakay

•5 years ago

19 Replies

LIVING WITH pmr

I developed PMR in 1998 - went onto Prednisone after diagnosis kept strictly to the doses for years but I still have PMR badly at the age of 81 - the pain and...

I developed PMR in 1998 - went onto Prednisone after diagnosis kept strictly to ...

bookfair

•5 years ago

8 Replies

PMR: Trying DSNS

Hi Everyone, I was on here a couple of weeks ago and told quite firmly to increase my pred and think about the DSNS tapering method. I had rising CPR level at...

Hi Everyone, I was on here a couple of weeks ago and told quite firmly to increa...

LemonZest11

•5 years ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2019

Face and neck perspiration

Alondric acid

Tocilizumab(Actemra) withdrawn

Fasting/feasting

Survived the weekend

NewYork Times article

After 3 Weeks at 40mg

Tapering from 2.5mg pred.

Facial Hair

Now my brain is working I realise my mistake.

GCA , tapering of pred at 12.0 mg and darkening of facial skin ?

Cured of PMR?

how to begin a slow reduction from 20 mg?

Advice please

Feeling Supported

Amitriptyline added to assist with prednisone tapering : GCA patient diagnosed feb 2018

I don’t believe it

I have PMR

Anxiety again

Dr. Das Gupta's lecture in Bristol

There is ( unbelievable , but true) some life with PMR

Not sure what's happening to me

Looking for reassurance

NY Times article on PMR.

Can't cope

Vitamin D

Tapering

Anxiety, panic, agoraphobia

LIVING WITH pmr

PMR: Trying DSNS

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