Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,301 members • 38,032 posts

All posts for July 2019

Ad cal

Was talking to a friend who also takes ad cal and she said she chews them whereas I swallow them whole. Can you do it either way or should I be chewing them?...

Was talking to a friend who also takes ad cal and she said she chews them wherea...

1964-karina

•5 years ago

6 Replies

Coughs and colds and PMR

I’ve had two bouts of colds (with a lingering cough) in as many months, is it general practice to increase dosage of pred during the illness? I haven’t been...

I’ve had two bouts of colds (with a lingering cough) in as many months, is it ge...

braininjurythepits

•5 years ago

15 Replies

Turning over in bed

I wonder if anyone finds turning over in bed difficult. I find it a huge effort and feel like a beached whale as I struggle to do lots of wiggles! Is it PMR or...

I wonder if anyone finds turning over in bed difficult. I find it a huge effort ...

Trulyscrumpious

•5 years ago

97 Replies

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Horrible gca headache!! (and update)

I haven't written in a while. My journey is so convoluted that I have to keep a note pad to be able to keep up myselt. Since I last wrote, I went to Mayo...

I haven't written in a while. My journey is so convoluted that I have to keep a...

pattypoo01

•5 years ago

38 Replies

What is considered a safe amount

What is considered a safe amount of prednisolone long term , I’m down to twelve but finding it hard to go any lower

What is considered a safe amount of prednisolone long term , I’m down to twelve ...

Captinron

•5 years ago

30 Replies

Mrs Nails

This is the very best solution for you Mrs Nails.

YuliK

•5 years ago

19 Replies

Low Dose Naltrexone

Wondering if anyone has had experiences using LDN for PMR ? I was recommended to check into this with my GP and Rheumatologist by a Geneticist friend who has...

Wondering if anyone has had experiences using LDN for PMR ? I was recommended t...

PaulinaCanada

•5 years ago

18 Replies

Arthritis pain not relieved by Pred.

I have had to give in and put on a BuTrans patch as well as cocodamol, for pain relief. Most of my pain from PMR has gone but the Pred is not hitting the OA as...

I have had to give in and put on a BuTrans patch as well as cocodamol, for pain ...

Freshmimt

•5 years ago

45 Replies

Advice needed please .re pred taper.

After 18 mths reducing from 20 to 7 pred, major flare hit me. Doctor has advised me to go up to 30. 3 weeks on feeling heaps better but he now wants me to...

After 18 mths reducing from 20 to 7 pred, major flare hit me. Doctor has advised...

Quinacridone

•5 years ago

6 Replies

I made it!

How did I manage to get to this age?😎

Constance13

•5 years ago

58 Replies

No magic yet

So disappointed. First night on Pred and no magic solution for me yet. I still woke up in pain at 2:30am and then again at 5:00 am . Also the new ache in my...

So disappointed. First night on Pred and no magic solution for me yet. I still w...

Smokygirl

•5 years ago

44 Replies

Hi all

Not posted for a long time. But could I kindly ask for your opionion on CBD capsules at 1000mgs. I have taken them for a couple of days in the morning. They...

Not posted for a long time. But could I kindly ask for your opionion on CBD cap...

morrison

•5 years ago

11 Replies

PBM therapy??

I’ve just read a promotional article about pbm treatment, some sort of light therapy, which included the magic words ‘reducing inflammation ‘. It tells me it...

I’ve just read a promotional article about pbm treatment, some sort of light the...

DDKRM

•5 years ago

12 Replies

Began today.

Hello again my lovely gurus! Well I started my Pred this morning for the very first time ,15mg as proscribed because I had such a painful night and couldn’t...

Hello again my lovely gurus! Well I started my Pred this morning for the very f...

Smokygirl

•5 years ago

33 Replies

PMR; holidays should be on prescription...

Thank you to all to replied to my question about long haul flights two weeks ago. Pre PMR symptoms, I had booked a holiday to Borneo (7 months ago)...I had...

Thank you to all to replied to my question about long haul flights two weeks ago...

Daisyfield

•5 years ago

28 Replies

Evil stress syndrome

Can anybody tell me how does stress physically increase the blood test results for CRP and ESR when it is the steroid medication that is supposed to help...

Can anybody tell me how does stress physically increase the blood test results f...

Hidden

•5 years ago

7 Replies

The 'FLU' - who needs it !!??

Hi All Not a new subject I know - I see Yoga Bonnie had it a few months ago and had to cancel a trip. I do realise the UK is currently in the midst of a...

Hi All Not a new subject I know - I see Yoga Bonnie had it a few months ago and ...

Rimmy

•5 years ago

30 Replies

Adrenal Glands

I have been on 7mg of prednisone for 3 weeks now . Would my adrenal glands be working?

I have been on 7mg of prednisone for 3 weeks now . Would my adrenal glands be wo...

Robinsnest72

•5 years ago

18 Replies

Pred? Which is it?

I am on Prednisolone, but others are on Prednison. Are they similar and which do people mean when they say Pred.

I am on Prednisolone, but others are on Prednison. Are they similar and which do...

Dawnint

•5 years ago

7 Replies

Good news and a problem!

Good news is I have lost 1 stone 7 lbs 😀😀 thank you Slimming World! Also I am reducing prednisone 6mg one day 6.5 mg the other day. So far so good. 60mg...

Good news is I have lost 1 stone 7 lbs 😀😀 thank you Slimming World! Also I am...

SuziCutie

•5 years ago

39 Replies

No e-mails

I haven't had any e-mails for a few days, is there anything wrong?

Atracta

•5 years ago

8 Replies

What do you think??

I have been in the habit of getting gastro resistant pred for 4 and half years. Because I have had stomach ulcers, gastritis and oesophagitis leading to...

I have been in the habit of getting gastro resistant pred for 4 and half years. ...

polymy

•5 years ago

15 Replies

Will my hair grow back

Would love to hear from anyone who has experienced hair loss due to PMR as to whether it eventually grows back. I am having more and more difficulty covering...

Would love to hear from anyone who has experienced hair loss due to PMR as to wh...

Meggsy

•5 years ago

17 Replies

Latest rheumy visit

I had my 6 monthly appt with my rheumy on Monday. I am happy with me, she is happy with me. I have no PMR symptoms of note. She doesn't want to see me now...

I had my 6 monthly appt with my rheumy on Monday. I am happy with me, she is hap...

IdasMum

•5 years ago

13 Replies

One cheek more swollen

Think this has been mentioned before but now I’m on 7mg right cheek looks less swollen and more normal but my left cheek has remained puffy and slightly red....

Think this has been mentioned before but now I’m on 7mg right cheek looks less s...

Rosina1871

•5 years ago

13 Replies

When to start tapering?

Dear all, I have been taking 15mg of prednisolone since 3rd May and doing very well on it. All pain gone but still muscle weakness and occasional stiffness....

Dear all, I have been taking 15mg of prednisolone since 3rd May and doing very w...

selkie2019

•5 years ago

11 Replies

Further advice please

Hi, I posted about a month ago regarding Vits K2 and D3 as I have decided not to have any more Alendronoc Acid or infusions. My scan shows some osteoporosis...

Hi, I posted about a month ago regarding Vits K2 and D3 as I have decided not to...

Urtica

•5 years ago

41 Replies

Flare up continued

You are all amazing. Back on 40 pred orally. Second cyclo chemo done. Feel rough and in pain. Puffed up and losing hair. Am having Lots of tests full mri to...

You are all amazing. Back on 40 pred orally. Second cyclo chemo done. Feel rough...

Bfp1

•5 years ago

21 Replies

3 months of major stress and a flare-need advice on tapering again

Like many here I’ve very difficult experiences with rheumies. I was diagnosed in Jan 18 with PMR/GCA and put on 40 mg of pred. Some of you may...

Like many here I’ve very difficult experiences with rheumies. I was ...

Mstiles

•5 years ago

10 Replies

Driving on 40mgs Pred?

I wrote a few days ago about my rash. While waiting for the results of the biopsy, another two weeks, the rash has gotten worse and is covering more of my...

I wrote a few days ago about my rash. While waiting for the results of the biop...

Hindags

•5 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2019

Ad cal

Coughs and colds and PMR

Turning over in bed

Horrible gca headache!! (and update)

What is considered a safe amount

Mrs Nails

Low Dose Naltrexone

Arthritis pain not relieved by Pred.

Advice needed please .re pred taper.

I made it!

No magic yet

Hi all

PBM therapy??

Began today.

PMR; holidays should be on prescription...

Evil stress syndrome

The 'FLU' - who needs it !!??

Adrenal Glands

Pred? Which is it?

Good news and a problem!

No e-mails

What do you think??

Will my hair grow back

Latest rheumy visit

One cheek more swollen

When to start tapering?

Further advice please

Flare up continued

3 months of major stress and a flare-need advice on tapering again

Driving on 40mgs Pred?

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