I wonder if anyone finds turning over in bed difficult. I find it a huge effort and feel like a beached whale as I struggle to do lots of wiggles! Is it PMR or could it be my 82 year old body, which also has some arthritis? But it is not so much painful as very difficult and exhausting. Comments appreciated.
Turning over in bed: I wonder if anyone finds... - PMRGCAuk
Like the Goddess says it is all three , and even in young age if our conditions give us pain and stiffness it can be the same.
I have started moving my legs and knees up into a foetal position first , then putting my hand behind me on the bed for support in the direction I am moving in , as I turn the arm that was below me I spread out in the same way as the leading arm to help the support as I finish the turn , then slowly straighten my legs again .
You get used to it and it does help take the strain off you back.
I use the handles on my mattress to move myself. If you haven't got them and it's a divan I ran a sheet under the bed and tied it round a book that wouldn't slide under the bed and made sure the other end was near enough to grab. I have packed pillows against one side to keep me nearer the side of the bed but you do have to be sure you won't roll off the bed in your sleep!
I struggled many years ago when first diagnosed and a lady on another forum said 'slither sheets. I used the search engine and bought 'slippery sheets' sometimes called 'easy sheets'. Slightly more expensive as they have satin as an big square insert. The bottom of the sheet is not satin, neither are the fitted bits..........That enables you to not slide out of the bed as your feet are not on satin. I still have them they are now about 10 years old and still going strong.
Oh definitely! In the early days of PMR, I could hardly get out of bed without assistance - and if the assistance was pulling on my arms, that hurt too. I am 20 years your junior. This symptom improved greatly as the Prednisalone got to work. If it persists, I would mention it to your doctor though.
Join the 'beached whale' club. It is indeed tedious that so many 'spoons' are used up in the simple task of getting out of bed, or repositioning during sleep. This effort is then doubled, as like you, I have an issue with my shoulder since I had a bone replaced at Christmas. So I really do empathise!
I am 60 so it is not age. I have some Arthritis in my knees but this is minor. I conclude therefore it is indeed resultant of PMR itself. It is a bit of a bugger though when you wake up desperate for the loo isn't it?
I find rolling onto side in fetal position and using good arm to push myself up (as mentioned by Blearyeyed) does indeed reduce back strain. Alternatively the slide under the mattress bed guard rail is effective as well and reasonably cheap to buy. I don't have one but my Mum did as she had severe Arthritis.
Before my PMR diagnosis I was at one point using the pillow to use as a lever to turn myself over. Getting out of bed was another mission taking about 20 minutes, so I eventually decided to sleep sitting up, as it was easier. We also purchased a new mattress & pillows thinking these could be the problem! Post diagnosis and the wonderful pred, turning over & getting out of bed was no longer a problem.
Thankfully my problem turning over is not as acute as yours was and I have learnt to cope, though it is still a big effort. I never had trouble before PMR, and was put on Pred within days of the sudden onset . I was lucky to have a quick diagnosis. And the pred does not help- though it might be worse of course without. It thanks for responding.
Just looking at the answers which revolve around the beginning of PMR and then your one about getting sleeved clothes off. What pred dose are you currently on. Had you been diagnosed when you joined? Just wondering if you have gone past your correct dose.🌻
I had terrible trouble with getting clothes on and off. Panic attack inducing! I am at 6mg and take 5mg coated at night and this has helped my morning stiffness. I then take 1mg mid morning. You are in that fatigue zone. Hope things pick up. 🌻
Rush!!! - pray tell me what that is!
As I said earlier, probably a combination of things, but it might be worth trying an extra 1mg for a week to see if that helps. PMR can be stiffness without too much pain!
just as a matter of interest do you use gel for arthritis - if so, do you apply it last thing at night? I find arthritic joints seize up during the night, so it's worth experimenting sometimes.
I agree with Poopadoop - if you have this much should stiffness you are probably not on enough pred and the inflammation is lurking. It may be worth speaking to your doctor about shoulder steroid injections or trying a bit higher oral pred - anything under 7mg is not really a problem and below 5mg absolutely not. But an extra 1mg once the problem is dealt with may make a big difference.
I believe it’s due to some naughty inflammatory things called cytokines which are most active between 4 and 8 am. I go to bed perfectly able to turn over in bed until around 4am when I cannot move without intense pain and I feel as though I have been kicked in the back by a horse!! I’ve had PMR for three years now and this pattern has been there throughout and regardless of dosage of pred.
To ease moving people in bed in Social Care we use Slide Sheets they make moving a lot easier but not sure about sleeping on them though.
To move in Bed I tend to get up, stretch a bit and then lie down in a new position.
I have, also, found taking the Pred later in the day has given me less of a problem at night.
Yep. Turning over, pulling the covers over my shoulders, all difficult and painful. Then, once out of bed, trying to reach behind to hook my bra became torture.!
Recently, during a flare, I was at the doctors, and needed to ask the xray tec to unhook my bra so I could Put on the gown. She came back and hooked it for me , once test completed.
Just a few of the challenges of being 72 and PMR.
Kind regards, Jerri
PMR diagnosed 2013, age 67
I tried the fasten at the front twist thing.....how are you supposed to get your arms under and through the straps then? I could barely put a t shirt on at the time. 🤣🤣🤣
Some of my sports bras which I prefer now in general do it up with zips or clips at the front , I also have those softer pull on one's .
Z bra has a sorts version with forward clip and zip and they are also minimizers.
Triumph has a good selection of one's that reduce the pain and have wider straps some are forward fasteners ( and actually pretty!) and I think Contessa and M and S usually have some in their collections but you might need to check on line.
Sorry , what does non post surgery mean exactly?
They are breathable fabric with softer seaming and without wiring using a crossover back and extra wide elastic with the clip and zip front . They are very similar in style and shape as post op bras or those used for breast feeding .
I'm going to look it up.
The Z bra ( or medical Z bras ) as well as being a good supportive bra is the one that is recommended by alot of the sites I just looked on for post and pre surgery support .
I never knew , I was just recommended one for sport post pregnancy years ago when my cup size went up by three sizes and the weight was uncomfortable and made my straps dig in . I've been using them for sport or when I had more back and shoulder pain ever since , they are very comfortable.
I believe they go up to at least a GG , probably higher on official sites.
I buy mine via eBay , Amazon or sports shops online when they are on sale as it's alot cheaper than the main sites.
They are very easy to get on are good at night when the softer bralets aren't supportive enough when you are having alot of pain.
The "simple" questions relate to more of us....
I am pretty sure we would all happily listen to and digest the replies of Men and what makes things like turning in bed hard for them , and what answers Men have to help the Male sufferers solve it.
If a conversation about jockstraps and what types were best was practical in Men's advice for helping their symptoms with PMR related pain it would definitely be worth writing and discussing and I know the Women would not object to it or would just pass the replies that don't relate to them.
And the women on the forum would actually be happy to see that the Men were giving each other much needed or useful advice .
Yes, definitely PMR. When I was first diagnosed, my doctor said it’s a big indicator for PMR. He said, along with the usual symptoms, as soon as someone mentions not being able to turn over in bed, he immediately suspects PMR. I found it extremely painful before starting on Pred. It’s still not easy with stiffness etc but not painful now.
I sure understand what you are saying. When PMR hit me at 3:00 in the morning-- I really thought I was dying! I could not even pull on the sheets. Not easy when you are 81 and live alone. That is my biggest fear now- another attack! As of right now I am down to 2.5 and doing ok. Itch all over- ankles sweel and hips hurt some. Hope you are doing better.
My onset was very sudden like you- went to bed ok and woke hardly able to walk. I am 82 and live alone too but have an alarm round my neck to call for help if I need it in emergency. Can you sign up to this system to allay your fears? I am itchy too - it it’s due to very dry skin and I have to use Diprobase. Have you tried that- you can get it on prescription. Dry skin is common in old age. I should see your doctor about swollen ankles- may not be caused by PMR. We tend to blame it for everything. Best wishes stonecreek.