thank you.....

[composition]

Just want to say as a new member that your discussions have been soothing to me--just knowing I am not going crazy, that these ups and downs are common. Do I like it? no, but I can better accept the fact that now my buttocks hurt. It's just one side, which I thought was never PMR, but who knows. I do worry a bit as I follow an oncologist for the MGUS and dreaded M spike which can ultimately be myeloma. Some days I think Oh, dear, this is NOT PMR but I've progressed to MM. Then I look at the posts here and feel a bit more confident. Mid June is another checkup for the MGUS, and then I can relax another 3 months. I really thought the prednisone was bang, situation addressed, all over! And now I realize it is a "Journey," so thank you.

[Yellowbluebell]

Hi, we are pleased that you are finding the site useful. Its reassuring when others are on the same journey. Please keep us up to date on how you are getting on.

[DorsetLady PMRGCAuk volunteer]

Yes it is a “journey” - but hopefully made easier with fellow travelers to help you!

Take care,

[SheffieldJane]

The buttock pain could be piriformis syndrome or sciatica. Unfortunately, we are not immune to other things. I agree with you about the site, it’s held my hand for 3+ years.

[composition]

well, THREE YEARS isn't exactly what I've been planning on! But I will deal with whatever is sent my way and do it with a smile. I've never been a "downer" and don't intend to start now. thanks! By the way, does that mean you've had GOOD times in the 2 years, I hope?

[PMRpro Ambassador in reply to composition]

I won't tell you how long I've been on the journey but I can assure you that the bad bits weren't the PMR itself (though it joined in for some of the time) but the couple of other only-sort-of related nasties that jumped out to trip me up! Otherwise it's been a pretty good life all things considered. Not quite what I'd have chosen of my own free will but could have been worse.

[Constance13 in reply to composition]

"three years isn't exactly what I've been planning on"!!!!! How many of us have thought that? We all think "not me - I'm a healthy, positive person".

Cross fingers and listen to your body, and the marvellous people on this site.

[Louisepenygraig]

I agree with you. I've learnt so much from this site and it's kept me going through the difficult times. There are so many helpful and understanding people on here.