I am seeing my rheumatologist in 5 days, for the first time since my diagnosis for PMR and possibly GCA. I know prednisone will most likely become a part of my life again, but I had terrible side effects 20 years ago. So, if the doctor were to try anything else like Alendronic Acid (scarey!), are there any other drugs I should be warned about?
Even though I mentioned bad side effects of prednisone 20 years ago, I am hopeful that because we, as patients, are more educated 20 years later, bad side effects can be avoided.
Written by
pollymarierose
To view profiles and participate in discussions please or .
Weight gain (to be expected), hot flashes all of the time, horrible acne, moon face, insomnia and manic mood swings. I had wondered if the side effects of the treatment (for chrons) was worth it. But never once did they start to decrease my dose until the doctors found out it was making the symptoms of my chron's worse.
If you have PMR you will be on much lower dose with consequently fewer side effects. If you do have GCA you will need doses similar to those you were on for Crohns but will reduce fairly quickly (10% ish reduction each time), so you should not feel nearly as bad as you did before.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
PMR and Chronic Spontaneous Urticaria with Angioedema
Please share any experience of meds to try and prevent osteoporosis especially Zoledronic acid and Romosozumab
GCA..Actemra.
New member -Dexa query
Four months into GCA and now suspected trigeminal neuralgia - updated to dental
