with tears in my eyes: hi my friends, Kate Gilbert... - PMRGCAuk

PMRGCAuk

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with tears in my eyes

Zofitmogelijk profile image
20 Replies

hi my friends, Kate Gilbert asked to just press a button to leave, I will, but only after having expressed my gratitude to all, forming a friendly forum and helping each other, or even making fun. Now I don't feel comfortable anymore, who is the next to leave, and as we all know, stress is bad for pmr and gca. I wish you all to have a smooth journey through the disease. And please do not go to sleep,(sorry Mark a joke) but for the members having the energy, do build up a new generation with new elan. warm greetings

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Zofitmogelijk profile image
Zofitmogelijk
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20 Replies
SheffieldJane profile image
SheffieldJane

Sending my love with you. Never say never! 💕

scats profile image
scats

I am so sorry, you will be missed. xx

Grants148 profile image
Grants148

Sending caring thoughts ,why an earth have you been asked to leave.So sorry,l wish you a good outcome and recovery from PMR/GCA,you will be missed,much love to you and big hugs xx.

Polywotsit profile image
PolywotsitPMRGCAuk team member in reply toGrants148

Nobody, repeat nobody, has been asked to leave. Nobody has EVER been asked to leave.

in reply toPolywotsit

Interesting!!

Polywotsit profile image
PolywotsitPMRGCAuk team member in reply to

One person, about 8 years ago, was banned by HU because he was a troll who came on and said that PMR didn't exist, it was just old women moaning. Other than that, nobody has left the forum against their will.

in reply toPolywotsit

OK! Got it! HU is the driver here! Hopefully! But do you see the perspective here!! Girls World It Seems To Be! There you Go! We all know the good Un's!

Oh Zofitmogelijk

So sorry to hear this, will PM you x

GOOD_GRIEF profile image
GOOD_GRIEF

Our community is being thinned out one by one.

So sorry to see you go.

Happy trails.

Polywotsit profile image
PolywotsitPMRGCAuk team member in reply toGOOD_GRIEF

We are growing by 2 per cent every month and nobody has been asked to leave.

in reply toPolywotsit

Frightening growth that Kate! I thought we give up on the carbs!!!!!

CT-5012 profile image
CT-5012

Hope this might possibly be a misunderstanding in translation?

Bronni profile image
Bronni

Maybe Kate was explaining how to do it, but I seriously doubt she was asking you to leave? As CT says, maybe a misunderstanding?

Zofitmogelijk profile image
Zofitmogelijk in reply toBronni

Hi bonnie and others, sorry I was not perfectly clear, but be sure nothing is lost in translation. Nobody was asked to leave, but it was a referral to Kate, asking us not to post but just pressing the unfollow button.

fmkkm profile image
fmkkm in reply toZofitmogelijk

Hi Zofit, I took Kate’s point as an invitation to come and go but posting that you are leaving sometimes starts a side conversation that veers away from the task at hand, helping people with PMR/GCA. I left all social media last year because I felt like I needed a break. It can get to a point where it becomes your new reality. I truly do not believe there are “phantom haters” on this site, just people doing their best to help others lost in this illness. Wishing you all good things on your journey 💗fm.

Purplecrow profile image
Purplecrow

Z. I am sorry to see you leave and I hope you find another forum that is perhaps a "better fit" for you at this time.

The PMRGCA community needs voices and input from contributors across the spectrum, and as in all things, occasionally it comes time for one of us to move on.

There is no judgement implied in in pointing out the guidelines of the forum, only the operational needs of an ongoing and evolving network.

I wish you well, and please return if you will.

Kind regards, Jerri🙏🏽

PMR diagnosed 2013, currently 3 mg. Pred.

Hollyseden profile image
Hollyseden

😥

Grants148 profile image
Grants148

Sorry Kate,l did wonder why Zofitmogelijk was leaving,l hope she will come back ,obviously a misunderstanding .

AndrewT profile image
AndrewT

Please DON'T just 'Leave'! At least NOT until you have, at least explained, why. I don't know you and have just 'found' your Post. Kate Gilbert, an Administrator, has stated HERE that you have NOT been asked to leave- so, if anyone else HAS done so....Tell her.

I will be sorry, to see you go, WE ALL WILL. Please reconsider, this decision.

AndrewT

Rugger profile image
Rugger

Please don't leave us. As others have said over the past days and weeks, things are calming down and will continue to do so. If we all leave, the 'new generation' will have no role models and you are one!

Love to you.

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