Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,643 members • 38,793 posts

All posts for March 2019

chiropractor

Today has been a bit emotional. Visit to chiropractor established I have lots of arthritis but worst area is in right shoulder (hence extra pain). The root of...

Today has been a bit emotional. Visit to chiropractor established I have lots of...

Pongo13

•5 years ago

12 Replies

I thought I was out of the woods at 7 mg prednisone

Needing the knowledge of those here. 1 month and 2 days ago I tapered to 7 mg from 8. About the third week I had little Rumblings of possible Flair? The last...

Needing the knowledge of those here. 1 month and 2 days ago I tapered to 7 mg fr...

JanetGarrettN

•5 years ago

25 Replies

(Jokey!) I'M A PMR/GCA SUFFERER. "GET ME OUT OF HERE"!!

Could be a "Winner"! TV slot to raise Profile into Further Research & Understanding! What can possibly go wrong!! Tricky where the location should be though!...

Could be a "Winner"! TV slot to raise Profile into Further Research & Understan...

Hidden

•5 years ago

1 Reply

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Hyperbaric oxygen treatment

Hi has anyone had any experience with Hyperbaric Oxygen treatment for pmr.just wondering.

Hi has anyone had any experience with Hyperbaric Oxygen treatment for pmr.just w...

Valski

•5 years ago

4 Replies

Third flare while on vacation

Upped Pred feb. 19 from tapering from 10 to 9...was up to 12 by feb. 27 which worked until March 13, upped again because of pain to 13 and now after...

Upped Pred feb. 19 from tapering from 10 to 9...was up to 12 by feb. 27 which wo...

izzyart

•5 years ago

11 Replies

GCA False alarm! How quickly can I reduce pred?

Diagnosed PMR April 2018. Two weeks ago I had a GCA scare – bad headaches, jaw pain and visual disturbance. I went to the eye clinic at the hospital and was...

Diagnosed PMR April 2018. Two weeks ago I had a GCA scare – bad headaches, jaw ...

Omanain

•5 years ago

20 Replies

Unwanted Emails

Health Unlocked has suddenly started appearing in my Email account so I get masses of unwanted emails everyday. Does anyone know how to stop this happening?

Health Unlocked has suddenly started appearing in my Email account so I get mass...

podo

•5 years ago

2 Replies

Warning.

Yesterday afternoon whilst I was putting the washing in the drier...I felt like I had water in my slipper. Looking down I nearly fainted. I had blood pouring...

Yesterday afternoon whilst I was putting the washing in the drier...I felt like ...

YuliK

•5 years ago

45 Replies

Phone PIN codes and ICE numbers

This isn’t meant to be advice, just hopefully a bit of helpful information to allow people to make their own decisions. Like all of us, I’m not getting any...

This isn’t meant to be advice, just hopefully a bit of helpful information to al...

Mai45

•5 years ago

23 Replies

Chicory

Does anyone have any experience of taking chicory? I've been told to give up caffeine because of SVT, and, as apparently even decaff coffee can contain up to...

Does anyone have any experience of taking chicory? I've been told to give up c...

maria40

•5 years ago

42 Replies

Omega 3

I am having quite a struggle with morning pain. Have been experimenting with split dose times of pred. I take omega 3 with evening primrose and flaxseed oils....

I am having quite a struggle with morning pain. Have been experimenting with spl...

Robinsnest72

•5 years ago

2 Replies

PREDS FOR LIFE

It will be 6 years in April since I was first diagnosed with PMR & was put on 15 mg of pred by my rheumatologist, which had the effect of clearing my symptoms...

It will be 6 years in April since I was first diagnosed with PMR & was put on 15...

JOHNONE28

•5 years ago

7 Replies

And yet another reason to cut sugar... especially when on pred: bone density.

https://www.womenshealthnetwork.com/community/osteoblast/post/why-your-bones-want-you-to-kick-the-sugar-habit.aspx? This appeared after my last post - or I'd...

https://www.womenshealthnetwork.com/community/osteoblast/post/why-your-bones-wan...

PMRpro

Ambassador•5 years ago

28 Replies

Pain and methotrexate.

How long does it usually take for methotrexate to bring pain down? I’m just struggling all the time without the Actemra, that I was on for over a year. I...

How long does it usually take for methotrexate to bring pain down? I’m just str...

Aleish

•5 years ago

41 Replies

Another reason to tweak our diet

https://www.theguardian.com/food/2019/mar/18/can-you-eat-yourself-happier-nutritional-psychiatry-mental-health There has been a lot of discussion about mood in...

https://www.theguardian.com/food/2019/mar/18/can-you-eat-yourself-happier-nutrit...

PMRpro

Ambassador•5 years ago

89 Replies

help please. Is acute Tendonitis in both Achilles a result of Pred (25mg) and Methotrexate (20mg)? or is it onset PMR?

Hello everyone, I am seeking some advice from my fellow sufferers. I have had GCA since Aug and tapering down on Pred which has been difficult. I am still...

Hello everyone, I am seeking some advice from my fellow sufferers. I have had G...

Fieldofdreams

•5 years ago

15 Replies

WRIST PAIN

I've had PMR for over three years now and I'm down to 3 mg prednisolone a day after a great many flare-ups. Although I'm not too bad at this level and am...

I've had PMR for over three years now and I'm down to 3 mg prednisolone a day af...

RolyB

•5 years ago

5 Replies

Worried I may have temporal artritis

Hi, I’m new here. I’ve been having headaches for about 6 months now and the doctor keeps telling me it’s anxiety but I really don’t think it is. I have pain on...

Hi, I’m new here. I’ve been having headaches for about 6 months now and the doct...

Emj31

•5 years ago

16 Replies

Apologies for my post re Endo App.

I have been warned about "scaremongering" and I am very sorry if my last post has upset or worried anyone, that was never my intention.

I have been warned about "scaremongering" and I am very sorry if my last post ha...

Marlenec

•5 years ago

13 Replies

Strange sensation on my face...

This is going to sound a bit weird I think. Although in our world lots of weird things happen... I can't think that this is steroid related but here goes......

This is going to sound a bit weird I think. Although in our world lots of weird ...

Sheilamac

•5 years ago

23 Replies

Feeling “dithery”?

Hello everyone! I haven’t posted here for about a year, in fact since you really kindly helped me last time! I have had PMR for almost 2.5 years now. I have...

Hello everyone! I haven’t posted here for about a year, in fact since you really...

NWFiona

•5 years ago

18 Replies

Timing

I have split my dose of pred and am wondering what time people take their evening dose? I am presently on 12mg, 9mg am and reducing by 1mg monthly. I do not...

I have split my dose of pred and am wondering what time people take their evenin...

Robinsnest72

•5 years ago

7 Replies

Hand pain

I was away for a week and took a book to read. I have an e book that I used for taking to work. I cannot believe the pain that turning the pages and holding...

I was away for a week and took a book to read. I have an e book that I used for...

powerwalk

•5 years ago

61 Replies

Reducing after 5 weeks at a higher dose

Hi, after a massive flare up of pain in hips, I went up from 5.5mg to 10, then 12mg. I've been on 10 or 12 for 5 weeks and feel on top of the flare up now. I...

Hi, after a massive flare up of pain in hips, I went up from 5.5mg to 10, then 1...

Lyndab62

•5 years ago

8 Replies

Is 4mg prednisolone enugh to keep PMR/GCA inflammation under control?

I have just reduced to 4mg prednisolone and think it might be a good idea to stay on this dose rather than risk problems. I am aged 85.

I have just reduced to 4mg prednisolone and think it might be a good idea to sta...

marigolds

•5 years ago

20 Replies

Please.....re profiles

I know some people like to maintain anonymity on the forum, but would it be possible for everyone to fill in at least some details on their profiles? Such as...

I know some people like to maintain anonymity on the forum, but would it be poss...

Soraya_PMR

•5 years ago

42 Replies

Can GCA lead to PMR and what are the symptoms?

Diagnosed GCA April 2018, down from 60mg to 17.5mg Pred. Need some advice please. For the last 3 months or so I have been struggling with a bad back ache and...

Diagnosed GCA April 2018, down from 60mg to 17.5mg Pred. Need some advice please...

JanboC

•5 years ago

35 Replies

GCA

My consultant at Royal Free told me they have done some research into the type of person with this and it seems to be light skinned people who sunbathe a lot...

My consultant at Royal Free told me they have done some research into the type o...

castingcollectives

•5 years ago

14 Replies

My 9 years old daughter has SLE

My daughter 9 years has lupus. SLe . Just now we come to know about it. Really hard time for us. Anyone please help about this

My daughter 9 years has lupus. SLe . Just now we come to know about it. Really ...

Taniavi

•5 years ago

6 Replies

“Heal” documentary on Netflix

Has anyone watched this? The body - mind connection and emotional factors in chronic disease. Interviews with patients and practitioners....

Has anyone watched this? The body - mind connection and emotional factors in ch...

Mstiles

•5 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2019

chiropractor

I thought I was out of the woods at 7 mg prednisone

(Jokey!) I'M A PMR/GCA SUFFERER. "GET ME OUT OF HERE"!!

Hyperbaric oxygen treatment

Third flare while on vacation

GCA False alarm! How quickly can I reduce pred?

Unwanted Emails

Warning.

Phone PIN codes and ICE numbers

Chicory

Omega 3

PREDS FOR LIFE

And yet another reason to cut sugar... especially when on pred: bone density.

Pain and methotrexate.

Another reason to tweak our diet

help please. Is acute Tendonitis in both Achilles a result of Pred (25mg) and Methotrexate (20mg)? or is it onset PMR?

WRIST PAIN

Worried I may have temporal artritis

Apologies for my post re Endo App.

Strange sensation on my face...

Feeling “dithery”?

Timing

Hand pain

Reducing after 5 weeks at a higher dose

Is 4mg prednisolone enugh to keep PMR/GCA inflammation under control?

Please.....re profiles

Can GCA lead to PMR and what are the symptoms?

GCA

My 9 years old daughter has SLE

“Heal” documentary on Netflix

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