Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,643 members • 38,794 posts

All posts for March 2019

Warning about trolling

Please do NOT respond to posts from our new "friend" Judy. Just report them if you want to do anything. I have reported the selection of comments but...

Please do NOT respond to posts from our new "friend" Judy. Just report them if y...

PMRpro

Ambassador•5 years ago

43 Replies

GCA back with a vengeance

I will start off that my Kitty Nellie was sick for a month and we finally put her to sleep. Yep I was and am still missing her. But, a week after putting her...

I will start off that my Kitty Nellie was sick for a month and we finally put he...

Hidden

•5 years ago

29 Replies

How do I report someone for a post which does not seem ‘right’ for PMRGCA forum ?

I have just received a notification of a post from ‘Judy’ who is a 33 year old American male

I have just received a notification of a post from ‘Judy’ who is a 33 year old A...

Mary63

•5 years ago

12 Replies

Want to take advantage of all our features? Just log in!

Brilliant app. With Endo!

Just home from first app. With Endocrinologist. He listened carefully to what I had to say, asking relevant questions. He explained how everything worked re...

Just home from first app. With Endocrinologist. He listened carefully to what I ...

Marlenec

•5 years ago

108 Replies

Pred, Ibuprofen, Tylenol (Paracetemol)

A lot of people have said in the forum that ibuprofen "doesn't do anything" for PMR, but I use it to supplement my pred. I've been up to 15mg for a month (my...

A lot of people have said in the forum that ibuprofen "doesn't do anything" for ...

schmuppy

•5 years ago

18 Replies

Antidepressants helping PMR

Having had polymyalgia for just over 2 1/2 years it is taking its toll on my body with the addition of other problems idiopathic scoliosis when I was a child...

Having had polymyalgia for just over 2 1/2 years it is taking its toll on my bod...

Suffolklady

•5 years ago

102 Replies

Adrenals?

This was intriguing. After being on pred for a little while I noticed tingly sensitive places on my feet the right more so than the left. Years ago I did a...

This was intriguing. After being on pred for a little while I noticed tingly sen...

Healthworrier

•5 years ago

13 Replies

PMR and GCA - IS THIS A 'MAZE' !! ??

Hello Everyone Just reflecting on the 'maze' quality of this (or these) illness(es) - we go down one avenue and must turn around and try the next until we...

Hello Everyone Just reflecting on the 'maze' quality of this (or these) illness(...

Rimmy

•5 years ago

20 Replies

MTX versus Prednisolone

Having been on steroids since May 2015 I will be going onto MTX 2 May 2019. Can anyone who has PMR&GCA let me know how they have got on and whether their...

Having been on steroids since May 2015 I will be going onto MTX 2 May 2019. Can ...

Lizardsyl

•5 years ago

18 Replies

Methotrexate and Ibuprofen

I need to understand what my rheumy is suggesting. I'm tapering down to 4 mg pred. (having had PMR for two and a half years), but he wants to put me on...

I need to understand what my rheumy is suggesting. I'm tapering down to 4 mg pre...

Joan-E-D

•5 years ago

28 Replies

Probiotics

just wondering if folks out there taking a probiotic, I have had IBS for years, when I was on a higher dose of pred, in beginning 2 1/2 yrs ago, my IBS...

just wondering if folks out there taking a probiotic, I have had IBS for years, ...

arvine

•5 years ago

17 Replies

Pmr/gca or myosthinia gravis?

I went to my rheumatologist for first time yesterday. He's doing bloodwork again to see what my level of inflammation is 2 months after diagnosis. Why?...

I went to my rheumatologist for first time yesterday. He's doing bloodwork again...

pollymarierose

•5 years ago

36 Replies

To up or not to up ?

Hi all, well I am still on 7mg, still hip an back pain and for the last couple of weeks have been so tired ( and fed up) I am going to visit my daughter in...

Hi all, well I am still on 7mg, still hip an back pain and for the last couple o...

jules1955

•5 years ago

25 Replies

Sadness!

I am a Canadian follower and I love this site, Lots of great info. I read about a meeting in ChristChurch yesterday and was envious I was not there. This...

I am a Canadian follower and I love this site, Lots of great info. I read about...

Robinsnest72

•5 years ago

4 Replies

Tapering Approach

Diagnosed with PMR Nov18.Started on 15mg Pred and began tapering down to 10mg 6wks later. Have been reducing by 1mg every month till hit 7mg(March) and then...

Diagnosed with PMR Nov18.Started on 15mg Pred and began tapering down to 10mg 6w...

Themidget

•5 years ago

12 Replies

Tmj

Dr. has diagnosed me with tmj, have been on 17.05 Pred for 3 mths, this came out of the blue, no previous pain, Odontoceti have any clicking or popping of the...

Dr. has diagnosed me with tmj, have been on 17.05 Pred for 3 mths, this came out...

Fifelassieo

•5 years ago

8 Replies

Ribs

In my previous post, I mentioned that I was having pretty severe intercostal rib pain. The pain is the worst at night, when my pred has mostly worn off. No too...

In my previous post, I mentioned that I was having pretty severe intercostal rib...

Manchild

•5 years ago

33 Replies

A question for the ladies re bra fitting

My shoulders are so swollen that my normal bra straps cut in really badly. Has anyone found one that doesn’t do this please, possibly with extra wide straps??

My shoulders are so swollen that my normal bra straps cut in really badly. Has a...

Wraysbury

•5 years ago

40 Replies

Advice needed

Hi my Gp, Rhumatologost and the optition all day I don’t have GCA and won’t do a biopsy .I have all the symptoms of GCA minus weight loss and vision problems...

Hi my Gp, Rhumatologost and the optition all day I don’t have GCA and won’t do ...

dizzyblond1

•5 years ago

21 Replies

Noisy night breathing with prednisone?

My husband says he’s sleeping better lately because my noisy night breathing has stopped. I’ve been of Pred since Dec 31. Is noisy breathing a side-effect of...

My husband says he’s sleeping better lately because my noisy night breathing has...

OutdoorsyGal

•5 years ago

25 Replies

Hair loss from prednisone?

Late in my 11 months on prednisone, I experienced hair loss that was more pronounced than previous “sheds” that I had attributed to menopause. As I’ve never...

Late in my 11 months on prednisone, I experienced hair loss that was more pronou...

OutdoorsyGal

•5 years ago

19 Replies

UPDATE ON GCA RELAPSE

Last week I sent a post explaining that my GP said I had a return of GCA because my ESR had risen from 21 to 43. She immediately put me on 44 mg of Pred. I...

Last week I sent a post explaining that my GP said I had a return of GCA because...

Heather270240

•5 years ago

5 Replies

Steroid taper after a GCA flare

After feeling very unwell for the past couple of days with headaches which suggested a relapse of GCA, I decided to up my pred dose this morning from 10 mg to...

After feeling very unwell for the past couple of days with headaches which sugge...

pinks33

•5 years ago

29 Replies

Can a PMR relapse resolve without Prednisone?

I was off prednisone for less than 2 months when pains and stiffness began to return, though including other body parts (wrists, elbows) than the initial PMR....

I was off prednisone for less than 2 months when pains and stiffness began to re...

OutdoorsyGal

•5 years ago

13 Replies

Split the dose. And it’s working!!!

Hi everyone. I was having pain between shoulders when I slept and was very stiff getting out of bed. I was done to 2 mil. So I went up to 3 mil in the...

Hi everyone. I was having pain between shoulders when I slept and was very sti...

Mjhollywood1

•5 years ago

19 Replies

Laughter helps.

This made me smile

Healthworrier

•5 years ago

10 Replies

INFLUENZA!

I have it. Had to cancel my trip to Sweden. feel VERY sorry for myself. BUT things could be way way worse. I had the flu shot and am hoping for a lighter case....

I have it. Had to cancel my trip to Sweden. feel VERY sorry for myself. BUT thin...

yogabonnie

•5 years ago

37 Replies

Could this be a flare up

After experiencing neck pain and stiffness I have upped my preds from 10 to 12mg but not really notice any improvement. Wondering if this could be a flare up...

After experiencing neck pain and stiffness I have upped my preds from 10 to 12mg...

Pinkpepper

•5 years ago

20 Replies

Missed the meeting at Ilkley

Hello newly diagnosed via GP. I could not make the meeting at Ilkley due to Hubbie being poorly live a long way away. Interested what Consultant said about the...

Hello newly diagnosed via GP. I could not make the meeting at Ilkley due to Hubb...

sauntergirl76

•5 years ago

1 Reply

Under arm red marks!

So in a week where I was feeling chipper - bloods all normal and cholesterol 6.0, I awake today with two large red marks under my arm pit (sorry to say they...

So in a week where I was feeling chipper - bloods all normal and cholesterol 6.0...

Pongo13

•5 years ago

33 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2019

Warning about trolling

GCA back with a vengeance

How do I report someone for a post which does not seem ‘right’ for PMRGCA forum ?

Brilliant app. With Endo!

Pred, Ibuprofen, Tylenol (Paracetemol)

Antidepressants helping PMR

Adrenals?

PMR and GCA - IS THIS A 'MAZE' !! ??

MTX versus Prednisolone

Methotrexate and Ibuprofen

Probiotics

Pmr/gca or myosthinia gravis?

To up or not to up ?

Sadness!

Tapering Approach

Tmj

Ribs

A question for the ladies re bra fitting

Advice needed

Noisy night breathing with prednisone?

Hair loss from prednisone?

UPDATE ON GCA RELAPSE

Steroid taper after a GCA flare

Can a PMR relapse resolve without Prednisone?

Split the dose. And it’s working!!!

Laughter helps.

INFLUENZA!

Could this be a flare up

Missed the meeting at Ilkley

Under arm red marks!

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