Diagnosed PMR April 2018.
Two weeks ago I had a GCA scare – bad headaches, jaw pain and visual disturbance.
I went to the eye clinic at the hospital and was given 60mg Pred immediately and two days later had a TA biopsy.
The headache resolved, the jaw pain didn’t (still have it so probably a weal muscle) and the visual problem was not typical of GCA – more like a migraine type problem. The biopsy was negative.
The doctor at the eye clinic is fairly certain it is not GCA but will see me as an emergency if I have any troubling symptoms. I am confident he is right.
I took 60mg Pred for 9 days and was told to reduce by 10 a week until I got to 30mg by which time I would have an appointment with a medical eye doctor.
Do you think I could safely decrease faster than this? I was down to 6.5 for my PMR when this happened.
Would dropping 10mg every 5 days be OK do you think? I am not doing too well on such high doses, my whole system is over acidic, I am very agitated and can’t sleep more than a couple of hours a night.
Would really appreciate any advice. Thanks.