Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,642 members • 38,792 posts

All posts for March 2019

TONGUE UPDATE

Posted about thrush on tongue a while ago. GP referred me urgently to Consultant at local hospital and within two days I was given an appt the next day. Saw...

Posted about thrush on tongue a while ago. GP referred me urgently to Consultan...

joat

•5 years ago

25 Replies

Myeloma in families??

Hi everyone.. Need aome advice pkease... My sister had MM just over ten years ago and is doing amazing now.. I have been having problems with discs and two...

Hi everyone.. Need aome advice pkease... My sister had MM just over ten years ag...

Hidden

•5 years ago

17 Replies

Sleep!

Is nytol safe to take while on steroids?

GracieSimp

•5 years ago

22 Replies

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Pmr???

Hi, had been experiencing horrendous pain in my shoulders, literally woke up one morning and the pain was there. Doctor eventually got me to have some blood...

Hi, had been experiencing horrendous pain in my shoulders, literally woke up one...

Lola5670

•5 years ago

52 Replies

Diet

Hi Coujd I have dietary and exercise advice to avoid weight gain while on steroids

Hi Coujd I have dietary and exercise advice to avoid weight gain while on ster...

GracieSimp

•5 years ago

12 Replies

Whoopee.... or not

After years of aches and pains along with GP visits I now have a diagnosis of PMG I self diagnosed a few years ago but now have the official nod ! I've been...

After years of aches and pains along with GP visits I now have a diagnosis of PM...

Hidden

•5 years ago

29 Replies

It is so hard not to get discouraged!

I was diagnosed in September of 2017. I am currently on 7mg daily if prednisone. About a month ago my left knee started causing problems. Last Tuesday I had an...

I was diagnosed in September of 2017. I am currently on 7mg daily if prednisone....

Lanakay

•5 years ago

6 Replies

GCA Scare, Pred induced insomnia and ducks!

I spent the early hours of the last couple of weeks making these for my sister's Easter fund raiser. Each duck will contain a cream egg. I reduced from 40mg...

I spent the early hours of the last couple of weeks making these for my sister's...

Omanain

•5 years ago

8 Replies

Pmr help

Hi. I’m new here and I thought I was the only one with PMR. Never heard of this before. I’ve been to two different doctors and can’t believe there’s no other...

Hi. I’m new here and I thought I was the only one with PMR. Never heard of this ...

sandy4348

•5 years ago

20 Replies

Vaccinations

Can vaccinations (the usual, recommended ones in the uk) have a negative effect on PMR symptoms? I have recently had several, prior to a holiday in Morocco,...

Can vaccinations (the usual, recommended ones in the uk) have a negative effect ...

Stegosaurus53

•5 years ago

19 Replies

The ups and the downs

We don’t have any other option but to ‘grin and bear it’. Just coming out of a horrendous few weeks which started with a headache and being put on 40mgs of...

We don’t have any other option but to ‘grin and bear it’. Just coming out of a ...

Gaycreasey

•5 years ago

15 Replies

Don’t need the gym!

My son bought me a Fitbit for my birthday last May. This morning I was awarded this ‘Cloud badge’. A bit daft, but then I got to thinking, 8,000 floors in 10...

My son bought me a Fitbit for my birthday last May. This morning I was awarded t...

Soraya_PMR

•5 years ago

29 Replies

Are you on pregabalin or gabapentin for any reason? This may be relevant to you and a GP appointment may be needed.

This has just been posted on the Lupus forum: https://psnc.org.uk/wp-content/uploads/2019/02/Pregabalin-and-Gabapentin-Briefing-Note-12-Feb-2019.pdf

This has just been posted on the Lupus forum: https://psnc.org.uk/wp-content/upl...

PMRpro

Ambassador•5 years ago

25 Replies

Neuropothy

Morning all! Well it is here (Germany), and a beautiful day it is😎. I know some of you suffer with Neuropathy and just wondered what you do in the middle of...

Morning all! Well it is here (Germany), and a beautiful day it is😎. I know som...

Constance13

•5 years ago

20 Replies

Methetroxate and mixing a dose.

Hi I'm on 12.5 mg of methetroxate and 20mg of pred'. I'm being weaned of Pred', and it's being replaced with methotrexate, I'm on holiday in Oz for my son's...

Hi I'm on 12.5 mg of methetroxate and 20mg of pred'. I'm being weaned of Pred', ...

freyacake

•5 years ago

3 Replies

Large-vessel giant cell arteritis: diagnosis, monitoring and management

Posted as a reference. Discusses the 2 types of GCA: cranial GCA & large-vessel GCA [LV-GCA]. Rheumatology, Volume 57, Issue suppl_2, 1 February 2018, Pages...

Posted as a reference. Discusses the 2 types of GCA: cranial GCA & large-vessel ...

gifford7

•5 years ago

9 Replies

I never heard of this disease until I was diagnosed with it January 2019

Hi! Just found this site and was interesting in learning as much as I can. Not too happy going to sleep and waking up with such pain on 9 prednisone....

Hi! Just found this site and was interesting in learning as much as I can. ...

cmybabyblues

•5 years ago

21 Replies

No DSN for me?

Diagnosed GCA Jan 2018. I am now struggling on 5mg Pred. Rheumatologist is adamant that I must reduce further and ditch the steroids a.s.a.p.I have been...

Diagnosed GCA Jan 2018. I am now struggling on 5mg Pred. Rheumatologist is adam...

Seagu11

•5 years ago

17 Replies

An up date to my post 2 months ago ( what is feeling normal)

Good afternoon lovely people , I am in need of some advice before seeing the private Rheumatologist on Saturday. My first post on here was ( what is feeling...

Good afternoon lovely people , I am in need of some advice before seeing the pr...

mad-country-lover

•5 years ago

14 Replies

Come off Omeprozole?

I've been lurking here for 2 years and love all the info that's been given, especially from PMR/pro. My doctor thinks you give good advice, so thank you :) I'm...

I've been lurking here for 2 years and love all the info that's been given, espe...

GrannyB10

•5 years ago

10 Replies

Cataract Surgery

I have just been reading the article in today's Times about cataract surgery. The heading says "cataract surgery doesn't work, says NHS in cost cutting drive"....

I have just been reading the article in today's Times about cataract surgery. Th...

prunus

•5 years ago

68 Replies

The Underestimated Mental Impact of PMR/GCA!!

Underestimated in my opinion!! Even the best supporting Charity Forum seems to have a problem with this!! It's not all about the physical pain & medical...

Underestimated in my opinion!! Even the best supporting Charity Forum seems to h...

Hidden

•5 years ago

64 Replies

Between shoulder pain only when sleeping ???

Just when I think I doing better in lower half . Now something new !!! When I sleep my upper back between my should are stiff and in pain But only laying...

Just when I think I doing better in lower half . Now something new !!! When I sl...

Mjhollywood1

•5 years ago

2 Replies

Synacthen test

Hi can anyone who is in England pleade tell me if they have or are booked to have a Synacthen test and if so where they are in the country please. I am waiting...

Hi can anyone who is in England pleade tell me if they have or are booked to hav...

rabbit51

•5 years ago

19 Replies

In a quandary!

Hi everyone, it’s a very long time since I last posted. I have managed to get down to 4.5mg Pred for my PMRGCA with a few stresses on the way when I had to...

Hi everyone, it’s a very long time since I last posted. I have managed to get do...

Sandybo

•5 years ago

6 Replies

Hair and prednisone

I was losing my hair when on methotrexate and since it didn’t seem to be helping me, I stopped taking it. I cut my hair super short, 1/2 inch, and as it grew...

I was losing my hair when on methotrexate and since it didn’t seem to be helping...

gtate1914

•5 years ago

20 Replies

Insomnia and weight gain

I’ve been diagnosed with GCA. Started 40mg of pred which stops me sleeping - max 2 hours a night. I’m also shaky and dithery and feel just odd all the time....

I’ve been diagnosed with GCA. Started 40mg of pred which stops me sleeping - max...

GracieSimp

•5 years ago

25 Replies

Severe headache at the base of my skull

Having felt pretty unwell for the last 2 weeks with no energy and sleeping a lot through absolute necessity accompanied by viral feelings throughout my body, I...

Having felt pretty unwell for the last 2 weeks with no energy and sleeping a lot...

SheffieldJane

•5 years ago

87 Replies

Lower Back Pain

Hi, New to this great forum. I was diagnosed last August, started on 15 mg. Prednisone, wasn't doing much, so was referred to rheumatologist. He (and I)...

Hi, New to this great forum. I was diagnosed last August, started on 15 mg. Pr...

valb232

•5 years ago

9 Replies

Polymyalgia rheumatica and cardiovascular disease

Does anyone in this group have any information pertaining to the relationship between PMR and cardiovascular disease? Those of us that have this disease are in...

Does anyone in this group have any information pertaining to the relationship be...

Ozark

•5 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2019

TONGUE UPDATE

Myeloma in families??

Sleep!

Pmr???

Diet

Whoopee.... or not

It is so hard not to get discouraged!

GCA Scare, Pred induced insomnia and ducks!

Pmr help

Vaccinations

The ups and the downs

Don’t need the gym!

Are you on pregabalin or gabapentin for any reason? This may be relevant to you and a GP appointment may be needed.

Neuropothy

Methetroxate and mixing a dose.

Large-vessel giant cell arteritis: diagnosis, monitoring and management

I never heard of this disease until I was diagnosed with it January 2019

No DSN for me?

An up date to my post 2 months ago ( what is feeling normal)

Come off Omeprozole?

Cataract Surgery

The Underestimated Mental Impact of PMR/GCA!!

Between shoulder pain only when sleeping ???

Synacthen test

In a quandary!

Hair and prednisone

Insomnia and weight gain

Severe headache at the base of my skull

Lower Back Pain

Polymyalgia rheumatica and cardiovascular disease

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