Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for December 2018

“The system is broken, and all the financial incentives are lined up to keep it broken.”

Actemra - most disturbing. Being considered for GCA medication. https://www.statnews.com/2017/06/05/actemra-rheumatoid-arthritis-fda/ For all the questions...

Actemra - most disturbing. Being considered for GCA medication. https://www.sta...

Ruadh

•5 years ago

4 Replies

The Lighter Side: Christmas Speech and Greetings from a VIP Guest at Benjamin Mansions.. ;-)

Greetings All First, Disclaimer! This overtly Silly Post is best read ‘internally’ in a Posh Royal Female voice - if you can muster the energy? And, at...

Greetings All First, Disclaimer! This overtly Silly Post is best read ‘intern...

markbenjamin57

•5 years ago

94 Replies

Celebrating

Yesterday Mark had a routine colonoscopy at the polyclinique. All was good. During our 5 hour stay I went down to the ground floor 3 times, walking downstairs...

Yesterday Mark had a routine colonoscopy at the polyclinique. All was good. Dur...

IdasMum

•5 years ago

8 Replies

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ADCAL d3

Hi Everyone, what are your thoughts on ADCAL D3 supplement, my rheumatologist wants me to start on it, he says given my young age (56) and being on steroids, I...

Hi Everyone, what are your thoughts on ADCAL D3 supplement, my rheumatologist wa...

bakingD

•5 years ago

68 Replies

Why do I hurt?

Can someone explain the science? When I got GCA, it was straightforward in that I started at 50 mg prednisolone and the symptoms disappeared. I reduced slowly...

Can someone explain the science? When I got GCA, it was straightforward in that ...

allykat

•5 years ago

28 Replies

Season's Greetings

Well the season is just about upon us, so I'd just like to wish everyone a very Merry Christmas and a Happy, prosperous and pain free New Year. Thank you for...

Well the season is just about upon us, so I'd just like to wish everyone a very ...

Chihuahua1

•5 years ago

7 Replies

Aussie hail?????

Thought you might like to see the video in this link: https://www.stol.it/Artikel/Chronik-im-Ueberblick/Chronik/Tennisballgrosse-Hagelkoerner-in-Sydney Sorry...

Thought you might like to see the video in this link: https://www.stol.it/Artike...

PMRpro

Ambassador•5 years ago

14 Replies

Muscle damage caused by prednisolone

Hello, I have not written for a while since having my cataract operation which sadly has not worked as my sight is worse than pre op. I saw my excellent...

Hello, I have not written for a while since having my cataract operation which s...

jennifer15

•5 years ago

42 Replies

I feel they don't believe me!!!!!!!!

2 1/2 weeks ago in hospital for 2 days while doctors tried to work out if it was CGA. I myself believe it is. They put me on 90mg for those 2 days to cover...

2 1/2 weeks ago in hospital for 2 days while doctors tried to work out if it was...

shazstep

•5 years ago

8 Replies

Update

So after the vascular surgeon canceled my December 13th appointment because he doesn’t treat TA/GCA anymore I was referred to a general surgeon and I am...

So after the vascular surgeon canceled my December 13th appointment because he d...

Boozsa

•5 years ago

9 Replies

achilles tendon pain

tapering and everything seemed to be going okay. I still had trouble walking and a lot of pain in the Achilles. Pain woke me this AM and particularly the right...

tapering and everything seemed to be going okay. I still had trouble walking and...

Celebrant

•5 years ago

17 Replies

Visit to Podiatrist

I just went to the Podiatrist to complain about/find reason for, my 'fuzzy' feet. He blamed it on the PMR and said there was no loss of sensation in the...

I just went to the Podiatrist to complain about/find reason for, my 'fuzzy' feet...

stellafmdm

•5 years ago

11 Replies

Pred and CBD oil

Is anyone trying canbabis oil and is it dangerous to take with prednisolone? I have bought some capsules from Holland and Barrett but am a bit nervous about...

Is anyone trying canbabis oil and is it dangerous to take with prednisolone? I ...

Suet3942

•5 years ago

25 Replies

side affects of tapering

hello everyone, if you remember my story, 2 yrs ago past oct, diagnosed, pmr, started 40 mg, couple rough yrs, family, son diagnosed multiple myeloma, other...

hello everyone, if you remember my story, 2 yrs ago past oct, diagnosed, pmr, st...

arvine

•5 years ago

21 Replies

Shingles vaccine

My GP is recommending I get the shingles vaccine. I thought I had read that PMR (which I have) can be a side effect of the vaccine. I am asking what you...

My GP is recommending I get the shingles vaccine. I thought I had read that PMR...

barbthy

•5 years ago

8 Replies

Pred to the rescue part2

Hi all my forum friends I posted part 1 a few days ago. The story of a visit to London, with a cough, an energetic weekend and then a fall from my mobility...

Hi all my forum friends I posted part 1 a few days ago. The story of a visit to ...

Valnvaughan

•5 years ago

11 Replies

Leg reflexes =0 & weakness in. Legs

Found at appointment yesterday- no reflexes- in either leg. So was sent to ER for series of MRIs 3 of back, spine and neck with and without contrast. Nothing...

Found at appointment yesterday- no reflexes- in either leg. So was sent to ER fo...

Mks9558

•5 years ago

17 Replies

What a Night (not the Dr John version)

What a night History:- I was in the process of tapering from 12.5 to 11 DSNS and had taken one dose of 11 and was due my second dose of 11mg on Tuesday last....

What a night History:- I was in the process of tapering from 12.5 to 11 DSNS an...

Theziggy

•5 years ago

12 Replies

Pretty Scarey

Am in hospital. It is 4am. Had a fall walking dogs on Tuesday. A&E admission. Bad break of 'ball' left shoulder. I am 'golden patient' for today, which is...

Am in hospital. It is 4am. Had a fall walking dogs on Tuesday. A&E admission. Ba...

Marilyn1959

•5 years ago

61 Replies

Prednisone Believer

I am 76, Last year about this time I was scheduled for Shoulder Replacement Surgery. One week before the surgery I was hit by not being able to get out of bed...

I am 76, Last year about this time I was scheduled for Shoulder Replacement Sur...

Spooky76

•5 years ago

10 Replies

Black seed oil

Do any of you use Black seed oil , Tumeric , & or cumin ?

Stifffingers

•5 years ago

6 Replies

Crashing Out Mid-afternoon

This was at least 11 or 12 years before PMR diagnosis or pred dosage = so I'm not overly concerned when the man nods off mid-afternoon nowadays. Photo taken...

This was at least 11 or 12 years before PMR diagnosis or pred dosage = so I'm no...

Nuff1

•5 years ago

5 Replies

Quite on the Money

Hi, I have been down with PMR since 2016. It seems your new assessment is right on the problems other than the pain of PMR. Thank you, Nancy M Greene USA

Hi, I have been down with PMR since 2016. It seems your new assessment is right ...

NanciJean

•5 years ago

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Taper down to 5mg. Not feeling so good.

Does anyone have advice for identifying if the symptoms I’m feeling are Prednisone withdrawal aches/pain or if it’s the PMR beginning to return? At 5mg for...

Does anyone have advice for identifying if the symptoms I’m feeling are Predniso...

lizg0017

•5 years ago

25 Replies

How's everybody?

Hi folks, I haven't been on for quite some time. How are you all doing? For me, last time I was here I was just starting my dive for five. Well it didn't go to...

Hi folks, I haven't been on for quite some time. How are you all doing? For me, ...

JulianJ

•5 years ago

31 Replies

Taper down to 5mg. Not feeling so good.

Does anyone have advice for identifying if the symptoms I’m feeling are Prednisone withdrawal aches/pain or if it’s the PMR beginning to return? At 5mg for...

Does anyone have advice for identifying if the symptoms I’m feeling are Predniso...

lizg0017

•5 years ago

8 Replies

Be Happy

Sorry, but feeling too ill to write a post . No Christmas cards either - even so, Happy Christmas to you all. Mega.

Sorry, but feeling too ill to write a post . No Christmas cards either - even so...

mega

•5 years ago

21 Replies

RUDY Study

RUDY study with the University of Oxford have for a while been studying rare diseases such as GCA and even PMR. They need quite a few people within each rare...

RUDY study with the University of Oxford have for a while been studying rare dis...

piglette

•5 years ago

9 Replies

Been a while!

Hi everyone Been a while since I posted. Been doing real good.You May recall I mentioned I have a freind who is a Physio. Kinda got annoyed with me moaning &...

Hi everyone Been a while since I posted. Been doing real good.You May recall I m...

Stifffingers

•5 years ago

22 Replies

5 years and 9 months

Not to put too fine a point on it but I am almost a year past the two year recovery point my Dr originally told me. Of course being with this group I knew...

Not to put too fine a point on it but I am almost a year past the two year recov...

bunnymom

•5 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2018

“The system is broken, and all the financial incentives are lined up to keep it broken.”

The Lighter Side: Christmas Speech and Greetings from a VIP Guest at Benjamin Mansions.. ;-)

Celebrating

ADCAL d3

Why do I hurt?

Season's Greetings

Aussie hail?????

Muscle damage caused by prednisolone

I feel they don't believe me!!!!!!!!

Update

achilles tendon pain

Visit to Podiatrist

Pred and CBD oil

side affects of tapering

Shingles vaccine

Pred to the rescue part2

Leg reflexes =0 & weakness in. Legs

What a Night (not the Dr John version)

Pretty Scarey

Prednisone Believer

Black seed oil

Crashing Out Mid-afternoon

Quite on the Money

Taper down to 5mg. Not feeling so good.

How's everybody?

Taper down to 5mg. Not feeling so good.

Be Happy

RUDY Study

Been a while!

5 years and 9 months

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