Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,470 members • 38,421 posts

All posts for December 2018

Community is a blessing to us PMR sufferers

This community has been a total blessing to me. Now I am reading what really happens to us PMR individuals. The doctors do not make clear to us just exactly...

This community has been a total blessing to me. Now I am reading what really ha...

Schurch

•5 years ago

3 Replies

As if this isn’t enough!!

I have had PMR for 6 1/2 years, I have Poly arthritis and now have been told tendons under my kneecaps are damaged. The pain is terrible! I have chronic...

I have had PMR for 6 1/2 years, I have Poly arthritis and now have been told ten...

Constance13

•5 years ago

25 Replies

New back pain

Morning everyone, I'm after a bit of advice if possible. I have been following my rheumy's advice when I saw him in August, and tapering down and I'm now on...

Morning everyone, I'm after a bit of advice if possible. I have been following m...

jacdo

•5 years ago

6 Replies

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Pains in my heart - result!

Though the cardiology dept decided my problem was “routine” when phoneing for an appointment she gave me a cancellation - bless her I wish I could thank her...

Though the cardiology dept decided my problem was “routine” when phoneing for an...

isabella2015

•5 years ago

5 Replies

My scales are broken.

Well it's been 10 weeks since I joined the pmr club and most of the symptoms have gone. I weighed myself at the start and have periodically jumped on them...

Well it's been 10 weeks since I joined the pmr club and most of the symptoms hav...

Yellowbluebell

•5 years ago

130 Replies

Have to keep resetting password

Such a pain to have to keep remembering passwords. Handwriting now too shaky to read. Hate all this rigmarole. Meanwhile just keep getting worse. Very...

Such a pain to have to keep remembering passwords. Handwriting now too shaky to...

Nones

•5 years ago

4 Replies

Black veil in low light

Hi Everyone Just wondering if anyone else has experienced having a black or grey veil over their eye (just one) when the lights are switched off at night. I...

Hi Everyone Just wondering if anyone else has experienced having a black or grey...

Jane185

•5 years ago

18 Replies

Homeopathic alternative remedies

Recently went to a Natural Wellness Center and was interviewed by the therapist who said "these autoimmune diseases are brought on by stress, What are you...

Recently went to a Natural Wellness Center and was interviewed by the therapist ...

PMR48

•5 years ago

14 Replies

Stiff hands

Hi everyone haven’t posted in a long time, had pmr for 31/2 years taking steroids, managed to get down to 5mg 1year ago while taking 10 mg Leflunomide, as...

Hi everyone haven’t posted in a long time, had pmr for 31/2 years taking steroid...

valrene

•5 years ago

20 Replies

Exercise

Hi Everyone Does anyone know why you need to take it easy exercise wise with this condition?am currently on 8mg pred having yo-yoed up and down but now have a...

Hi Everyone Does anyone know why you need to take it easy exercise wise with thi...

bakingD

•5 years ago

25 Replies

Interesting BBC Article today: Could over- active immune system trigger Chronic Fatigue / ME -like Symptoms?

Greetings All Just a quick heads-up on a piece I spotted on the BBC News / Health website today (18 December) entitled: 'Over active Immune System may trigger...

Greetings All Just a quick heads-up on a piece I spotted on the BBC News / Healt...

markbenjamin57

•5 years ago

61 Replies

I thought you'd all like this

It made me laugh. (Especially as Kathy is my name )

IdasMum

•5 years ago

2 Replies

Shingles vaccination

Morning everybody Just had letter from GP asking if I would like the above. Presumably this is because shingles is apparently running amok round here at the...

Morning everybody Just had letter from GP asking if I would like the above. Pr...

borednow

•5 years ago

16 Replies

Another string to my bow ....LOL

Bit of a shock last week, went for my yearly check with our practice nurse. My GP has been monitoring me annually since my blood sugar has become raised since...

Bit of a shock last week, went for my yearly check with our practice nurse. My G...

York54

•5 years ago

10 Replies

To the Administrators and Volunteers and

all those workings so hard for us behind the scenes of this amazing forum A VERY MERRY CHRISTMAS and a productive, happy 2019. 💐💐🎄🍀💥🎂🍾🍸

all those workings so hard for us behind the scenes of this amazing forum A VERY...

Constance13

•5 years ago

10 Replies

Blessed by All of You!

Christmas is a time for joy and counting your blessings. All of you have helped me on this journey. Your caring, support, and wisdom has helped me coexist with...

Christmas is a time for joy and counting your blessings. All of you have helped ...

Dream21

•5 years ago

3 Replies

SOMETHING TRULY WONDERFUL FROM THE WORLD OF 'MODERN' MEDICINE !!

I often whinge about the inadequacies and frequent 'bunglings' in our medical treatment(s) but I am also aware that in so many ways we should be very thankful...

I often whinge about the inadequacies and frequent 'bunglings' in our medical tr...

Rimmy

•5 years ago

15 Replies

Happy Christmas

Just to wish you all a very Happy Christmas and a wonderful Healthy and Happy 2019. Thank you all on this site for all your help this year. Much Love and best...

Just to wish you all a very Happy Christmas and a wonderful Healthy and Happy 20...

morrison

•5 years ago

18 Replies

Anyone Had An ICD Fitted While On Pred?

Possible need for an ICD if MRI confirms "heart injection fraction" problem! Has anyone had this procedure while on pred? Is there any implications for...

Possible need for an ICD if MRI confirms "heart injection fraction" problem! Ha...

Hidden

•5 years ago

21 Replies

Extra Pred to the rescue

A nasty chesty cough has gripped me for 6 days. But I was not going to miss a long booked trip up to London. Drove up Friday afternoon with a visit to a...

A nasty chesty cough has gripped me for 6 days. But I was not going to miss a lo...

Valnvaughan

•5 years ago

15 Replies

Seasons Greetings.

Hello everyone, It's been a year now since officially being declared in remission from PMR. Emotionally and mentally it's been a great place to be. No more...

Hello everyone, It's been a year now since officially being declared in remissio...

tina-shelley

•5 years ago

15 Replies

Tapering, Diet and Sleep - update

So just to report back if anyone is interested, I did the ‘big mopping up’ experiment and it went well. I was down to 6 mg and flagging a bit so on Thursday...

So just to report back if anyone is interested, I did the ‘big mopping up’ exper...

xdbx

•5 years ago

18 Replies

Has Actemra been helpful for PMR?

I haven't posted for a while. I'm a 74 year old working psychologist in California. I was diagnosed with PMR one year ago. I have had a flare of PMR when I got...

I haven't posted for a while. I'm a 74 year old working psychologist in Californ...

lew49

•5 years ago

34 Replies

Burns and Scalds on Prednisolone

Has anyone else noticed that minor burns and scalds seem worse with pred? I splashed myself cracking an egg into the frying pan and almost a week later I still...

Has anyone else noticed that minor burns and scalds seem worse with pred? I spla...

Dontwannabesick

•5 years ago

23 Replies

IN THE MEADOW WE CAN BUILD A SNOWMAN...

Happy Winter!

GOOD_GRIEF

•5 years ago

8 Replies

Too much Prednisolone?

I have another question please. I have given in ,as we all have too eventually,and have stopped rushing to come off of the Prednisolone before the PMR has...

I have another question please. I have given in ,as we all have too eventually,a...

Dewdrop456

•5 years ago

34 Replies

Just a Seasonal Greeting

Merry Christmas people

Nuff1

•5 years ago

9 Replies

My Christmas “card” to you all.

Have a wonderful Christmas with your family/families. If you’re alone - we are here to “keep you company”. I wish you a healthy/ier 2019. Constance...

Have a wonderful Christmas with your family/families. If you’re alone - we are ...

Constance13

•5 years ago

11 Replies

Please read this- it might save your life!

Following on from my post a month ago, I wanted to update people because my case could have profound ( even life-saving) effect on fellow GCA sufferers. I had...

Following on from my post a month ago, I wanted to update people because my case...

Suzita76

•5 years ago

17 Replies

Our own little Joseph

Me and OH went to see our grandson in his last nativity. The school doesn't do them after year two because the older years think it's childish. He has risen...

Me and OH went to see our grandson in his last nativity. The school doesn't do ...

Yellowbluebell

•5 years ago

114 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2018

Community is a blessing to us PMR sufferers

As if this isn’t enough!!

New back pain

Pains in my heart - result!

My scales are broken.

Have to keep resetting password

Black veil in low light

Homeopathic alternative remedies

Stiff hands

Exercise

Interesting BBC Article today: Could over- active immune system trigger Chronic Fatigue / ME -like Symptoms?

I thought you'd all like this

Shingles vaccination

Another string to my bow ....LOL

To the Administrators and Volunteers and

Blessed by All of You!

SOMETHING TRULY WONDERFUL FROM THE WORLD OF 'MODERN' MEDICINE !!

Happy Christmas

Anyone Had An ICD Fitted While On Pred?

Extra Pred to the rescue

Seasons Greetings.

Tapering, Diet and Sleep - update

Has Actemra been helpful for PMR?

Burns and Scalds on Prednisolone

IN THE MEADOW WE CAN BUILD A SNOWMAN...

Too much Prednisolone?

Just a Seasonal Greeting

My Christmas “card” to you all.

Please read this- it might save your life!

Our own little Joseph

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