Can I write to jinasc, primarose, marijo and Sho-Sho who have all been kind enough to share their experiences with me? My own experience goes back six years. After nine days in hospital GCA was diagnosed with a CRP of 452. I finally came off predisolone two years later. Remission lasted two years. Then I lost vision five times in four days and had unbearable pain in myhead so taken back to AandE. Since then I had got down to 0.5mg of predisolone. But for the last week have been back on 1mg because I've been having faulty vision again from time to time. Our experiences are all different.