Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for October 2018

Not pain free, start iver on a higher dose???

I started my second round of Pred treatment 5 weeks ago after a new investigation as my reumy thought I was to young for PMR. The thing is that the first time...

I started my second round of Pred treatment 5 weeks ago after a new investigatio...

Pirnilla

•5 years ago

14 Replies

Boosting Mum’s morale

My 86 year old mum has had PMR for the past 6 years and has very limited mobility. One thing I’m struggling with is her hair. Dad currently washes, colours and...

My 86 year old mum has had PMR for the past 6 years and has very limited mobilit...

Daughter_pooh

•5 years ago

10 Replies

OH TO BE SO INSENSITIVE

My husband is out of hospital now ,Diverticultis diagnosed ,Poor man ,His heart has now stopped panicking so we are just waiting for the follow up stuff . My...

My husband is out of hospital now ,Diverticultis diagnosed ,Poor man ,His heart ...

patriciawhite

•5 years ago

14 Replies

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How to put your clocks back

Just in case any of you were not too sure how to put your clocks backwards or forwards, some suggestions.

Just in case any of you were not too sure how to put your clocks backwards or fo...

piglette

•6 years ago

36 Replies

Does Pred cause short temper?

My ever so ever loving husband had the bravery to ask me this morning “you know the Pred you are taking? Does it cause you to have a short temper?!!! I was...

My ever so ever loving husband had the bravery to ask me this morning “you know ...

Yellowbluebell

•6 years ago

90 Replies

Has anyone stopped prednisone cold turkey refusing to return and if so what happened?

I'm wondering what the consequences would be of stopping prednisone cold turkey and living with whatever the consequences are. Anyone know of anyone that did...

I'm wondering what the consequences would be of stopping prednisone cold turkey ...

skipspmr

•6 years ago

19 Replies

PMR/Osteoporosis Update

Hello everyone I have not posted much in the past month since the added Osteoporosis diagnosis but have also been away for a few weeks. The sunshine certainly...

Hello everyone I have not posted much in the past month since the added Osteopor...

Mitziecat

•6 years ago

23 Replies

Prednisolone and arrhythmia

I took an unfortunate "dive" down a staircase whilst trying to "Negotiate" the family golden retriever a couple of months ago. As you can imagine, being on...

I took an unfortunate "dive" down a staircase whilst trying to "Negotiate" the f...

Andymurph

•6 years ago

7 Replies

Update: Cancelled NHS Appointment

So, if you recall, on that infamous day (when I turned up for my much awaited Rheumy appointment and was advised it had been cancelled back in April), I also...

So, if you recall, on that infamous day (when I turned up for my much awaited Rh...

Hidden

•6 years ago

40 Replies

An important warning: when a flare might not be a flare.

After 18 months on Prednisolone, reduced from initial 60mg daily ( the almost lethal dose in my case), I was down to 2 mg daily and my inflammatory factors...

After 18 months on Prednisolone, reduced from initial 60mg daily ( the almost le...

Suzita76

•6 years ago

12 Replies

What a Journey

I'm been on Pred since I was diagnosed in Dec '17. Have never seen a rheumy, can't get one to accept me as a patient. GP has tried several times. Anyway: I...

I'm been on Pred since I was diagnosed in Dec '17. Have never seen a rheumy, ca...

Earl_the_Pearl

•6 years ago

12 Replies

Endoscopy update for Acid Reflux, As promised

Hi All, I promised I would update anybody that may be interested in the outcome of my endoscopy and consultant meeting today. so if your not interested in any...

Hi All, I promised I would update anybody that may be interested in the outcome...

birdwatcher

•6 years ago

22 Replies

Active Immune System

Does anyone know what exactly this means? My rheumy suspects I have an active immune system. Thank you!

Does anyone know what exactly this means? My rheumy suspects I have an active i...

ptm2018

•6 years ago

15 Replies

Has anyone with PMR read Sarno's book, "Healing Back Pain," and found any benefit therefrom?

It appears that polymyalgia and fibromyalgia are closely related and sometimes misdiagnosed and that many people with fibromyalgia have benefited from Sarno's...

It appears that polymyalgia and fibromyalgia are closely related and sometimes m...

skipspmr

•6 years ago

5 Replies

How a dose of the PMR/GCA community gets me through the day.

So , picture the scene over here at what my friends lovingly call , "The Asylum", if you will . I am attempting to help my daughter create some party...

So , picture the scene over here at what my friends lovingly call , "The Asylu...

Blearyeyed

•6 years ago

34 Replies

Newby

Hi there, I am new to this site and was diagnosed with PMR nearly 3 years ago after my husband died. Thought it was stress! Am down from 15mgs a day to 4,...

Hi there, I am new to this site and was diagnosed with PMR nearly 3 years ago af...

jenerino

•6 years ago

22 Replies

Newby!

Hi there, I am new to the group. Have been on pred now for almost 3 years, having developed PMR a few weeks after my husband died and thought it was just...

Hi there, I am new to the group. Have been on pred now for almost 3 years, havin...

jenerino

•6 years ago

3 Replies

Happy in Sweden. But taper info needed!

I made it. Flight was easy and here we are safe and sound. My costochondritis appears to be LEAVING me. So now my question is how to taper back to where i was...

I made it. Flight was easy and here we are safe and sound. My costochondritis ap...

yogabonnie

•6 years ago

12 Replies

Put your clocks back this Sunday UK folk ,

Pred head etc. X I will still forget, I bet.

SheffieldJane

•6 years ago

75 Replies

Limited scleroderma

Has anyone experienced Limited scleroderma along with their PMR or GCA. I understand that this is another autoimmune condition & probably related to calcium...

Has anyone experienced Limited scleroderma along with their PMR or GCA. I under...

podo

•6 years ago

3 Replies

The perils of gardening catalogues

I've just received my first seed catalogue of the season so I'm flicking through planning all the things I'm going to grow next year! That's in spite of the...

I've just received my first seed catalogue of the season so I'm flicking through...

Louisepenygraig

•6 years ago

34 Replies

Moss Better than Cannabis?

“A rare type of moss could provide better pain relief than medicinal cannabis, a study suggests. The liverwort plant, Redula Perrottetii, contains a substance...

“A rare type of moss could provide better pain relief than medicinal cannabis, a...

piglette

•6 years ago

10 Replies

Pred Side Effects

I rather liked this!

piglette

•6 years ago

13 Replies

Catch 22

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/10/25/catch-22/ Warning; This blog post contains some strong language, because I am mad...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/10/25/catc...

Hidden

•6 years ago

105 Replies

Tea and chat, Woodbridge - date changed!

Due to Wyevale Garden Centre closing on Thursday 1st November when it changes to Dobbies Garden Centre, our get together has changed to the following week. So...

Due to Wyevale Garden Centre closing on Thursday 1st November when it changes to...

Soosie56

•6 years ago

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2nd set of bloods

ESR down by 8 points after 3 weeks on Pred. Is this good and a sign that this is pmr or should it have gone down more?

ESR down by 8 points after 3 weeks on Pred. Is this good and a sign that this i...

Yellowbluebell

•6 years ago

23 Replies

Acid Reflux, PPI's After PMR. Advice Please.

Hi Everybody, Firstly I pray for all of you good people to have rapid and good outcomes to whatever conditions you are struggling with. I am in a bit of a...

Hi Everybody, Firstly I pray for all of you good people to have rapid and good o...

birdwatcher

•6 years ago

23 Replies

GCA and shingles

I am taking Tocilizumab for GCA very successfully - and I now have shingles probably because my immune system is suppressed. I feel really miserable and in...

I am taking Tocilizumab for GCA very successfully - and I now have shingles prob...

christine2715

•6 years ago

2 Replies

Parker and M’Lady The Return

Got in at 6pm last night. This stage was the longest and most exhausting of our epic journey. We did the Helicopter trip Monday over Grand Canyon so Las Vegas...

Got in at 6pm last night. This stage was the longest and most exhausting of our ...

Estellemac

•6 years ago

29 Replies

Hair management

Hi My hair was improved two months after finishing pred, however my hair is thinner and what hair grows back is fine different to my normal hair. I style my...

Hi My hair was improved two months after finishing pred, however my hair is thin...

Croquetsally

•6 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2018

Not pain free, start iver on a higher dose???

Boosting Mum’s morale

OH TO BE SO INSENSITIVE

How to put your clocks back

Does Pred cause short temper?

Has anyone stopped prednisone cold turkey refusing to return and if so what happened?

PMR/Osteoporosis Update

Prednisolone and arrhythmia

Update: Cancelled NHS Appointment

An important warning: when a flare might not be a flare.

What a Journey

Endoscopy update for Acid Reflux, As promised

Active Immune System

Has anyone with PMR read Sarno's book, "Healing Back Pain," and found any benefit therefrom?

How a dose of the PMR/GCA community gets me through the day.

Newby

Newby!

Happy in Sweden. But taper info needed!

Put your clocks back this Sunday UK folk ,

Limited scleroderma

The perils of gardening catalogues

Moss Better than Cannabis?

Pred Side Effects

Catch 22

Tea and chat, Woodbridge - date changed!

2nd set of bloods

Acid Reflux, PPI's After PMR. Advice Please.

GCA and shingles

Parker and M’Lady The Return

Hair management

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