Osteoporosis Update: Hi Following my recent... - PMRGCAuk

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Osteoporosis Update

Mitziecat
Mitziecat

Hi

Following my recent diagnosis I saw my GP to discuss my risk factors. After scoring the overall opinion was still that I should take medication due to it showing in my right neck of femur with osteopenia in the left and in the spine. I have maintained that I want to try natural methods so GP has sought the advice from the bone clinic to see if I should do that and have a further scan in a year.

Started on adcal and had a blood test. Calcium was fine but Vit D level low. Have been prescribed a 7 day course of vit D and will restart Adcal after. I have researched dietary options and apparently chai and sesame seeds are good. Also told collegen but not sure how that works. I don’t want to get too weighed down and panic buy everything. Will increase my weight bearing exercise as much as possible. Currently on 1 mg of pred and due to taper in about 10 days to 1/0 for a month. Have picked up a cold so will see how that goes. Off to the Caribbean next week so that should boost the vit D

Again, many thanks for the support and advice given. Positive thoughts and love to you all.

17 Replies
oldestnewest

That’s all very positive and interesting.

I hope that the only weight bearing exercise you do in the Caribbean is a pina collada. I am green with envy. Have a lovely time.x🌴🏖🍹

Thank you Sheffieldjane. Looking forward to it & to having a bit of a rest as I am not yet retired from work.

Good luck with the Pred reduction and have a fabulous holiday. Like SJ I am so envious -weight bearing by walking on sand and soaking up sunshine sound nicer than Alendronic Acid tablets 😉! Enjoy! 🛫🍸🍹🌴 x

Much better than AA. I have been told that walking on sand is good so plan to do a lot of that. Was also advised to buy some fitflops which I did today. They are suppose to aid comfortable walking and help muscle tone. Anyone tried them?

Marymon
Marymon
in reply to Mitziecat

I have Fiflop sandals and Sketchers. Wonderful.

But be aware you may need to get used to them, as they work leg muscles you may not used a lot, so slight stiffness to begin with.

Have a fantastic holiday.😎

The Caribbean...Great way to get vitamin D! Don’t forget K2 in your regimen, it helps calcium absorb into the bone. Cheers

Mitziecat
Mitziecat
in reply to PMR2011

Thanks PMR2011. I don’t think vit k has ever been mentioned by my GP but always read about it. Also told that collagen is required. Will look into it.

PMRpro
PMRproModerator

If you are one of the many whose skin vit D factory is not up to speed all the Caribbean sun in the world won't help much! I spend a lot of time outdoors with no sunscreen - without supplements it falls steadily. If you have a suntan, even light, it is as effective as Factor 12 sunscreen and Factor 8 reduces the amount of vit D made by about 90%.

By age 60 0r so, our skin production is a mere 25% of what it was at age 20 - and we don't expose quite as much skin (unless we are Edith Wales) ;-)

I somehow suspect that a 7 day course of even high dose vit D will not raise your levels far - so I do hope the GP checks it afterwards. Recommended is 60,000 IU per week for 8 to 10 weeks and trying to do it faster isn't as effective.

But have a lovely holiday - is it a cruise?

TeddyC
TeddyC
in reply to PMRpro

I have also been diagnosed with osteopenia. Calcium fine but Vitamin D severely low. I was prescribed high dose Vit D for 3 months, at the height of the good weather and I spend lots of time outdoors. I had to have a kidney function test after 1 month, all was ok. I go on a Maintenance dose at the end of this month. I am fair skinned, the doctor had no idea why I had become severely deficient.

PMRpro
PMRproModerator
in reply to TeddyC

My daughter has very white skin - nothing like either of her parents or sister (she just goes sort of black...) - and her vit D was in single figures. She also has quite bad asthma and it is known low vit D makes that worse too - but the GPs just said "buy some supplements OTC".

Grrrrr!

TeddyC
TeddyC
in reply to PMRpro

Could you possibly see another GP. At the surgery I attend some GPs are helpful, others not. Hope your daughter gets the help she needs.

PMRpro
PMRproModerator
in reply to TeddyC

Same at hers - but there is no guarantee who you see unless you can book weeks ahead and she is a paramedic - even finding time to get to the doctor is difficult.

Mitziecat
Mitziecat
in reply to PMRpro

Hi PMRpro.

Told Vit D was only slightly low and calcium level good. Will resume Adcal after a week and have a blood test scheduled in a month.

Interesting about sun screen as you try and protect your skin in one way but block vit D in another. Read that you should have at least 30 minutes without any sunscreen. I use it to keep my skin moisturised in the sun more than for protection. I have dark skin so adding sun screen probably don’t help but maybe a lesser factor is better.

Not going on a cruise, going to Barbados.

piglette
piglette
in reply to Mitziecat

Did you get the result of your vitamin D reading? I always ask for a printout as I find it helpful to have a history of my results.

Mitziecat
Mitziecat
in reply to piglette

Hi

No I don’t have a copy but will get one next time I speak with my GP.

piglette
piglette
in reply to Mitziecat

I just ask the receptionist and they print it out for me. In fact my surgery have recently introduced an online system so I can now just look it up on my computer! I do get more information on the hard copy though.

PMRpro
PMRproModerator
in reply to Mitziecat

I loved Barbados - OH went there for 10 days to do some research work with a guy at the hospital there. We stayed with them so I got to live the "white Barbadian wife" life for a week or so. Another session of that would be nice - but no chance now. There was something special about picking your own banana! I like the food too.

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