Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2018

Venting

One of many of the frustrating pieces of this condition is the response and unsolicited advice from friends and family : how to exercise, how to eat,...

One of many of the frustrating pieces of this condition is the response and un...

PMRpixie

•6 years ago

80 Replies

Steroids

Hi I have had PMR about three years now and was officially diagnosed two years ago and on 20mg reducing to 7mg with some ups and downs (flares). I am also on...

Hi I have had PMR about three years now and was officially diagnosed two years a...

Pennythedug

•6 years ago

9 Replies

Fingers locking up and jaw pain, new symptoms

Oh joy, some new issues! Never boring, that’s for sure. I’ve been on 40 mg, briefly up to 45, pred since the first week of January this year for...

Oh joy, some new issues! Never boring, that’s for sure. I’ve been on 40...

Mstiles

•6 years ago

22 Replies

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Visit to the Rheumatologist

I went for my typical 3 month visit to the rheumatologist today. Things are going well except when he asked about other health concerns. I told him my current...

I went for my typical 3 month visit to the rheumatologist today. Things are goin...

TooSore

•6 years ago

10 Replies

A little lost in this new world.

PMR is new to me --since Nov 0f 2017. I am at present on 10 mg -the amount the rheumy wants. It has helped but not beat the pain and stiffness into submission....

PMR is new to me --since Nov 0f 2017. I am at present on 10 mg -the amount the r...

Celebrant

•6 years ago

17 Replies

Me again

I also have had a headache everyday since this 7.5 to 7mg taper started. I was just at the rheumatologist last Tuesday and don’t think it’s GCA. It’s a dull...

I also have had a headache everyday since this 7.5 to 7mg taper started. I was j...

Lanakay

•6 years ago

12 Replies

Tapering, trying to get by.

Tuesday my rheumatologist lowered me from 7.5 to 7 mg. Can this cause me to feel really weird. I don’t know if it’s that, I wasn’t ever diabetic but maybe a...

Tuesday my rheumatologist lowered me from 7.5 to 7 mg. Can this cause me to feel...

Lanakay

•6 years ago

12 Replies

Flare?

So wise ones - I need advice please: I have been tapering quite well using Dr. R. Hughes method. Just done a month of 7mg and was to start 7/6 alternating days...

So wise ones - I need advice please: I have been tapering quite well using Dr. R...

Slosh

•6 years ago

59 Replies

Thought for the Day

Franklin D.Roosevelt said: "A smooth sea never made a skilled sailor". May we all find our sea legs soon!

Franklin D.Roosevelt said: "A smooth sea never made a skilled sailor". May we a...

HeronNS

•6 years ago

6 Replies

Distraction therapy?

One of my favourite blogs is Rheumablog - a recent blog was about winter and the rainy season and coping with symptoms when we have our own rainy season and...

One of my favourite blogs is Rheumablog - a recent blog was about winter and the...

PMRpro

Ambassador•6 years ago

22 Replies

Help with this forum (support group?) please?

Hello again, could someone please point me in the right direction re using this forum- I feel I may be here some time! 1. Where do I find any posts I have...

Hello again, could someone please point me in the right direction re using this ...

angiek

•6 years ago

13 Replies

Coated Preds

Hi folks, Can someone tell me what the reasons are for taking coated preds.... is it to do with gastric/acid issues? I've been on preds for 10mths but have...

Hi folks, Can someone tell me what the reasons are for taking coated preds.... i...

funnylee

•6 years ago

4 Replies

Should it stay or should it go

Hi again to all you peeps out there. So pleased I found this site. I am educated every day I go on this site so big thanks to you all. Question if any one can...

Hi again to all you peeps out there. So pleased I found this site. I am educated...

Welshnewbie

•6 years ago

13 Replies

Advice on what to do next

After advice here...i was in pain for two years before finally getting a diagnosis..i knew I had some kind of "myalgia " but my Dr kept saying no.." take...

After advice here...i was in pain for two years before finally getting a diagnos...

Katrinaroper

•6 years ago

10 Replies

Help please!

I’ve been taking omeprazole for around 3 years. I have chronic acid reflux and it’s unbearable and constant if I don’t take any medication. I’ve had some...

I’ve been taking omeprazole for around 3 years. I have chronic acid reflux and i...

Sheayda

•6 years ago

14 Replies

Getting a diagnosis with normal bloods

Are there other folk who have been in this situation.? My symptoms came on suddenly after doing a HIIT session. ( I should say I had not done HIIT before,...

Are there other folk who have been in this situation.? My symptoms came on sudde...

justcallmenurse

•6 years ago

42 Replies

Bloods pmr

What is dd levels please, just been told mine are high, don't understand what this means or what it does to me, so can anyone tell me please

What is dd levels please, just been told mine are high, don't understand what th...

Eastender

•6 years ago

15 Replies

Thinned Skinned, Moon Faced, Bloated and Down in the Dumps

Those that can't do.... rant! https://rantingsofamadwomanblog.com/2018/03/08/thinned-skinned-moon-faced-bloated-and-down-in-the-dumps/ Warning: May contain a...

Those that can't do.... rant! https://rantingsofamadwomanblog.com/2018/03/08/th...

Hidden

•6 years ago

73 Replies

Actemra Update

So far I have had 5 injections weekly. At over $200 it is not cheap, however I am off steroids and able to do things. I am slowly building my muscles back...

So far I have had 5 injections weekly. At over $200 it is not cheap, however I ...

shazstep

•6 years ago

6 Replies

NICE approves Tocilizumab for Giant Cell Arteritis!

PMRGCAuk is delighted to announce that today is a really big day! NICE, the National Institute of Health and Clinical Excellence, has approved the use of...

PMRGCAuk is delighted to announce that today is a really big day! NICE, the Nati...

Polywotsit

PMRGCAuk team member•6 years ago

39 Replies

https://www.paintoolkit.org

A nursing friend recommended this website. I hope its useful to some of my friends on the site

A nursing friend recommended this website. I hope its useful to some of my frien...

Lynda331

•6 years ago

2 Replies

Feet / legs pain numbness

Is there help with feet and leg pain/stiffness ? My Dad was diagnosed with GCA/PMR 2 years ago aged 75.prior to this he was a very fit/energetic man always...

Is there help with feet and leg pain/stiffness ? My Dad was diagnosed with GC...

chaliesmum

•6 years ago

11 Replies

Sore today

Did a couple of hours in the garden yesterday with quite long tests and today sore feet, sore knees and sensitive teeth??? Saw the Rheumatology nurse today and...

Did a couple of hours in the garden yesterday with quite long tests and today so...

Janicep

•6 years ago

10 Replies

pain in glutes

glutes

Celebrant

•6 years ago

4 Replies

Thought you would appreciate this

Lololol

CrazyTrucker

•6 years ago

5 Replies

Corticoid-sparing agents

Therapeutic Advances in Chronic Disease Update on the management of giant cell arteritis Janet Roberts, Alison Clifford First Published March 28, 2017 Review...

Therapeutic Advances in Chronic Disease Update on the management of giant cell a...

LCHRISTOP10

•6 years ago

3 Replies

Fatigue at 7.5 mg prednisone

I have been slowly decreasing since June, started at 15 mg now going between 8 and 7.5 mg. I feel absolutely wiped out - could fall asleep standing up....

I have been slowly decreasing since June, started at 15 mg now going between 8 a...

barbthy

•6 years ago

33 Replies

Just so you can all be jealous...UPDATE...THUNDERSNOW!!!!

I'm working from home today in my jammies on the couch, watching the second Nor'easter of the week develop into a major snow storm about to dump a foot of snow...

I'm working from home today in my jammies on the couch, watching the second Nor'...

GOOD_GRIEF

•6 years ago

33 Replies

Feeling lucky

Having read of so many negative experiences with GPS and Rheumatologists, many of which left me seething at the sheer arrogance of those in whose care we find...

Having read of so many negative experiences with GPS and Rheumatologists, many o...

GerriMc

•6 years ago

25 Replies

A ball and a wall for your aches and pains.

In my yoga class I pass out lacrosse balls for this but you can use a tennis ball. It is GREAT for dealing with tapering prednisone pain, or any aches and...

In my yoga class I pass out lacrosse balls for this but you can use a tennis bal...

yogabonnie

•6 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2018

Venting

Steroids

Fingers locking up and jaw pain, new symptoms

Visit to the Rheumatologist

A little lost in this new world.

Me again

Tapering, trying to get by.

Flare?

Thought for the Day

Distraction therapy?

Help with this forum (support group?) please?

Coated Preds

Should it stay or should it go

Advice on what to do next

Help please!

Getting a diagnosis with normal bloods

Bloods pmr

Thinned Skinned, Moon Faced, Bloated and Down in the Dumps

Actemra Update

NICE approves Tocilizumab for Giant Cell Arteritis!

https://www.paintoolkit.org

Feet / legs pain numbness

Sore today

pain in glutes

Thought you would appreciate this

Corticoid-sparing agents

Fatigue at 7.5 mg prednisone

Just so you can all be jealous...UPDATE...THUNDERSNOW!!!!

Feeling lucky

A ball and a wall for your aches and pains.

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