Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for March 2018

Help on the best way to take Predisione

Hello. I’m new to the forum but found what I have been reading so far very helpful and I don’t feel alone anymore. I have had PMR for 18 months and after...

Hello. I’m new to the forum but found what I have been reading so far very helpf...

Suffolklady

•6 years ago

16 Replies

Taper Plan - Legal advice for GPs

In December I posted a discussion I had with my Rheumatologist regarding a sensible pred taper plan. I had been on steroids for 2 years, initially for GCA and...

In December I posted a discussion I had with my Rheumatologist regarding a sensi...

strathearn

•6 years ago

29 Replies

A First Peek - "The Many Faces of PMR/GCA" {aka R&R Downunder}

Good Morning! This morning was a creative morning... even though it's cool, dreary and grey! The monster ("she that shan't be named") and I, were inspired...

Good Morning! This morning was a creative morning... even though it's cool, dre...

Hidden

•6 years ago

33 Replies

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Anxiety and depression

Has anyone developed panic attacks and depression when they have got down to 6mg. Lovely doc has given me lorazapam which really helps. My problem is do I...

Has anyone developed panic attacks and depression when they have got down to 6mg...

Xanthe12345

•6 years ago

10 Replies

This is a bit off topic, but I wanted to introduce someone special...

Here she is: The Lucky Dog, pictured here taking some sun at our house in Southampton NY. A 65 pound English Shepherd, she's nearly 10 years old now, and...

Here she is: The Lucky Dog, pictured here taking some sun at our house in Southa...

GOOD_GRIEF

•6 years ago

26 Replies

Questions about GCA

I was diagnosed with PMR about 5 weeks ago. I had a remarkable response to 15 mg prednisone. I did start about a week ago with 5 mg at 2 am and 10 mg at 8 am...

I was diagnosed with PMR about 5 weeks ago. I had a remarkable response to 15 m...

ShannonT

•6 years ago

16 Replies

Veins

Now its been brought to my attention, I don't like it for a start. After all I am only 62..... And don't want to feel old. Because I don't look old. So why...

Now its been brought to my attention, I don't like it for a start. After all I ...

morrison

•6 years ago

10 Replies

Internet tonight rubbish.

Sorry all phone playing up. So continue tomorrow. Large veins in hand syndrome?

Sorry all phone playing up. So continue tomorrow. Large veins in hand syndrome? ...

morrison

•6 years ago

Be the first to reply

Continue message.

Sorry all Idon't know what happened there. To continue I saw an old friend yesterday that I haven't seen for a while and he mentioned nicely of course that my...

Sorry all Idon't know what happened there. To continue I saw an old friend yest...

morrison

•6 years ago

3 Replies

Question once again.

Does anyone have the problem of very large veins in lower arms and especially in hands. I sa

Does anyone have the problem of very large veins in lower arms and especially in...

morrison

•6 years ago

9 Replies

Legs swelling.

Been on preds for over a year,down to 5mg, no problems before ,but for the last 3 days my legs are swelling quiet a lot. Could someone advise please....

Been on preds for over a year,down to 5mg, no problems before ,but for the last ...

Merrybell11

•6 years ago

11 Replies

Yale study reveals gut bacteria can spread to other organs to trigger autoimmune disease

Hmmmmmmm? Interesting. Hopeful maybe. I take a Mannatech Pro-biotic... anybody else into probiotics....

Hmmmmmmm? Interesting. Hopeful maybe. I take a Mannatech Pro-biotic... anybody...

Hidden

•6 years ago

43 Replies

Anybody else ever have this happen?

I think I have diabetes or I’m hypoglycemic or something. I have an appointment with my primary care doctor on Tuesday. I have gained about 40 pounds since...

I think I have diabetes or I’m hypoglycemic or something. I have an appointment ...

Lanakay

•6 years ago

11 Replies

Hi I’m new

Hello, I’m the 88 year old who walked for 7 miles on my birthday with my daughter. She wrote on my behalf yesterday as I’ve just been moved back to 15mg of...

Hello, I’m the 88 year old who walked for 7 miles on my birthday with my daughte...

kendrima

•6 years ago

12 Replies

Could you please advice me how long Pred takes to work?

Hi Feel like I've been hit by a car, neck, shoulders, hips and thighs so very painful also terrible back spasms. Due to age and other issues rather suspect I...

Hi Feel like I've been hit by a car, neck, shoulders, hips and thighs so very pa...

Mike1964

•6 years ago

35 Replies

Helpful advise

I suppose they are trying to be helpful, I may have been guilty of it in the past myself.

I suppose they are trying to be helpful, I may have been guilty of it in the pas...

daworm

•6 years ago

17 Replies

NICE are looking for patient experts for the NICE Scientific Advisory Panel for GCA

https://healthunlocked.com/vasculitis-uk/posts/137501988/nice-are-looking-for-patient-experts-for-the-nice-scientific-advisory-panel-for-gca This has just been...

https://healthunlocked.com/vasculitis-uk/posts/137501988/nice-are-looking-for-pa...

PMRpro

Ambassador•6 years ago

Be the first to reply

Tired

Had my CT head scan now waiting for results. Not seen Rheumatologist yet. Still on 40mg a day Prednisolone, just wish I knew if GCA or not. Does anyone else...

Had my CT head scan now waiting for results. Not seen Rheumatologist yet. Stil...

Hollyhock11

•6 years ago

17 Replies

3rd injection of ACTEMRA

So far I don’t see any difference in pain level. Noticed small sores in my mouth a lip feels a little swollen has anyone else Experienced this?

So far I don’t see any difference in pain level. Noticed small sores in my mouth...

mpl615

•6 years ago

18 Replies

Love to all women mothers or not. 💛🧡

You are what keeps the world turning. Keep well everyone.

SheffieldJane

•6 years ago

5 Replies

Happy Mother’s Day 💜💜💜💜

Hand made felt flowers from Australia! They went to a Women’s Festival with drumming. A whole meditation on mothers

Hand made felt flowers from Australia! They went to a Women’s Festival with drum...

SheffieldJane

•6 years ago

7 Replies

I'll Have What She's Having...

I'm not saying I will ever be approved for ACTEMRA; or that I believe it's the "end all, do all," panacea for complicated GCA cases (Hell, I don't even know if...

I'm not saying I will ever be approved for ACTEMRA; or that I believe it's the "...

Hidden

•6 years ago

32 Replies

Chest question

I've had pmr 2 years and been on 6mg pred for a couple of months. Had a horrible chest infection for last two weeks, worst I've felt for years. Weird thing...

I've had pmr 2 years and been on 6mg pred for a couple of months. Had a horribl...

teesher

•6 years ago

12 Replies

Feeling very sorry for myself.

I have a very heavy cold. Just a cold but I feel so unwell and lousy. This is Day 6 and I decided I needed to go to the Dr as my chest was singing as I...

I have a very heavy cold. Just a cold but I feel so unwell and lousy. This is D...

IdasMum

•6 years ago

20 Replies

Fingers locking up and jaw pain, new symptoms

Thank you wonderful people for being there for me and all your knowledge and support. I don’t think I realized how stressful the week was until I wrote...

Thank you wonderful people for being there for me and all your knowledge and...

Mstiles

•6 years ago

15 Replies

Paralympics have started...

If you want to feel humble and enjoy the kinds of activities winter games have...and are awake at 1amish GMT...then have a watch!

If you want to feel humble and enjoy the kinds of activities winter games have.....

Hidden

•6 years ago

18 Replies

My mum is 88 with PMR and I want to advise her.

Hi, My mum has polymyalgia and over more than 12 months has been reducing to 1 mg but recently took up chair exercising ( she is 88 yrs old) in addition to her...

Hi, My mum has polymyalgia and over more than 12 months has been reducing to 1 m...

Kirklasu

•6 years ago

13 Replies

The Iceburg hits Titanic!!!

While glibly waltzing along toward club Zero...I crashed into Stress!! Seems we just had a discussion about the effects of stress, and I know ALL ABOUT IT!!!...

While glibly waltzing along toward club Zero...I crashed into Stress!! Seems w...

1Purplecrow

•6 years ago

31 Replies

"Divine Gintervention"

Well she did not win, but she showed up! And that's all my "monster" and I could have asked of her! Thank you all for the support and encouragement!

Well she did not win, but she showed up! And that's all my "monster" and I coul...

Hidden

•6 years ago

36 Replies

Down to 1mg

At last, I feel I am nearly there. Am seeing the GP next week. What is encouraging this time is that the PMR has been quiet. OA still bothersome but hey I...

At last, I feel I am nearly there. Am seeing the GP next week. What is encouragi...

MarsiJay

•6 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2018

Help on the best way to take Predisione

Taper Plan - Legal advice for GPs

A First Peek - "The Many Faces of PMR/GCA" {aka R&R Downunder}

Anxiety and depression

This is a bit off topic, but I wanted to introduce someone special...

Questions about GCA

Veins

Internet tonight rubbish.

Continue message.

Question once again.

Legs swelling.

Yale study reveals gut bacteria can spread to other organs to trigger autoimmune disease

Anybody else ever have this happen?

Hi I’m new

Could you please advice me how long Pred takes to work?

Helpful advise

NICE are looking for patient experts for the NICE Scientific Advisory Panel for GCA

Tired

3rd injection of ACTEMRA

Love to all women mothers or not. 💛🧡

Happy Mother’s Day 💜💜💜💜

I'll Have What She's Having...

Chest question

Feeling very sorry for myself.

Fingers locking up and jaw pain, new symptoms

Paralympics have started...

My mum is 88 with PMR and I want to advise her.

The Iceburg hits Titanic!!!

"Divine Gintervention"

Down to 1mg

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