I have GCA and am taking Tocilizumab on the NHS and have received special funding.
I now understand Tocilizumab has been turned down by NICE and that there is an appeal this Thursday. If the appeal fails what happens to people like me who are already on the drug. I am not sure how long my special funding lasts. I am under Southend. It has been a life changer for me - I was extremely ill for over 18 months and I got better very quickly - almost back to my old self. Would appreciate it if anyone knows the answer - maybe PMRpro. Thanks in anticipation.