Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2018

Every set back is a set up for a comeback.

Hi I don't usually post but it's so hard for me to try to pick myself up again. Diagnosed w PRM Nov '17 and gave in to starting prednisone 10 mg in December. I...

Hi I don't usually post but it's so hard for me to try to pick myself up again. ...

hey_suz

•6 years ago

16 Replies

Worried

I am down to 4.5mg steroids and now have a bad chest infection. Doctor wants me to take 30mg a day for 5 days then drop back down to 4.5mg. I feel PMR is...

I am down to 4.5mg steroids and now have a bad chest infection. Doctor wants me ...

Jfur

•6 years ago

8 Replies

Next stage

Got blood results Friday from doctor. She said 'abnormal' and is referring me to a Rheumatologist and have a CT head scan for suspected GCA, as I've got...

Got blood results Friday from doctor. She said 'abnormal' and is referring me t...

Hollyhock11

•6 years ago

16 Replies

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Look at my bush!

This is an experiment. I think I’ve figured out how to post a photo.

SheffieldJane

•6 years ago

33 Replies

I V steroid drip versus oral Prednisolone with PMR and possible GCA and sight disturbance.

Hi everyone. Do any of you good people on the site know of anyone who actually suffered sight loss after being put on an I V steroid drip with regard to the...

Hi everyone. Do any of you good people on the site know of anyone who actually ...

bribaz

•6 years ago

20 Replies

Think I've taken a double dose of pred

Thank I've taken double dose of pred this morning. Am under a lot of stress as my daughter is suffering from severe burns caused by her slipping while...

Thank I've taken double dose of pred this morning. Am under a lot of stress as m...

maria40

•6 years ago

12 Replies

Taking it easy! Ha!Ha! What joy!

Take the pressure off & chill out. What! You must be joking. What a week!! Bath mixer tap jammed, water pouring through ceiling light in the kitchen. Floor...

Take the pressure off & chill out. What! You must be joking. What a week!! Ba...

Hidden

•6 years ago

11 Replies

Taking predisolone

Can I take predisolone with milk instead of water as I feel ill after taking 8 pills with water

Can I take predisolone with milk instead of water as I feel ill after taking 8 p...

Lee1945

•6 years ago

31 Replies

Little bit of info on CBD oil.

Just starting on cbd oil so no expert. I have been following 2/3 websites for a few months now and got some samples. You must start low and slow. It can take...

Just starting on cbd oil so no expert. I have been following 2/3 websites for a...

Mar-jay

•6 years ago

2 Replies

First steps to a cure for a/i disease

I thought people might be interested in this article from the Guardian:...

PMRpro

Ambassador•6 years ago

29 Replies

Bath Meet Up - Cancelled Owing To Bad Weather

Conditions where I live are still very bad with a lot of drifted snow in places. The only traffic moving on the nearby main road whch I can see from my home...

Conditions where I live are still very bad with a lot of drifted snow in places...

Hidden

•6 years ago

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PMRGCAuk new video channel

We have started a video channel on Vimeo. https://vimeo.com/channels/1352513/videos The idea is to share some of the talks from the series of research...

We have started a video channel on Vimeo. https://vimeo.com/channels/1352513/vid...

Polywotsit

PMRGCAuk team member•6 years ago

9 Replies

Needing help finding a book that was mentioned.

What is the name of the book that can be ordered from amazon? Is the author Kate Graham? I can’t seem to find it.

What is the name of the book that can be ordered from amazon? Is the author Kat...

Lanakay

•6 years ago

9 Replies

Newbie, 20 months in on steroids, pmr. Psoriasis

Hi all. I’m 56 . Discovering from the posts on this fantastic forum that I’m not that young at all for PMR. Not alone. Worked all the way through this, full...

Hi all. I’m 56 . Discovering from the posts on this fantastic forum that I’m no...

Youngforpmr

•6 years ago

10 Replies

The Good, the Bad & the Ugly

Good: Travelled to Humberside to see my great-grandson (Jaxon) in person (3 weeks old now). Went back to hotel just before the main snow arrived and cut off...

Good: Travelled to Humberside to see my great-grandson (Jaxon) in person (3 week...

violetsnowdrop

•6 years ago

14 Replies

Duration of PMR/GCA

I am wondering if PMR (pre pred) can present in bouts, where symptoms last for a few weeks and then remit, and so on. If so, would that be factored in to the...

I am wondering if PMR (pre pred) can present in bouts, where symptoms last for ...

Gaijin

•6 years ago

74 Replies

CBD OIL for aches and pains

I thought I would try something besides Tylenol for my aches and pains. I am taking my prescriptions faithfully but it just doesn’t cut the neck and shoulder...

I thought I would try something besides Tylenol for my aches and pains. I am tak...

northwesterner

•6 years ago

23 Replies

'Mild' GCA symptoms on & off despite no recent reductions

Hello everyone - especially you European/UK crowd buried under snow drifts !! I am feeling a bit 'peeved' as most of us do from time to time trying to control...

Hello everyone - especially you European/UK crowd buried under snow drifts !! I ...

Rimmy

•6 years ago

23 Replies

My quirky art project - "Divine Gintervention"

So, my hair salon, teams up with my favourite local gin distillery and puts on an annual art competition! Each participate, decorates an empty Brighton Gin...

So, my hair salon, teams up with my favourite local gin distillery and puts on a...

Hidden

•6 years ago

76 Replies

Time to reduce... I think?

I’m expecting results from my Monthly CRP and Sed rate blood tests today. I’m feeling pretty good at this moment so I suspect they will be in normal ranges. If...

I’m expecting results from my Monthly CRP and Sed rate blood tests today. I’m fe...

northwesterner

•6 years ago

12 Replies

Payback!

Well after my experience with the NHS, I then had some payback! Staff from our local hospital couldn't get to and from work, so I helped out. I picked up a...

Well after my experience with the NHS, I then had some payback! Staff from our l...

JulianJ

•6 years ago

10 Replies

It's me again...finally.

Hello everyone! Well I finally got in yesterday to see my Rheumatologist. Last I wrote she had taken me from 10mg to 5mg then reduced me 1mg a week until I...

Hello everyone! Well I finally got in yesterday to see my Rheumatologist. Last...

pmrkitty

•6 years ago

18 Replies

Should I Be Making More of an Effort?

Those that can't do... Rant! https://rantingsofamadwomanblog.com/2018/03/01/should-i-be-making-more-of-an-effort/ *Please be advised this Blog post contains...

Those that can't do... Rant! https://rantingsofamadwomanblog.com/2018/03/01/sho...

Hidden

•6 years ago

69 Replies

Physical Therapy-PMR

UPDATE: had my PT evaluation. Pleased to say that the PT I am working with HAS worked with people with PMR. It was so wonderful to walk in a facility and...

UPDATE: had my PT evaluation. Pleased to say that the PT I am working with HAS...

Sunnyd7

•6 years ago

31 Replies

This is a picture of "Snail" with Janet sitting inside.

Mark I'll do my best. I found this photo amongst the hundreds I've got of Janet and I in Rendlesham Forest. It shows you all of Snail and a nice picture of...

Mark I'll do my best. I found this photo amongst the hundreds I've got of Janet ...

GCA1947

•6 years ago

3 Replies

New to HealthUnlocked

I have PMR for 3 years and, I am trying to reduce from 10 to 9 monthly. My Rheumy gives me this guide line. I have not been successful with the 1 mg...

I have PMR for 3 years and, I am trying to reduce from 10 to 9 monthly. My Rhe...

4840

•6 years ago

4 Replies

Nutrician - Dietetics appointment

I thought I would share about what I thought was a very good appointment with a Dietician (UK hospital). This was booked 3 months ago by Gastroenterologist...

I thought I would share about what I thought was a very good appointment with a ...

Hidden

•6 years ago

33 Replies

Interesting Abstract!

Came across this abstract into CT/PET and diagnosis of large vessel Vasculitis, it also looks at how useful it is to predict relapse. Unfortunately can’t...

Came across this abstract into CT/PET and diagnosis of large vessel Vasculitis, ...

Hidden

•6 years ago

2 Replies

My gorilla

My very own "gorilla" - very welcome on this cold snowy day (with his microwaveable tummy). Stay warm!

My very own "gorilla" - very welcome on this cold snowy day (with his microwavea...

Pongo13

•6 years ago

6 Replies

Research on GCA - is this how it happens?

I have just discovered this video, the next along from the one Idasmum posted earlier: https://vimeo.com/257346811 Unfortunately the soundtrack is quite poor...

I have just discovered this video, the next along from the one Idasmum posted ea...

PMRpro

Ambassador•6 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2018

Every set back is a set up for a comeback.

Worried

Next stage

Look at my bush!

I V steroid drip versus oral Prednisolone with PMR and possible GCA and sight disturbance.

Think I've taken a double dose of pred

Taking it easy! Ha!Ha! What joy!

Taking predisolone

Little bit of info on CBD oil.

First steps to a cure for a/i disease

Bath Meet Up - Cancelled Owing To Bad Weather

PMRGCAuk new video channel

Needing help finding a book that was mentioned.

Newbie, 20 months in on steroids, pmr. Psoriasis

The Good, the Bad & the Ugly

Duration of PMR/GCA

CBD OIL for aches and pains

'Mild' GCA symptoms on & off despite no recent reductions

My quirky art project - "Divine Gintervention"

Time to reduce... I think?

Payback!

It's me again...finally.

Should I Be Making More of an Effort?

Physical Therapy-PMR

This is a picture of "Snail" with Janet sitting inside.

New to HealthUnlocked

Nutrician - Dietetics appointment

Interesting Abstract!

My gorilla

Research on GCA - is this how it happens?

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