I had an appointment with my Rheumy last night... it was the 3rd, in as many months. I requested the appointment because I need to understand why I still feel like "CRAP," most of the time!
It's been 113 days since I started treatment! Shouldn't there be a notable difference?
My complaints included: My legs feel like they weigh a ton! My arms feel like stiff, pipes hanging lifelessly from my rigid, frozen shoulders. I have tight, achey bands that runs across my back (between the shoulder blades) and across the upper chest (between the collar bones), there is a pain in my left buttocks that runs down my left leg, I'm generally exhausted and fatigued even when I've had lots of rest, I get out of breath walking short distances, if I have a good day, the next day is usually a bad day, I experience heart palpitations sitting on the couch watching TV, for the most part I'm anti-social, moody, and emotional and my skin is so dry, I may just turn to dust and blow away...
She listened patiently, jotted it all down and (not in a patronising way) reassured me that she believed that most, if not all, of my complaints were attributed to the nasty side effects of being on this particular panacea.
Hmmmmm? Where have I heard that before?
Oh! Here on this website, from all of YOU!
When might I start feeling better?
When I'm down below 20mg daily
When will that be?
At our current rate, not until August 2018.
Will I make it?
Only time will tell.
PS - Good news!!!! She (the Rheumy) was doing Admin on the system Monday, and saw my GP Referral. She "triaged" it and as of April 18th I will be seeing her under the NHS! "Yes, Virginia, there is a Santa Clause."