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[IdasMum]

vimeo.com/user81841867/mypm...

Angela Edwards, a PMR patient, tells her story to Kate Gilbert for PMRGCAuk. Angela talks about her experiences of symptoms, diagnosis and treatment on steroids and methotrexate. The interview was recorded at the Birmingham Rheuma Research Roadshow on 9 March 2017. The project has been funded by the Wellcome Foundation.

[Hidden]

Great interview.... THANKS!

[Jackoh]

This is very helpful, I feel for those on the PMR journey. For those of you who are "oldies on this site , Angela is otherwise known as " Mrs Nails" and used to contribute a lot to this site in the past.

[Hidden in reply to Jackoh]

Hi Jackoh

It’s Me 🙈 yes it was posted yesterday on Facebook by Kate, l hoped someone else would post it here.

I’ve not been on here for a while, not been too good, Post Chemo Side Effects plus Bowen’s Disease (squamous cell carcinoma in situ) which is ‘good’ compared to if it had been secondary to the Breast Cancer!

But apart from that! Ha!Ha!......

PMR not to bad but it’s more about adrenal issues now, but hey, ho

We are going to be Grandparents in July for the first time 👶🏻 so very happy about that.

Hope you are doing well?

Love Mrs N aka Angela Edwards

[DorsetLady PMRGCAuk volunteer in reply to Hidden]

Hi Angela,

Hope you’re beginning to feel at bit better, and fabulous news about becoming a grandmother.

Good luck.

[Hidden in reply to DorsetLady]

Thank You x

[Hidden]

Thanks for posting, I was a bit 🙈 Kate put it on Facebook.

Thanks Mrs N aka Angela x

[Longtimer in reply to Hidden]

Thanks for that, it make a interesting point that methotrexate works for some...

[bunnymom]

That made me a bit weepy.i have never heard another person talk about pmr. Just the friends on this site. And at our best we are a sick bunch aren't we? Some days when I feel better I think maybe I'm not that sick really.... Maybe I shouldn't stop working.... And then remember that I am only doing as well as I am because I am working part time and when something stressful happens my brain dissolves. Thanks Mrs Nails

[Hidden in reply to bunnymom]

Hi Bunnymom

As l said in the interview it was when we went on holiday for a month that l realised Life was more important than Work!

After l Retired I unfortunately went & got Breast Cancer, all of my Consultant’s were optimistic that the Chemo might wipe out the PMR or its underlying cause, l did manage to reduce my Prednisolone while on Chemo but that was because it was supplemented by Dexamethazone which kept me on the very high side of normal!

Sadly, there was no wonderful side effect of the PMR going into remission following the Chemo.

As l said in the video l manage my life & when l don’t l know about it, a steady pace is to be encouraged.

I’ve had some very positive feedback on the video from my friends as l shared it on Facebook & l think it’s rather made them realise what we’ve all been through as most people are dismissive of PMR

I know this for sure as when l was diagnosed with PMR my friends just shrugged but had no idea or understanding, however when l was diagnosed with breast cancer the postman could hardly carry the cards, gifts that arrived & as for flowers, we had to buy more vases!

So l hope the Video is helpful & hope you are doing well & keeping warm in this cold weather.

Angela x aka Mrs Nails x

[bunnymom in reply to Hidden]

Spring is coming to Illinois in the US with sun and warmer weather. Lots of birds singing. I think we've all had a long hard winter. Wishing you well one day at a time. Xxx