Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,301 members • 38,032 posts

All posts for December 2017

Has anyone experienced horrible night sweats as a symptom of PMR? Also is anyone else trying to treat this with alternative treatments?

Hello, fellow PMR sufferers... I'm new here as I was just diagnosed about a month-and-a-half ago with PMR. The thing is though, that I want to a try to avoid...

Hello, fellow PMR sufferers... I'm new here as I was just diagnosed about a mont...

Lindaracha

•6 years ago

87 Replies

CARBS

Read here a great deal about the lo carb. Anyone have a plan they follow? or specific advice. The Holidays killed me and now I definitely need to fix this!...

Read here a great deal about the lo carb. Anyone have a plan they follow? or spe...

yogabonnie

•6 years ago

64 Replies

Flu symptoms

Never rains but pours!! I have developed flu like symptoms with a horrible cough and slight pain in my temple at right hand side!! Now I know there are so many...

Never rains but pours!! I have developed flu like symptoms with a horrible cough...

JanieBaxter

•6 years ago

12 Replies

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Newbie

Hi, my name is Connie. I was dx with PMR this past April. I was started on 20mg of prednisone and have been gradually decreasing and now on 5mg. About 2-3...

Hi, my name is Connie. I was dx with PMR this past April. I was started on 20mg...

cekubisz

•6 years ago

7 Replies

Paying the Price

Having been diagnosed with PMR/GCA in early December; put on 60mg of Prednisolone and feeling rather GREAT, I had gained a false sense of security. I didn't...

Having been diagnosed with PMR/GCA in early December; put on 60mg of Prednisolo...

Hidden

•6 years ago

38 Replies

PMR without Pred

Hi, hope everyone has had a good break so far. Just wondering about letting PMR run its course without steroids? I reckon I had it at least 2 yrs before...

Hi, hope everyone has had a good break so far. Just wondering about letting PMR ...

hya2cynth

•6 years ago

16 Replies

Struggling

Thank you everyone for your advice and just for taking the time to reply. I really appreciate it. It’s reassuring to know I’m not the only one fed up and...

Thank you everyone for your advice and just for taking the time to reply. I real...

Kyrenia

•6 years ago

6 Replies

Is anyone paralyzed

I am Unable to maintain my balance and have developed pain in one leg and basically Unable to walk. Is anyone else have this?

I am Unable to maintain my balance and have developed pain in one leg and basica...

Nones

•6 years ago

24 Replies

Newly Diagnosed

My Story . Had flu symptoms 6 weeks ago lucky a gp ran some blood test! Recalled as ear levels were 63! Admitted to Hospital put in 80mg Pred. Discharged on...

My Story . Had flu symptoms 6 weeks ago lucky a gp ran some blood test! Recalled...

Hidden

•6 years ago

15 Replies

There is hope.... a little Christmas Miracle 🌲

The chronic fatigue has lifted and I have my energy back! The old me is returning and all in time for Xmas. So what’s happened and what’s changed? Was it the...

The chronic fatigue has lifted and I have my energy back! The old me is returnin...

Mariemcdo

•6 years ago

12 Replies

Bad nan again

As if hair was not enough. Met grandkids outside my house like this well actually walked 50ft to meet them.

As if hair was not enough. Met grandkids outside my house like this well actual...

olive2709

•6 years ago

8 Replies

Merry Christmas everyone

I'm feeling exhausted all the time don't have energy to do anything ,even find it difficult to walk any distance also feel as if my doctor doesn't understand...

I'm feeling exhausted all the time don't have energy to do anything ,even find i...

Christi2

•6 years ago

5 Replies

Let them eat cake!

Interesting. I wonder what will come of it. Should I up my cake intake for now :D...

Interesting. I wonder what will come of it. Should I up my cake intake for now...

IdasMum

•6 years ago

7 Replies

Struggling

Hi was diagnosed with GCA/ PMR Nov 17. Had been quite poorly whilst abroad. Initially started on 40mg pred, but for the last two weeks reduced to 30mg. Side...

Hi was diagnosed with GCA/ PMR Nov 17. Had been quite poorly whilst abroad. Init...

Kyrenia

•6 years ago

11 Replies

PMR/GCA and Polycythemia

I have had pmr and GCA for 8 years and am now down to 7 mg of prednisone and trying to get down to 5. However 6 months ago I was Diagnosed with JAK2...

I have had pmr and GCA for 8 years and am now down to 7 mg of prednisone and try...

Heather270240

•6 years ago

2 Replies

Happy Christmas

I hope you have all had a good Christmas.. God bless you each and every one. 💜

I hope you have all had a good Christmas.. God bless you each and every one. 💜...

Cinka

•6 years ago

9 Replies

Actemra Adrenals Fatigue at 7 . 5

Some advice please I am finally down to 7.5,after 13 weeks of Actemra, very tired entire body hurts. Some reactions from Actemra are very high cholesterol and...

Some advice please I am finally down to 7.5,after 13 weeks of Actemra, very tire...

Nap1

•6 years ago

30 Replies

New diagnosis

Hi all. I’m a newbie only diagnosed PMR and GCA 2 days ago by an emergency blood test and locum doctor as it was xmas eve. He’s put me on 40g of Pred for 5...

Hi all. I’m a newbie only diagnosed PMR and GCA 2 days ago by an emergency bloo...

Hidden

•6 years ago

36 Replies

Prednisone vs Prednisolone

Is the United States the only country where the medical providers overwhelmingly prescribe prednisone instead of prednisolone? What about Canada, Mexico, and...

Is the United States the only country where the medical providers overwhelmingly...

skipspmr

•6 years ago

4 Replies

Monotherapy with Actemra for GCA

Merry Christmas! I didn't write about my GCA journey for a while as the whole process was rather confusing and difficult to understand. But now it's time to...

Merry Christmas! I didn't write about my GCA journey for a while as the whole pr...

Akino

•6 years ago

17 Replies

Wishing everybody a happy Xmas (whatever your faith or none) and a good New Year

I haven't replied to many of the xmas wishes posts as it would have doubled the time I spend on here anyway - I've been saving them up to reply here! People...

I haven't replied to many of the xmas wishes posts as it would have doubled the ...

PMRpro

Ambassador•6 years ago

38 Replies

Christmas help needed!

My lovely husband was diagnosed in May and started on 15 mgs which made him feel much better but still with niggles. He has continued down to 10mg and because...

My lovely husband was diagnosed in May and started on 15 mgs which made him feel...

Hazyma

•6 years ago

9 Replies

Merry Christmas

Just to say best wishes & merry Christmas to all🎅🎄

Oliver1954

•6 years ago

2 Replies

Actemra

Merry Christmas to all and Happy Holidays! I do have a question: Did anyone ever used Actemra as the one and only drug for GCA and if so, how were the......

Merry Christmas to all and Happy Holidays! I do have a question: Did anyone ever...

Akino

•6 years ago

16 Replies

The Lighter Side: Best Christmas Wishes to Fellow Polymalingerers Worldwide! :-)

Dear 'You Lot' here (!) Just to wish you all a happy, peaceful and restful Christmas. And, more important perhaps, hopes for a positive, more healthy and...

Dear 'You Lot' here (!) Just to wish you all a happy, peaceful and restful Chris...

markbenjamin57

•6 years ago

39 Replies

Merry Christmas to all

I wanted to wish everyone here a Merry Christmas and a Happy Healthy New Year! I pray all of you will find peace and joy in the new year!

I wanted to wish everyone here a Merry Christmas and a Happy Healthy New Year! I...

Sunnyd7

•6 years ago

2 Replies

Room at the Inn, The scene is set!

Seasons Greetings to all members across the globe. May you be fit to enjoy the seasons festivities and here's wishing you all a healthier year in 2018! Thank...

Seasons Greetings to all members across the globe. May you be fit to enjoy the s...

Marilyn1959

•6 years ago

3 Replies

Merry Christmas

May the joy of Christmas be with you and all of your families. Xo

Marie1479

•6 years ago

7 Replies

Pred side affects

I realise I am late in replying to Prednisolone side affects but I am not so lucky as some. I started on 40mgs 6.5 years ago and have progressed down to 5mgs....

I realise I am late in replying to Prednisolone side affects but I am not so luc...

mega

•6 years ago

9 Replies

Angel blessings

Wishing everyone A very Happy Christmas filled with love , light , peace and joy xxx

Wishing everyone A very Happy Christmas filled with love , light , peace and joy...

Rosbud

•6 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2017

Has anyone experienced horrible night sweats as a symptom of PMR? Also is anyone else trying to treat this with alternative treatments?

CARBS

Flu symptoms

Newbie

Paying the Price

PMR without Pred

Struggling

Is anyone paralyzed

Newly Diagnosed

There is hope.... a little Christmas Miracle 🌲

Bad nan again

Merry Christmas everyone

Let them eat cake!

Struggling

PMR/GCA and Polycythemia

Happy Christmas

Actemra Adrenals Fatigue at 7 . 5

New diagnosis

Prednisone vs Prednisolone

Monotherapy with Actemra for GCA

Wishing everybody a happy Xmas (whatever your faith or none) and a good New Year

Christmas help needed!

Merry Christmas

Actemra

The Lighter Side: Best Christmas Wishes to Fellow Polymalingerers Worldwide! :-)

Merry Christmas to all

Room at the Inn, The scene is set!

Merry Christmas

Pred side affects

Angel blessings

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