Hello, fellow PMR sufferers... I'm new here as I was just diagnosed about a month-and-a-half ago with PMR. The thing is though, that I want to a try to avoid taking steroids if at all possible because of all the horrible side effects that it causes. I have an appointment with the rheumatologist (finally!) on January 15th , but in the meantime , I'm trying to tackle this as holistically is possible, with acupuncture, Physical Therapy, changing to an anti-inflammatory diet, even CBD / THC for the pain. So far I have not noticed any great results, but it only has been a little over a month. The pain during the night and in the early morning hours is when it's the absolute worst. But, I swear, even with the excruciating pain, I think the night sweats is even worse! Of all the research I've been doing on the internet, I have not seen anything about night sweats as being a symptom of this disease. I'm literally up every hour and a half to two hours, sweating profusely, where I have to change my clothes and sleep on the other side of the bed where it's not damp. Sometimes I have to change my clothes up to four times in one night. And as you all know, with the pain, it is not easy to dress and undress, especially when your clothes are all wet and sticking to you! This is the most horrible disease to have when you're living by yourself... I feel so alone, helpless, desperate and afraid. Has anyone else been experiencing these horrible night sweats? And has anyone else decided to avoid taking steroids and had any success in treating this holistically?
I appreciate any input you have, thank you!