Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2017

Dry scalp and prednisolone

Does anyone else have a dry scalp and how do you treat it. On 8 mg of prednisolone and been on predict since March this year. I also have some dry skin on my...

Does anyone else have a dry scalp and how do you treat it. On 8 mg of prednisolo...

Koalajane

•7 years ago

14 Replies

Dangers of alendronate.

I have been on Alendronate for 3 1/2 years.for a diagnosis of GCA and PMR made in 2014. I started then on 80 mg pred. per day. Now I am getting esophageal pain...

I have been on Alendronate for 3 1/2 years.for a diagnosis of GCA and PMR made i...

DeliaGray

•7 years ago

9 Replies

Carbohydrates and weight control

Just to recap I was diagnosed with PMR in June 2016 and started on 20 mg prednisolone. I took advice from this forum and have reduced my carbohydrates...

Just to recap I was diagnosed with PMR in June 2016 and started on 20 mg prednis...

Brixhamhampster

•7 years ago

14 Replies

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advice welcomed

I was diagnosed with PMR & GCA 6 months ago, started on 20mg preds, now down to 5mg, pain is acceptable, but i find i seem to suffer with a lot of leg...

I was diagnosed with PMR & GCA 6 months ago, started on 20mg preds, now down t...

Wolflady61

•7 years ago

14 Replies

Coming down

Hi all. Not been on the site for a while. Sorry. Really trying hard to get down from 7mgs Being trying DSM. for months. Just can't cope with anything under....

Hi all. Not been on the site for a while. Sorry. Really trying hard to get down ...

morrison

•7 years ago

25 Replies

Pain

Haven't been to doctors yet I don't like to bother people if it's just a part of the illness

Haven't been to doctors yet I don't like to bother people if it's just a part of...

Christi2

•7 years ago

8 Replies

Pain

Having a bad day today so bad that I passed out this morning.what I would like to know because I've just been diagnosed with GCA the pains and swelling are...

Having a bad day today so bad that I passed out this morning.what I would like t...

Christi2

•7 years ago

6 Replies

What time of day is best to take Prednisolone.

I am taking 11mg. a day and trying to reduce by the very slow method. I’m struggling at the moment. There’s a lot of stress in my life just now and I know that...

I am taking 11mg. a day and trying to reduce by the very slow method. I’m strugg...

Tonysue

•7 years ago

33 Replies

Follow up about my chest infection

After 2 weeks of infection and not improving tried to get a doctors appointment earlyist was 24 nov so went to A+E I am now in hospital with pneumonia if you...

After 2 weeks of infection and not improving tried to get a doctors appointment ...

granelliheywood

•7 years ago

8 Replies

trying to heal

ive had a hard journey with pmr..i was diagnosed dec. 11 2014 with sed rate of 62 ..rheumy started on pred and stayed on ten mg for quite a while..i was a long...

ive had a hard journey with pmr..i was diagnosed dec. 11 2014 with sed rate of 6...

tuningup

•7 years ago

8 Replies

Feeling well

just been reading posts about dizziness, feeling weak and faint. I remember those feelings- awful especially thinking this was what I'd be like forever. I've...

just been reading posts about dizziness, feeling weak and faint. I remember thos...

suzieh

•7 years ago

20 Replies

I cannot knock the skin off a rice pudding

I am now tapering down monthly by one milligram . Working down to 7 at present .Have been fortunate in not having excessive pain , but after a few reasonably...

I am now tapering down monthly by one milligram . Working down to 7 at present ....

Tiny_Tim

•7 years ago

11 Replies

LYCOPENE.

has anyone tried lycopene ? I have some to take but not sure. I can’t find any info on interactions with prednisone so assume it’s safe ?

has anyone tried lycopene ? I have some to take but not sure. I can’t find any i...

Daveibiza

•7 years ago

12 Replies

Dead Slow and Nearly Stop Spreadsheet

Don't know if anyone is interested, but I have prepared a simple spreadsheet, which follows my interpretation of the DSaNS method of reducing steroids. You...

Don't know if anyone is interested, but I have prepared a simple spreadsheet, wh...

Hidden

•7 years ago

14 Replies

Meds and a colonoscopy

Hello I have to have a colonoscopy next week. I am a bit concerned how to take my meds on the morning I have to take the prep and not eat anything from the day...

Hello I have to have a colonoscopy next week. I am a bit concerned how to take m...

Judigardener

•7 years ago

18 Replies

GCA, trochanteric bursitis and itchy rash

I would be interested to know if anyone else has or has had a similar experience. Diagnosed with GCA end of July. September developed trochanteric bursitis in...

I would be interested to know if anyone else has or has had a similar experienc...

GrannyReid

•7 years ago

11 Replies

Any point really to steroid sparers?

Hello Friends. Here is the question. With the report coming out that there is little difference in people taking long term steroids (besides cataracts), do...

Hello Friends. Here is the question. With the report coming out that there is l...

bunnymom

•7 years ago

20 Replies

Med 15mg per day for one week only....

Hi, My Mum has just been diagnosed with Polymyalgia and has been prescribed the above dosage for just one week. She has not taken anything yet as she is...

Hi, My Mum has just been diagnosed with Polymyalgia and has been prescribed the ...

kys690

•7 years ago

11 Replies

It doesn't end with PMR

It was bad enough to be diagnosed with PMR a few years ago and to put on the weight with the Prednisone I have to take. I have osteoporosis now and just this...

It was bad enough to be diagnosed with PMR a few years ago and to put on the wei...

Amber1414

•7 years ago

4 Replies

Pam St Clement of EastEnders has PMR

Thought this might be of interest to some....

IdasMum

•7 years ago

4 Replies

Will I be at this dose for ever?

Having been on prednisolone for 17 years I thought I was doing well having reduced to 9mg and going towards 8.5 (after a GCA flare which took me back up 30mg)...

Having been on prednisolone for 17 years I thought I was doing well having reduc...

maria40

•7 years ago

19 Replies

Polymyalgia/Schnitzler Syndrome

2 years ago diagnosis was PMR. A year later I have this rash and find I have Schnitzler Syndrome. Added image just in case anyone else expieriences it. Or I...

2 years ago diagnosis was PMR. A year later I have this rash and find I have Sc...

mikldiamond

•7 years ago

40 Replies

I have a real pain in the butt...

I've been reducing from 20mg Pred on August 31, down to 15mg Friday, and now my butt hurts. I never had this symptom before. It's odd that my arms and hands...

I've been reducing from 20mg Pred on August 31, down to 15mg Friday, and now my ...

GOOD_GRIEF

•7 years ago

24 Replies

Advice fron last week

Hi, just an update from last week. I had appt with GP bloods taken and pred upped to 40mg as suspects GCA. Referred to Consultant who said no point in doing...

Hi, just an update from last week. I had appt with GP bloods taken and pred uppe...

HighlandCat

•7 years ago

11 Replies

Gall Bladder surgery

I had my gall bladder removed via keyhold surgery nearly five weeks ago and had infected wounds afterwards. Felt absolutely dreadful and After two courses of...

I had my gall bladder removed via keyhold surgery nearly five weeks ago and had ...

BookwormHC

•7 years ago

3 Replies

Costochondritis

Oh my God! I have come down with a condition called costochondritis. And I've had it for almost 2 weeks and let me tell you the pain is relentless. I'm only...

Oh my God! I have come down with a condition called costochondritis. And I've ha...

Amkoffee

•7 years ago

23 Replies

Desperate for advice

I'm 72 year old lady I developed pma 6 months ago after having an operation on my spine just about getting back to normal this hit me hard, could not walk...

I'm 72 year old lady I developed pma 6 months ago after having an operation on m...

Jamie345

•7 years ago

25 Replies

Hair loss due to prednison

Hi all, I am new here. I am an 48 year old Dutch woman and I was diagnosed with PMR in February 2017. I was wandering if anyone here also has hair loss as a...

Hi all, I am new here. I am an 48 year old Dutch woman and I was diagnosed with ...

Ollanda

•7 years ago

39 Replies

Flare, or something else?

This forum has been so helpful to me on my PMR journey. Even though this is my first post I have been following the forum for months and I am overwhelmed by...

This forum has been so helpful to me on my PMR journey. Even though this is my ...

Gate73

•7 years ago

7 Replies

Polymyalgia

Started with 6 prednisilone which relieved excruciating pain every morning,but gave massive depression at suicidal thoughts level,finished initial dosage...

Started with 6 prednisilone which relieved excruciating pain every morning,but g...

Dorisirene

•7 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2017

Dry scalp and prednisolone

Dangers of alendronate.

Carbohydrates and weight control

advice welcomed

Coming down

Pain

Pain

What time of day is best to take Prednisolone.

Follow up about my chest infection

trying to heal

Feeling well

I cannot knock the skin off a rice pudding

LYCOPENE.

Dead Slow and Nearly Stop Spreadsheet

Meds and a colonoscopy

GCA, trochanteric bursitis and itchy rash

Any point really to steroid sparers?

Med 15mg per day for one week only....

It doesn't end with PMR

Pam St Clement of EastEnders has PMR

Will I be at this dose for ever?

Polymyalgia/Schnitzler Syndrome

I have a real pain in the butt...

Advice fron last week

Gall Bladder surgery

Costochondritis

Desperate for advice

Hair loss due to prednison

Flare, or something else?

Polymyalgia

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