Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2017

Thrush

Been having bad film in mouth and food tastes nasty all the time. Going on for weeks now. Thinking it’s thrush. I’m always brushing and tongue cleaning but...

Been having bad film in mouth and food tastes nasty all the time. Going on for ...

Leeleep

•7 years ago

12 Replies

What is the typical interval between a dose taper and a resulting PMR flare?

I am wondering how many days after a specific dose taper until one might conclude that the taper was successful and they are eligible for a further taper? Put...

I am wondering how many days after a specific dose taper until one might conclud...

ARNEMRRM

•7 years ago

16 Replies

Initial trial of delayed-release prednisalone on PMR

I thought group members might find this interesting....

Pipistrelle

•7 years ago

9 Replies

Want to take advantage of all our features? Just log in!

So Thankful I found this group!!

Hi my name is Sherri and I live in the United States, specifically California and even more specifically in the town where we have recently had horrendous...

Hi my name is Sherri and I live in the United States, specifically California an...

SherriSews

•7 years ago

22 Replies

Working with PMR.... How do you do it?

Hi PMRGA community, I just wondered how everybody is managing this disease whilst working. I am Head of Drama at a prep school and have worked throughout my...

Hi PMRGA community, I just wondered how everybody is managing this disease whils...

Mariemcdo

•7 years ago

29 Replies

Back from hols with very little drama!!

So...managed 3 weeks in South Africa with only one teeny little increase in the pred..to cover the long journey there and the tiredness!! Such a memorable...

So...managed 3 weeks in South Africa with only one teeny little increase in the ...

altywhite

•7 years ago

7 Replies

Just ride with it I guess?

Hi everyone, feeling a bit selfish here as I’m back for advice but feel I don’t know enough to give it back or help to anyone on here 😕 I’ve been on 10mg for...

Hi everyone, feeling a bit selfish here as I’m back for advice but feel I don’t ...

Allsgrandso

•7 years ago

23 Replies

Advise/Experience gratefully accepted

Hi all, I really appreciate this forum and although I don’t post often I am always reading. Anyway, at my last visit to the hospital, the dr told me to reduce...

Hi all, I really appreciate this forum and although I don’t post often I am alwa...

Janieb293

•7 years ago

11 Replies

Please read my condition and advise me

I am Patient of Ankylosing Spondolities (AS) since 1997, Primarily I treated from Orthopedics with pain management medication, along with physical therapy. I...

I am Patient of Ankylosing Spondolities (AS) since 1997, Primarily I treated fro...

Hidden

•7 years ago

2 Replies

Buzzing buttocks?

Has anyone experienced a strange intermittent buzzing in the tailbone area? I'm tapering to 7mg daily for PMR and getting this strange sensation like a mild...

Has anyone experienced a strange intermittent buzzing in the tailbone area? I'm ...

Zebedee44

•7 years ago

31 Replies

Fatigue etc

Is it 'normal' to experience fatigue and 'woolly head' after 8+ months? I am now on 8mg Pred after a month on 9mg and prior to that 10mg and 15mg. Am...

Is it 'normal' to experience fatigue and 'woolly head' after 8+ months? I am no...

kathleen18

•7 years ago

27 Replies

Not Advise

I've been posting a few links to articles and sites that i have found interesting,,In my new found "obsession" with this PMR thing...please remember people,...

I've been posting a few links to articles and sites that i have found interestin...

daworm

•7 years ago

3 Replies

Leg and foot numbness

I so appreciate this forum! Wish we all lived close enough to meet. I am on 40 mg prednisone for yet undiagnosed GCA and diagnosed PMR/possible RA. My legs...

I so appreciate this forum! Wish we all lived close enough to meet. I am on 40 ...

Grammajoy

•7 years ago

8 Replies

Update

Hello. Thought some of you may be interested in my update/heart problem. I have seen Cardiologist again. I have a moderate to severe heart valve leak, plus...

Hello. Thought some of you may be interested in my update/heart problem. I have ...

bowler

•7 years ago

15 Replies

Living with PMR

I'm a 53 year old female suffering from PMR for a year and a half now. I am down to 6mg a day and feeling pretty good. I have learned when you go down in your...

I'm a 53 year old female suffering from PMR for a year and a half now. I am down...

smoothilly

•7 years ago

19 Replies

Help on GCA symptoms and taper

Hi there, I’m a 61yr old male who was diagnosed with GCA in July 2017. The basis for the diagnosis was severe headache (rhs top of head),neck...

Hi there, I’m a 61yr old male who was diagnosed with GCA in July ...

MichaelW

•7 years ago

27 Replies

Bad pain Methotrexate and Ibruprophen

Took my first dose of methotrexate yesterday and lowered my dose of prednisone to 10mg from 11mg. This morning I’m in bad pain. Does anyone take ibuprofen...

Took my first dose of methotrexate yesterday and lowered my dose of prednisone t...

Judyp1203

•7 years ago

9 Replies

Highways and biways

As I read posts from members I notice a common theme. That one of the activities that's the most likely to cause misery is traveling. Now I don't feel so bad....

As I read posts from members I notice a common theme. That one of the activities...

CrazyTrucker

•7 years ago

33 Replies

chest infection

for over 2 weeks I have had this chest infection coughing most of the night and getting very little sleep I am taking 5mg of pred over a long period of time...

for over 2 weeks I have had this chest infection coughing most of the night and ...

granelliheywood

•7 years ago

11 Replies

Chest pain

Hi I woke on Wednesday morning with some neck and shoulder pain plus a chest pain. I thought perhaps I had slept funny, the pain in my chest continued Thursday...

Hi I woke on Wednesday morning with some neck and shoulder pain plus a chest pai...

Freddie01

•7 years ago

11 Replies

Last week was a good week!

Last Monday my wife and I flew to Madrid and then drove to Aranjuez for a few days. We walked around Toledo on Tuesday, Aranjuez on Wednesday, Thursday...

Last Monday my wife and I flew to Madrid and then drove to Aranjuez for a few da...

JulianJ

•7 years ago

15 Replies

Read this...first I heard of it..just water is o.k.?

https://www.gicare.com/medication/prednisone/ One thing I read is that it won't cause an ulcer on its own but if you already have one from NSAIDs or other...

https://www.gicare.com/medication/prednisone/ One thing I read is that it won't...

daworm

•7 years ago

5 Replies

My PMR Story

She still needs me and feeds me now that I'm 64. 19 months ago after a knee injury, an infected tooth and a pneumonia shot my stiff shoulders got frozen and my...

She still needs me and feeds me now that I'm 64. 19 months ago after a knee inju...

salparadise127

•7 years ago

10 Replies

Plymouth /South West Meeting

Following our social meeting in September, this group have invited Dr David Adams, Head of Optometry at the Royal Eye Infirmary, to talk about his work in this...

Following our social meeting in September, this group have invited Dr David Adam...

Hidden

•7 years ago

3 Replies

A big thank you..

A big hanks to all of you who replied to my post re. Alternative medicine etc. With your help and advice I decided to cancel my due appointment with the...

A big hanks to all of you who replied to my post re. Alternative medicine etc. ...

mepoly20

•7 years ago

4 Replies

New to the exclusive PMR club

Hi, I am 60 years old mother if 3, nana of 3, retired civil servant working part time as a housing support worker. I was diagnosed with PMR in August this...

Hi, I am 60 years old mother if 3, nana of 3, retired civil servant working par...

CarysL

•7 years ago

15 Replies

GCA And Eye Bleeding or hemorrhage

Just wondering if Eye hemorrhage half of my eye blood red can be a side effect of GCA? Also I have had several laser surgeries for retina tears. Just saw Dr...

Just wondering if Eye hemorrhage half of my eye blood red can be a side effect ...

casse

•7 years ago

11 Replies

Struggling

Am on 15mg pred and was feeling so much better but have picked up A cold virus , hacking cough the lot and don't understand why I now feel so ill , is it...

Am on 15mg pred and was feeling so much better but have picked up A cold virus ,...

Rosbud

•7 years ago

9 Replies

Advice and opinions please

GCA 8/2 mgs. 3 days ago contracted dreadful throat infection. GP has put me on penicillin 250 mgx2 four times a day for 10 days. I would be very grateful if...

GCA 8/2 mgs. 3 days ago contracted dreadful throat infection. GP has put me on p...

tgca

•7 years ago

4 Replies

Getting off Pred

This is the first time I’ve posted on here. I have been on Pred now for 2 yrs and I’m struggling with my pain and weakness on my 3mg dosage (down from an...

This is the first time I’ve posted on here. I have been on Pred now for 2 yrs an...

WillAllanson

•7 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2017

Thrush

What is the typical interval between a dose taper and a resulting PMR flare?

Initial trial of delayed-release prednisalone on PMR

So Thankful I found this group!!

Working with PMR.... How do you do it?

Back from hols with very little drama!!

Just ride with it I guess?

Advise/Experience gratefully accepted

Please read my condition and advise me

Buzzing buttocks?

Fatigue etc

Not Advise

Leg and foot numbness

Update

Living with PMR

Help on GCA symptoms and taper

Bad pain Methotrexate and Ibruprophen

Highways and biways

chest infection

Chest pain

Last week was a good week!

Read this...first I heard of it..just water is o.k.?

My PMR Story

Plymouth /South West Meeting

A big thank you..

New to the exclusive PMR club

GCA And Eye Bleeding or hemorrhage

Struggling

Advice and opinions please

Getting off Pred

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