trying to heal: ive had a hard journey with pmr..i... - PMRGCAuk

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trying to heal

tuningup profile image
8 Replies

ive had a hard journey with pmr..i was diagnosed dec. 11 2014 with sed rate of 62 ..rheumy started on pred and stayed on ten mg for quite a while..i was a long way from pain free but my rheumy wanted me to reduce anyways..in july of 2015 i spent three days next to my husbands bed as he passed..it was so painful to sit and stay with him but 38 years we were married and somehow i did it..in july of 2016 i had my right hip replaced..no problems..my rheumy wanted me to reduce pred so i did slowly..i was on six mg for about a month and felt like i had a mild case of the flu..dr said i was in text book adrenal crisis..sed rate 112..went on 60 mg taper dose..got through that..a week ago i had my left hip replaced..i had my daughter check on my cat little ed and he had died..i fell apart..my cat was everything to me..i loved him so much..when i was in the hospital all i wanted to do was go home and see my cat ...i wont go into the hundreds of reasons why he was so special to me but i miss him so much..i have faith that ill eventually be ok but i miss little ed and im so sad..pmr is kicking me and i dont feel good.'im on 10 mg and i dont seem to have side effects that are too bad..of course pain from surgery and my heart is broken..has anyone been through the loss of a pet along with pmr? any encouraging words would be welcome..prayers would help the most..i am a believer..ty for reading, this is my first post but i have to talk to someone with similar physical issues,, thanks, sharon

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8 Replies
SheffieldJane profile image
SheffieldJane

Oh tuningup! I am in tears after reading your harrowing story. I have prayed for you, you have been given almost too much to bear.

Clearly little Ed was a member of your family and you will grieve for him as such and this is on top of your grief for your husband. I would love to be able to give you a great big hug! I'll send a virtual one along with prayers for you to find the strength you need right now.

With all the physical and emotional stress you are under you may well benefit from an increased dose of Pred. Please run this idea past your doctors. Nobody who reads your story can possibly remain un- moved.

What a special little cat he must have been and lucky to be loved by you so much. 🌸

tuningup profile image
tuningup in reply to SheffieldJane

ty for prayers and words of comfort..little ed was special and a gift from above..i used to tell him in the whole world of kitty cats God gave me the very best one..he would just listen and purr..ty for helping me feel better

Soraya_PMR profile image
Soraya_PMR

I have leaky eyes too. Tuningup you have a lot on your plate at the moment, almost too much to bear, but you will because you are strong, you have arrived at this point through all that adversity.

I’m nearer the beginning of the PMR journey, have not had orthopaedic surgery, so can’t compare notes. Suffice to say there is often some depression post surgery, another assault on your body.

But your sadness at losing Ed I absolutely understand. And your sadness is right and proper, you have lost your faithful friend at an already difficult time. What else would you be but sad? Grief is grief, no matter whether it be concerning a loved person, a furry friend, or life as it was before obstacles were placed in front of us. I suspect that losing Ed in someway makes you feel that links to the past are severed, but you will always have memories, no-one can take them from you.

Little Ed sounds as if he was a delight. If he could talk to you now he’d thank you for his wonderful life. Sweet Dreams Ed x

Jo_Lyn profile image
Jo_Lyn

I am so sorry for your loss Sharon ... It just breaks my heart. I'm praying for you ...

tuningup profile image
tuningup in reply to Jo_Lyn

ty so much ..

Neverending63 profile image
Neverending63

My thoughts and prayers are with you. I can’t begin to think how I would cope if I had been through the same as you. 🙏🏻

tuningup profile image
tuningup in reply to Neverending63

ty tracey for praying..little by little im feeling better but this is very hard..thanks again

Like others I teared up reading this. My furry friend ..my dog was being tested for pancreatitis yesterday. She was negative thank goodness but still ill and had me in tears. Furry and non furry friends very important. I hope you start to feel better soon. Too soon maybe to find a new furry friend but I always say the best thing my 10yr old cocker spaniel has taught me is that if and when her time comes I wouldn't hesitate to find a new friend. They bring so much to you and you obviously have lots of love to give too. 🌻

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