Dead Slow and Nearly Stop Spreadsheet

Don't know if anyone is interested, but I have prepared a simple spreadsheet, which follows my interpretation of the DSaNS method of reducing steroids. You just plug in the start date (UK format), starting dose and reduction rate, and it should give you your daily dose for 15 weeks. I have left the days of the week to Day1, Day2... to allow for different religious calendars, but you can edit that part. On a 1mg reduction rate, that will reduce your steroids by 2mg over the 15 weeks. It worked for me, until an idiot in my surgery interfered with blood test results required by my Rheumy, and caused a total relapse, so here I am back on 10mg attempting to reduce again.

Anyway, that's why I prepared the sheet, so, does anyone know if there is a way of posting it on this forum?

Not feeling too good today, but always hopeful.

Richard

[SheffieldJane]

Well done Richard!

One of our friends on here ( name escapes me, sorry,) designed a similar idea. If your mind is that way inclined then super!

I imagine mine would look a bit messy with all my intuitive pussy footing around a difficult dose goal.

Can't answer the posting question, I can't even post a photograph of myself using the iPad. There are techies on here, hopefully they will turn up to help.

[Hidden in reply to SheffieldJane]

Thanks for your comment, I've just done another copy but for our USA members, with their date format. Going over soon for Thanksgiving with our family in Georgia. Hope I don't get a relapse over there.

[SheffieldJane in reply to Hidden]

Oh dear! family and an event! I would take an emergency supply of Pred. In case I needed a little boost here and there. You'll need to explain your need at times for rest and quiet. Be prepared for " But you don't look ill" comments. We don't and we are!

Happy Thanksgiving!

[Hidden in reply to SheffieldJane]

Thanks Jane

[DorsetLady PMRGCAuk volunteer]

Hi Richard

Not sure that you can if it’s an excel spreadsheet. That’s why I always say if anyone wants a copy of mine they need to send me their email address - in a private message obviously, not on open forum.

As Jane says, someone else is doing a similar thing - think it’s Julian_J. But I could be wrong.

Hope you soon feel better.

[Hidden]

Thanks DL, silly me, I should have asked first if anyone else had done it, but it kept me out of trouble for an hour or two. Thanks for good wishes. After two and a half years, I was down to 3mg, before my GP surgery messed up detailed instructions from my Rheumy - result, relapse, do not pass go, start over. Very annoying. I'm now back on 9mg and finding it hard. Still chin up, Christmas is coming!

[PMRpro Ambassador in reply to Hidden]

No need to apologise - people won't always have seen the other offerings.

Honestly - you'd think it was rocket science sometimes the way GP surgeries get their underwear in a knot wouldn't you!!!!!!

[Hidden in reply to PMRpro]

Amen to that

R

[Diane53]

Hi Richard... that’s great for me.. have sent you a message..hope that’s ok and that today is a better day for you.

[Hidden in reply to Diane53]

Nice of you to mention it, but today has to be on the up, because at present I feel like a bulldog sucking a wasp. Have replied to your message.

[Marinescience]

Hi and greetings from Canada! Thanks for putting together a spreadsheet, sounds like it could be helpful for keeping track. Could you please tell me where to find it? Thanks.

[PMRpro Ambassador in reply to Marinescience]

There is no spreadsheet from me - I find using a monthly calendar with a space per day is ideal and works for everyone! Using coloured pens, mark day 1 as a new dose day and then count the number of days to the next new dose day - repeating with reducing nos of days between as described.

There are links to all the options here

healthunlocked.com/pmrgcauk...

which includes the app and also DorsetLady's slowed taper and she does have a spread sheet which she will send you if you contact her.

[Microbe1943]

Hi, thanks for this story. Sorry you got messed up by a surgery situatino. can you please post the speadsheet. I don't see it here! Would love to try using it.

[PMRpro Ambassador in reply to Microbe1943]

This post is 5 years old. However - in one of the replies DorsetLady points out she has a version but it can't be posted on the forum - contact her for details.