This forum has been so helpful to me on my PMR journey. Even though this is my first post I have been following the forum for months and I am overwhelmed by both your knowledge and your kindness. Here on my side of the pond, civility seems to have sadly disappeared.
I was officially diagnosed with PMR in early April of this year, but based on the symptoms documented in my medical records we're all quite sure that I had it for at least two years before the actual diagnosis was made. Both the docs and I attributed all my reported aches and pains to my gym workouts, or to hiking up too steep a trail. I suffered needlessly.
Once diagnosed I was put on 15 mg of prednisone and the relief was complete and immediate. Docs over here try to taper more rapidly, I guess, because by July I was down to 5 mg, still with no symptoms whatsoever. The fatigue had lifted as well and I thought I was headed down the home stretch! I proceeded to continue to taper by 1 mg a month (never dropping suddenly, but alternating the old and new dose for a week) and everything was just fine.
I got down to 1 mg last week when the trouble started. I have bilateral achiness in my upper arms but only in the middle of the night, and it's easily resolved with 400 mg of ibuprofen. The pain is much milder than it was when I was in full-blown PMR.
I'm one of those whose blood work (CRP and sed rate) was never elevated, so we can't use those numbers as a guide.
Do I go back to 2 mg. of prednisone, or do I stay at 1 mg with nightly ibuprofen? The last thing I want is to have all this start up again.