Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2017

Pred while traveling

Is it a good idea to take extra pred. while traveling? I've had PMR for a year and am taking 9mg and feeling quite good. I live in Seattle in the U.S. Next...

Is it a good idea to take extra pred. while traveling? I've had PMR for a year a...

judyb100

•7 years ago

16 Replies

Worry at raised CRP levels

Hi guys. Just come back from a lovely but gruelling coach trip in Scotland with my husband. Have been in a lot a pain, & didnt go outside the door for a...

Hi guys. Just come back from a lovely but gruelling coach trip in Scotland with ...

Maz48

•7 years ago

6 Replies

Other symptoms that aren’t in the medical books so doctors ignore them...

Reading loads of threads here, I notice some stuff that doesn't necessarily get included in the PMR symptoms, but that many have commented on in the lead up to...

Reading loads of threads here, I notice some stuff that doesn't necessarily get ...

Soraya_PMR

•7 years ago

78 Replies

Want to take advantage of all our features? Just log in!

Shingles

Hi Everyone, I’ve been notified by my surgery that I’m eligible for a shingles vaccination. This has been the subject of previous posts so I queried with the...

Hi Everyone, I’ve been notified by my surgery that I’m eligible for a shingles v...

Rokerman

•7 years ago

42 Replies

Painful spasms in forearms

Is it common to off and on have throbbing pain in forearms? It eventually radiates into hands and fingers. I constantly fight myself from thinking I'm becoming...

Is it common to off and on have throbbing pain in forearms? It eventually radiat...

PMRpixie

•7 years ago

8 Replies

Relapse, and now I'm sure I'm a member of your elite club

Since I last posted, I've been undergoing more tests because even my new rheumatologist suspected I have something other than GCA/PMR. Tapered Prednisolone...

Since I last posted, I've been undergoing more tests because even my new rheumat...

AnnS

•7 years ago

22 Replies

The Lighter Side: Ok ok ok! So I've been quiet for a couple of weeks - But Don't let That Fool You into a False Sense of Security... ;-)

Greetings to all of You Lot of Polymalingerers, Pred Perambulators and Mirth Merchants. It's Friday Night here, although I don't know what night it is where...

Greetings to all of You Lot of Polymalingerers, Pred Perambulators and Mirth Mer...

markbenjamin57

•7 years ago

63 Replies

Temporal Arteritis

I am an active 63 year old male who has been ignoring the increasing pain in my temples and lethargy for several months as i continue with my daily bike...

I am an active 63 year old male who has been ignoring the increasing pain in my ...

mitchgam

•7 years ago

37 Replies

38 year on woman temple arthritis

Hi I am a 38 year old woman and my doctor believes I have temple arthritis I have all the symptoms and have MRI on Tuesday blood test show inflammation. I am...

Hi I am a 38 year old woman and my doctor believes I have temple arthritis I hav...

narshaee

•7 years ago

19 Replies

Any tips for my Mum who has PMR?

Hello, My mother, who is 95 years old, says she reckons she has had PMR for about 5 years. It was under control but has recently flared up again and this has...

Hello, My mother, who is 95 years old, says she reckons she has had PMR for abou...

DianaGS

•7 years ago

10 Replies

Back up to feeling 50 percent

Hello all After struggling sometime feeling like life was at the 20 to 30 percent mark I am now back to 50 for the past two days and I am now sure how it...

Hello all After struggling sometime feeling like life was at the 20 to 30 percen...

bunnymom

•7 years ago

5 Replies

Contact Lost

I have been a member for 12 months but about a week ago I stopped getting the daily emails and the website kept telling me that I wasn't a member of any...

I have been a member for 12 months but about a week ago I stopped getting the da...

FSP25

•7 years ago

25 Replies

PMR symptoms minimal at 3mgpd :-) But... SORE Upper Ribs and Sternum - Ouch! What to do re. Pred dosage - One for the Aunties..? ;-)

Greetings All Just a quick 'serious' query for a change (more Mirth to come later...) First, the Good News: after a long Pred tapering journey I'm now down...

Greetings All Just a quick 'serious' query for a change (more Mirth to come la...

markbenjamin57

•7 years ago

69 Replies

For those with an interest - North East Vasculitis support Meeting Nov 11th Newcastle Hospital

Programme 10:00-10:10 Welcome and Introduction – Dr Alice Lorenzi & Karen Walker (CTD & Vasculitis Nurse Specialist) 10:10-10:30 Imaging in large vessel...

Programme 10:00-10:10 Welcome and Introduction – Dr Alice Lorenzi & Karen Walker...

John_Mills

•7 years ago

3 Replies

Feels good!

Anyone with PMR/GCA has probably shed a few if not for any other reason than frustration and anger at whats going on with their health..I know I have broke...

Anyone with PMR/GCA has probably shed a few if not for any other reason than fru...

daworm

•7 years ago

16 Replies

Sudden temporary change in vision

For twenty minutes this evening I had wavy lines on the left side of my vision. No pain ... I was diagnosed with PMR in Jan 2016 after two months of symptoms....

For twenty minutes this evening I had wavy lines on the left side of my vision. ...

Mary63

•7 years ago

21 Replies

Rhino hump

Hi, I had moonface which is recovering. Cheek bones reappearing. Have now got the rhino hump. Bad posture anyways, so have a double hump. Question: is the...

Hi, I had moonface which is recovering. Cheek bones reappearing. Have now got ...

Stroppymoo

•7 years ago

3 Replies

Is there a reason they call it "feeling under the weather"?

Hi Folks: I've been noticing a pattern where when the barometric pressure is changing (up or down) as storms enter and exit the area., that I'm more...

Hi Folks: I've been noticing a pattern where when the barometric pressure is cha...

GOOD_GRIEF

•7 years ago

19 Replies

Augustas6

Does anyone know what percentage go to develop rhumatoid arthritis from pmr and wether 5 mg pred which i take causes artery furring or heart failure etc.

Does anyone know what percentage go to develop rhumatoid arthritis from pmr and ...

Augustus-6

•7 years ago

5 Replies

Have I Got PMR

Hi everyone Was diagnosed with GCA April this year...Pain and symptoms of GCA mainly head neck and shoulders. Also when I have been walking {very short...

Hi everyone Was diagnosed with GCA April this year...Pain and symptoms of GCA ma...

camerashy

•7 years ago

20 Replies

Diet

Had been feeling depressed due to the weight gain due to pred and desperate to taper down quickly. Eventually accepted I would be on pred for a long time....

Had been feeling depressed due to the weight gain due to pred and desperate to ...

ali5son

•7 years ago

35 Replies

NE of England Vacsulitis meeting which includes GCA :

https://healthunlocked.com/vasculitis-uk/posts/136571181/north-east-vasculitis-support-meeting-nov-11th-newcastle-hospital John Mills has just posted this on...

https://healthunlocked.com/vasculitis-uk/posts/136571181/north-east-vasculitis-s...

PMRpro

Ambassador•7 years ago

1 Reply

GCA and Tocilizumab

I am taking the above for GCA and have had two infusions and two injections. My latest bloods are great re CRP and ESR but I now have high cholesterol - 7 -...

I am taking the above for GCA and have had two infusions and two injections. My ...

christine2715

•7 years ago

13 Replies

Advice please re blood pressure.

I'm scheduled to get a 24 hour blood pressure monitor fitted tomorrow at local hospital. Sadly I'm just back from being 18 hours at nursing home where my...

I'm scheduled to get a 24 hour blood pressure monitor fitted tomorrow at local h...

Hollyseden

•7 years ago

22 Replies

Measuring Inflammation

Hello All. I haven't posted for awhile but have a question regarding ESR level. I was diagnosed with PMR January 2015 and other than a few nasty flareups have...

Hello All. I haven't posted for awhile but have a question regarding ESR level....

PMRpixie

•7 years ago

42 Replies

Bruising

Five days after blood taken the bruise is about 4X1.5 inches beside the vein used. When I was walking home afterwards there was quite painful stinging at the...

Five days after blood taken the bruise is about 4X1.5 inches beside the vein use...

HeronNS

•7 years ago

29 Replies

Catch 22

With thanks to SheffieldJane’s information, I checked my BP in both arms last week when visiting my Dad, and discovered a difference, (128/85 + 111/77) but am...

With thanks to SheffieldJane’s information, I checked my BP in both arms last we...

Soraya_PMR

•7 years ago

7 Replies

Swollen feet and ankles

I'd love to know if you nice people think I should be concerned about my swollen feet and ankles. I know this problem is one of the numerous possible side...

I'd love to know if you nice people think I should be concerned about my swollen...

Marijo1951

•7 years ago

15 Replies

Dr wants me on Plaqnil

I really don't want to add a drug to taper after a relapse. I have PMR diagnosed 14 months ago and I am at. 7.5 mg prednisone. I think I can judge my body...

I really don't want to add a drug to taper after a relapse. I have PMR diagnosed...

Ronswife

•7 years ago

24 Replies

Steroid Problems

I am new here and am a PMR sufferer since November 2016. I am gradually lowering my steroid dosage and hope to reduce to 7mg on 30 October. My ankles have...

I am new here and am a PMR sufferer since November 2016. I am gradually lowerin...

VivienneStephenson

•7 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2017

Pred while traveling

Worry at raised CRP levels

Other symptoms that aren’t in the medical books so doctors ignore them...

Shingles

Painful spasms in forearms

Relapse, and now I'm sure I'm a member of your elite club

The Lighter Side: Ok ok ok! So I've been quiet for a couple of weeks - But Don't let That Fool You into a False Sense of Security... ;-)

Temporal Arteritis

38 year on woman temple arthritis

Any tips for my Mum who has PMR?

Back up to feeling 50 percent

Contact Lost

PMR symptoms minimal at 3mgpd :-) But... SORE Upper Ribs and Sternum - Ouch! What to do re. Pred dosage - One for the Aunties..? ;-)

For those with an interest - North East Vasculitis support Meeting Nov 11th Newcastle Hospital

Feels good!

Sudden temporary change in vision

Rhino hump

Is there a reason they call it "feeling under the weather"?

Augustas6

Have I Got PMR

Diet

NE of England Vacsulitis meeting which includes GCA :

GCA and Tocilizumab

Advice please re blood pressure.

Measuring Inflammation

Bruising

Catch 22

Swollen feet and ankles

Dr wants me on Plaqnil

Steroid Problems

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive