Need some help: I updated my bio and hit save but... - PMRGCAuk

PMRGCAuk

21,219 members40,234 posts

Need some help

Baileyw06 profile image
17 Replies

I updated my bio and hit save but it doesn't show again.Did I do something wrong? I thought it would show to the community.I thought if there was anyone in my area in the states that needed a good primary care physician that understood PMR might help someone else.I was diagnosed inApril and put on 20mg and have succeeded in getting down to 11mg. My inflammation rate was 25 and has gotten down to 5.My Doctor actually printed me all the information on PMR from the Mayo Clinic so I would understand it.It helped that my friend who also has it gave me the information on this community.It gave me the information to talk to my Doctor when I ran into a couple of problems.I also was diagnosed with a prolapsed bladder at the same time which I am getting operated on in October.

Thank you for all the information and support you give us.It makes life easier 😊

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Baileyw06 profile image
Baileyw06
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17 Replies
PMRpro profile image
PMRproAmbassador

I think a few people have had similar problems - and it took a few attempts to get it to work. Have another go.

Baileyw06 profile image
Baileyw06 in reply toPMRpro

Thanks

Suzanne457 profile image
Suzanne457

Dear Bailey... I have had the same problem as you when attempting to place my bio on the site. Since I had originally written a rather lengthy bio and then realized that it had disappeared , I was reluctant to try again....time is precious now a days to me. Wishing you a sucessful surgery on your bladder in October ....Best Wishes, Suzanne

Baileyw06 profile image
Baileyw06 in reply toSuzanne457

Thanks,I agree with you.I did it 3times and gave up.I decided to post the information 😊

Brixhamhampster profile image
Brixhamhampster

Baileyw06 yes I updated my profile twice and it didn't save in spite of clicking save at the bottom of the page. Should I have saved it somewhere else?

PMRpro profile image
PMRproAmbassador in reply toBrixhamhampster

I've reported these posts - the mills of HU grind exceeding slow but maybe they will notice!

BlueLara profile image
BlueLara

I tried to update mine, too - not successfully, but in view of the above comments I will try again another day as I don't want to clog up the IT wheels unnecessarily! Thanks anyway to PMRpro for all the helpful advice on all topics re PMR?GCA.

Marie1479 profile image
Marie1479

I tried as well and gave up

Marlenec profile image
Marlenec

Tried 4 times and wasted over an hour. So then I tried just putting in one word a few times and it still doesn't save! will wait until they fix it.

Baileyw06 profile image
Baileyw06 in reply toMarlenec

Because of my posting,I got an Email from them and they asked if I was on the app or Email.I am going to reply on what I did so they can fix it.Next time I will try one word😊

Carrollee profile image
Carrollee

Hi. I tried an update and pressed save only to find nothing changed. I persevered and it eventually got the hint after three attempts🎉🎉🎉. All the best cc

Baileyw06 profile image
Baileyw06 in reply toCarrollee

Thanks😊

Hindags profile image
Hindags

I've tried twice. No luck here either.

HeronNS profile image
HeronNS

First of all, try using a computer, not a phone or a tablet. If on a computer, try using a different browser. Other than that I wouldn't waste time with repeated attempts that don't work.

Ciar profile image
Ciar

I had this problem too.

Insight329 profile image
Insight329

I wasn't successful using my iPad or iPhone, but was when I used a computer. Thanks, HeronNS.

Baileyw06 profile image
Baileyw06

Thanks

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