Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for June 2017

The Lighter Side of PMR - Feeling strangely GOOD.. urgent advice please?! ;-)

Greetings to my trusty and long suffering Compatriots here. What do you think about this one..? (reminds me of the lyrics from an R.E.M. song..) After several...

Greetings to my trusty and long suffering Compatriots here. What do you think ab...

•7 years ago

Sometimes PMR is not to blame

Hi everyone I want to say thanks to everyone who posts I really enjoy everyone's advice and updates. I am pleased to say after advice and encouragement I am...

Hi everyone I want to say thanks to everyone who posts I really enjoy everyone'...

•7 years ago

Return from holidays

A couple of weeks ago I asked for advice on going on holiday abroad, and you all gave me great confidence. I have now returned and can tell you that I felt so...

A couple of weeks ago I asked for advice on going on holiday abroad, and you all...

•7 years ago

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Knee pain

Hi just joined this jolly bunch. I have had PMR for 19 months diagnosed, but feel I had it before then. Am now down to 6mg prednisolone, but after a coach...

Hi just joined this jolly bunch. I have had PMR for 19 months diagnosed, but fee...

•7 years ago

AM poorly ....by noon better...every day !!?

I have had PMR for 4 years now ( symptoms started 5 years prior to diagnosis). I have been taking prednisone since diagnosis by Rheumatologist July 2013...

I have had PMR for 4 years now ( symptoms started 5 years prior to diagnosis). I...

•7 years ago

Steroid side effects

I have been taking steroids for 5 years now , and through all of that time I have suffered various side effects . Steroid psychosis. when all the nerves...

I have been taking steroids for 5 years now , and through all of that time I hav...

•7 years ago

Hair loss?

Been on Pred 7 months now. Started 40mg last Nov, now down to 14.5. Plenty of ups and downs, but DSNS seems to be working, fingers crossed. In recent weeks...

Been on Pred 7 months now. Started 40mg last Nov, now down to 14.5. Plenty of ...

•7 years ago

RECURRING PMR SYMPTOMS OR ANOTHER CONDITION?

I began weekly depo-medrol injections for PMR on August 25, 2016, and have been tapering since November 15. Two weeks ago my daily dose dropped to an estimated...

I began weekly depo-medrol injections for PMR on August 25, 2016, and have been ...

•7 years ago

Does Pred Affect the Eyes

Hi PMR Community I was diagnosed with PMR over 2months ago and am currently on 10mg. Right now I am sat in Moorfields A&E as both my eyes are swollen, painful...

Hi PMR Community I was diagnosed with PMR over 2months ago and am currently on ...

•7 years ago

2 Prednisone Questions

Thanks all for this very informative and warmly supportive forum! Tho I don't post much I appreciate waking in the morn (am in the States) to the newest......

Thanks all for this very informative and warmly supportive forum! Tho I don't po...

•7 years ago

PMR new girl.

Two months in on 15mgs of steroids and been reduced to 12/50mgs. So far so good! Love reading your messages and stories they have given me great comfort...

Two months in on 15mgs of steroids and been reduced to 12/50mgs. So far so good!...

•7 years ago

My legs have collapsed twice now.

Hi well I thought the reducing prednisone was going well, down from 10 mg to 7 mg when my legs collapse not for long just a few minutes, but this was...

Hi well I thought the reducing prednisone was going well, down from 10 mg to 7 m...

•7 years ago

Type of calcium

Hi all, don't respond much but do read your informative posts. I do have a wonderful neuro-ophthmalogist at Wills Eye Hospital in Philadelphia, PA, USA....

Hi all, don't respond much but do read your informative posts. I do have a wonde...

•7 years ago

El 50 -- PMR.-reducing steroids.

I have had PMR since April 2015 and am still on 7mg. I have seen the consultant this morning who said that as I have had PMR for 2 years and my inflammation...

I have had PMR since April 2015 and am still on 7mg. I have seen the consultant...

•7 years ago

Self healing

8mths on and down to 5mg for past 2mths, had relapse in first month going from 40mg to 30mg over 10days, then cut to 15mg (relapse by 2nd day, think that's too...

8mths on and down to 5mg for past 2mths, had relapse in first month going from 4...

•7 years ago

After frustrated and angry, thanks to everyone's advice, I had a great day!

Hello all, Thanks to everyone who posted a response to my Frustrated and Angry post yesterday. I took all the advice to heart and had a great day. I did go...

Hello all, Thanks to everyone who posted a response to my Frustrated and Angry p...

•7 years ago

Essential thrombocythemia

Hi my name is Sharon,I have had essential thrombocythemia for 17 years,any advice needed just message me

Hi my name is Sharon,I have had essential thrombocythemia for 17 years,any advic...

•7 years ago

gca and synacthen test.............

On 12 June I am having a Synacthen test. I am on 2 mg Pred. Today, the Consultant's office rang to say that 3 days before the test, I have to replace the Pred...

On 12 June I am having a Synacthen test. I am on 2 mg Pred. Today, the Consultan...

•7 years ago

Haven't got Bullous Pemphigoid - Yippee!

Dear All, The blood test result shows no antibodies in my blood so will have to look elsewhere for the cause of the fearful itching, the holes in my skin and I...

Dear All, The blood test result shows no antibodies in my blood so will have to ...

•7 years ago

Adrenal results

Please could someone who has adrenal insufficiency look at my results which I have just received through the post, I also have an appointment for another...

Please could someone who has adrenal insufficiency look at my results which I h...

•7 years ago

Is an abscess a flare?

I've had GCA since September 2014, with the usual ups and downs on pred and the occasional flare up. A couple weeks back I woke with pains across my body and...

I've had GCA since September 2014, with the usual ups and downs on pred and the ...

•7 years ago

Large vessel vasculitis

Hi I was diagnosis with inflammation of the aorta 8 years ago I was on prednisone I had trouble coming off them so I am now on azathioprine 150mg .also was...

Hi I was diagnosis with inflammation of the aorta 8 years ago I was on prednison...

•7 years ago

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Frustrated and angry today!

Hello all, Yesterday my head ache so bad after trying to get some exercise and family time. Today I went for another small walk. It was less than a quarter...

Hello all, Yesterday my head ache so bad after trying to get some exercise and f...

•7 years ago

Clinical Update

Hello all, Here's a link for tocilzumab which was just recently approved in the US. If you haven't seen this video, it is basically a summary of the results...

Hello all, Here's a link for tocilzumab which was just recently approved in the ...

•7 years ago

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