I want to say thanks to everyone who
posts I really enjoy everyone's advice and updates. I am pleased to say after advice and encouragement I am now down to 10mgs of steroids from 15 in February.
I had had shoulder pain which had never gone away and so had a physio session this week which was the best I have every had. I had been using my shoulder stiffness as an indicator on terms of reducing medication etc. But it turns out the shoulder issue is mostly related to a long standing scoliosis that I have! So now have a series of exercises to address that one! I have never been so happy to have a diagnosis which told me I had something else wrong. But basically physio can help that problem and I can continue on the steroid reduction plan!
Have bought a fold up bike as a result of what I deem a positive diagnosis, to go with my picnic back pack which I still haven't used! I may not get on it but psychologically it makes me feel better! I have something to aim for!
I am obviously having a positive period so just trying to give those who are having an awful time right now some sense that things do go up as well as down