Yesterday my head ache so bad after trying to get some exercise and family time. Today I went for another small walk. It was less than a quarter mile and included cruising an atique store. I was pretty tired when I got home and than on my way up the front porch my right knee just went to jello with a sharp pain. Ugh. So frustrating. I was just getting to the point where I had confidence going up and down steps again. So I pounded the hand rails for a few moments and broke down in tears.
Hubby asked what was wrong and he made a comment about getting old together and duel ice packs. Okay, he doesn't get it yet. Ice pack won't do anything for me and the jelly legs. I am on 60 mg of prednisone so I am hoping some of this is a reaction to the prednisone. Rhuemy admits they don't know always whether it's the disease or prednisone. There is not enough studies.
While at the antique store the rhuemy office called and said my vitamin d was really low even though I've been taking a supplement for the last year. She called in a prescription for a high dose vitamin d and said stay at 60.
My goal is to get to 10,000 steps a day by the end of July. I know I need to exercise my muscles and still not over do it.
Good news is I am learning and while I don't like the high dose of prednisone it seems from practioner experience, the higher dose and length of dose, has an impact on how long you are on steroids and relapse. The higher the dose the better. I hope this is true.
As I think I am having a weeping steroid day. Tomorrow I am going to try to play 9 holes of golf with my friends. It's been awhile and I am nervous as they don't know I've been ill the last few months. I've pretty much isolated myself from activities.
Anyway, that is my vent for tonight. Thanks for reading. I treasure the first week or so on the prednisone. Minimal pain and felt strong. Than side effects kicked in.