I have been taking steroids for 5 years now , and through all of that time I have suffered various side effects .
Steroid psychosis. when all the nerves seemed to be on the outside of my body and I could not bare to be touched it hurt so much.
Depression . To the point of having a nervous breakdown, that was in the early days of being on steroids and being on 30-40mgs .
Seperation. My husband and I separated ,he did not like and could not handle this illness, luckily we have remained friends .
New hip. My hip disintegrated ,osteo arthritis and after 2 years of excruciating pain I was given a new hip and it is fantastic .
Auortic stenosis . So this is the latest hurdle I have to cross , just as I had bought a ticket to see my son and my new grandson in Canada .
I hope this can be sorted sooner rather than later.
Gca & PMR is a horrible illness and we have to get through it however we can ,sometimes it's hard to be positive , but talking it out or writing on this community page is a way of letting it all out.
I used to be so mad with this illness,but being mad takes too much effort and it helps nothing .
My journey has not ended yet and hopefully I can get rid of the steroids one day, until then I will keep decreasing a little at a time .