Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2017

PMR/HCA

Hello..I wrote a lengthy post...but I don't know where it went? deadeye

deadeye

•7 years ago

26 Replies

INFORMED PATIENT 'DECISION MAKING' HAVING OUR VOICES LISTENED TO !

I think if anyone ever has problems regarding their treatment and has to 'argue' or debate with their specialist or doctor about its appropriateness or...

I think if anyone ever has problems regarding their treatment and has to 'argue'...

Rimmy

•7 years ago

19 Replies

Flare up

I'm down to 12 mg prednisone after 1 mg month taper. Last Spring I had IV prednisone due to GCA . I feel defeated to have to go up again. What mg should I try...

I'm down to 12 mg prednisone after 1 mg month taper. Last Spring I had IV predni...

EmmaLaura

•7 years ago

6 Replies

Want to take advantage of all our features? Just log in!

First flare up>

Wow, wasn't expecting that! 3 days in agony, neck, shoulders- worst they've ever been. Hips not too bad, bearable. Listening to your previous posts I...

Wow, wasn't expecting that! 3 days in agony, neck, shoulders- worst they've ev...

Hidden

•7 years ago

15 Replies

Cream for bruising

What is the name of the cream for bruising from prednisone?

Baileyw06

•7 years ago

8 Replies

Book pages turn yellow when trying to read.

I also just remembered the above symptom. This has been happening for years and kept me from reading. Mentioned it over the past few years to eye docs that...

I also just remembered the above symptom. This has been happening for years and...

Aleish

•7 years ago

2 Replies

At last, some let off for him!!

Hi, Following on from previous posts in relation to my farther R/A & PMR. After going from 10mg up to 50mg last Tuesday, my farther had his first 2/10 day on...

Hi, Following on from previous posts in relation to my farther R/A & PMR. After...

Sonofjimmy

•7 years ago

10 Replies

Post Prednisone Blood Work

This forum has been helpful and supportive throughout the ups and downs of PMR so thank you to all. I am seeking information regarding post prednisone...

This forum has been helpful and supportive throughout the ups and downs of PMR s...

autrainriver

•7 years ago

5 Replies

Looking for answers

Hi everyone, I am on my 2nd injection of a 3 month course of teriparatide and should like comments from others on the same road. Many thanks to those who have...

Hi everyone, I am on my 2nd injection of a 3 month course of teriparatide and s...

Gillymar

•7 years ago

5 Replies

Weight loss due to PMR?

I was diagnosed with PMR last July following severe pain in my shoulders. After starting the steroids the pain went very quickly. I started to realise that I...

I was diagnosed with PMR last July following severe pain in my shoulders. After...

scottiemarg

•7 years ago

43 Replies

I'm new here

Hi All I had been suffering from a really sore head, for Truly around 4months now, thinking it was just stress or lack of sleep, I left it for as long as I...

Hi All I had been suffering from a really sore head, for Truly around 4months n...

skibarski2

•7 years ago

38 Replies

A few more steps forward to being me again!

Got some good news today when phoning in to get results for 6 month blood test follow up: Receptionist declared no further action required....

Got some good news today when phoning in to get results for 6 month blood test ...

DevonMichael

•7 years ago

6 Replies

GCA and an eye question.

Cannot have biopsy. Had two field tests that appear normal. However, without my glasses on and only at a slight distance the images are stacked on top of...

Cannot have biopsy. Had two field tests that appear normal. However, without m...

Aleish

•7 years ago

5 Replies

Anyone out there

Anyone using alternative treatment for PMR other than pred? I have been off of it since February and my pain level is a 4 which is okay with me. However if a...

Anyone using alternative treatment for PMR other than pred? I have been off of i...

katkawon

•7 years ago

34 Replies

LDN

Hi all anyone heard of LDN or low dose Naltrexone? There seem to be good results for ms sufferers and other autoimmune disorders although there is no mention...

Hi all anyone heard of LDN or low dose Naltrexone? There seem to be good results...

blackstone1

•7 years ago

8 Replies

PMR gone???????

I went to see my rheumy last week he says that he thinks I have not got PMR anymore my last two blood tests (6months apart) have been as he puts it normal. I...

I went to see my rheumy last week he says that he thinks I have not got PMR anym...

kingharold11

•7 years ago

12 Replies

My internet access....

has been on and off for 5 days now. Mostly off - and it was iffy for days before that. Sorry that I am missing so much and will try to catch up as we have now...

has been on and off for 5 days now. Mostly off - and it was iffy for days befor...

polkadotcom

•7 years ago

8 Replies

The Lighter Side of PMR/GCA: An Inside Job? - a chat with Ade and Des (The Adrenal ‘Guyz’) about Organisational 'Team Work'.... ;-)

Ok 'YOU LOT': Don’t pretend that you didn’t ask for more of this BS (Bonkers Silliness). Haven’t you all got better things to do whilst getting on with the...

Ok 'YOU LOT': Don’t pretend that you didn’t ask for more of this BS (Bonkers Si...

markbenjamin57

•7 years ago

46 Replies

Steroid Taper Web Application

Hi, thank you to everyone who is helping me develop the steroid taper web application. I have used all your feedback and the updated application is now ready...

Hi, thank you to everyone who is helping me develop the steroid taper web applic...

Sandra_123

•7 years ago

12 Replies

Anyone ever used pantethine

Hi everyone I am wondering if anyone had tried pantethine as a natural supplement to stimulate the adrenal function? Thanks for any information Julie

Hi everyone I am wondering if anyone had tried pantethine as a natural suppleme...

JulieR2

•7 years ago

4 Replies

GCA Happy anniversary!

A year to the day diagnosed with GCA and placed on 40mg of prednisolone. Today down to 3mg and no flare ups. Fingers crossed, I will not be celebrating a...

A year to the day diagnosed with GCA and placed on 40mg of prednisolone. Today ...

DevonMichael

•7 years ago

14 Replies

EL 50

For the last 4 days i have not received any Health Unlocked email posts..This has followed filling in an annual survey from Chris? I have never received an...

For the last 4 days i have not received any Health Unlocked email posts..This h...

El50

•7 years ago

17 Replies

PMR & GCA - prednisone and breathlessness

Hi everyone. I'm a member over on the fibro U.K. Page. I'm asking here for some help on behalf of my mum. She has pmr and recently diagnosed with GCA. The GP...

Hi everyone. I'm a member over on the fibro U.K. Page. I'm asking here for some ...

Leemaree44

•7 years ago

12 Replies

Invest in a bedside fan!

The sheer bliss of cool air breezing across the bed in this heat is amazingly comforting. I don't think we tolerate heat that well, my hair turns into sweaty...

The sheer bliss of cool air breezing across the bed in this heat is amazingly co...

SheffieldJane

•7 years ago

13 Replies

PMR

Hi Everyone , It's been really helpful to read other people's views on PMR ,I'm hopefully getting a bit more understanding of my condition . I was absolutely...

Hi Everyone , It's been really helpful to read other people's views on PMR ,I'm ...

66Mac

•7 years ago

20 Replies

Raising awareness.

In recognition of this week of raising awareness of PMR and GCA I made this chocolate courgette cake and took it along to my local compassionate community...

In recognition of this week of raising awareness of PMR and GCA I made this choc...

Zebedee44

•7 years ago

5 Replies

GMA

I have PMR but I noticed my eye sight has gotten worse. I have needed glasses for reading so I can see with out them but not read and this has gotten worse...

I have PMR but I noticed my eye sight has gotten worse. I have needed glasses f...

England05

•7 years ago

27 Replies

infection interfering with marker numbers

Hi, I wonder if anyone else has had this problem? I have PMR and lately been suspected of havingTA. Having visited the opthalmist the suspicion is now low as...

Hi, I wonder if anyone else has had this problem? I have PMR and lately been sus...

blackstone1

•7 years ago

11 Replies

symptons return after reduction of prednisone

well i have read that many people have some symptons that return after reducing dosage of pred, just reduced from 12.5 to 10 mg 11 days ago, after reducing...

well i have read that many people have some symptons that return after reducing ...

arvine

•7 years ago

8 Replies

CRUISE HOLIDAY

Just back from my cruise holiday, before I went I was down to 8mg of pred , I was O.k at the beginning of the trip, crossing the Bay of Biscay was very choppy...

Just back from my cruise holiday, before I went I was down to 8mg of pred , I wa...

eggy-18

•7 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2017

PMR/HCA

INFORMED PATIENT 'DECISION MAKING' HAVING OUR VOICES LISTENED TO !

Flare up

First flare up>

Cream for bruising

Book pages turn yellow when trying to read.

At last, some let off for him!!

Post Prednisone Blood Work

Looking for answers

Weight loss due to PMR?

I'm new here

A few more steps forward to being me again!

GCA and an eye question.

Anyone out there

LDN

PMR gone???????

My internet access....

The Lighter Side of PMR/GCA: An Inside Job? - a chat with Ade and Des (The Adrenal ‘Guyz’) about Organisational 'Team Work'.... ;-)

Steroid Taper Web Application

Anyone ever used pantethine

GCA Happy anniversary!

EL 50

PMR & GCA - prednisone and breathlessness

Invest in a bedside fan!

PMR

Raising awareness.

GMA

infection interfering with marker numbers

symptons return after reduction of prednisone

CRUISE HOLIDAY

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