Looking for answers: Hi everyone, I am on my 2nd... - PMRGCAuk

PMRGCAuk

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Gillymar profile image
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Hi everyone,

I am on my 2nd injection of a 3 month course of teriparatide and should like comments from others on the same road. Many thanks to those who have responded already. So many posts on rheumatism topics related appear , but few on osteoporosis. Am I on the wrong site? Want to mention that though only starting on injections I have not so far suffered any of the suggested side effects. Are these to come ? Please advise.

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Gillymar profile image
Gillymar
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PMRpro profile image
PMRproAmbassador

You are on the PMRGCA site here Gillymar - I don't know of many people on teriparatide to be honest. Most people are stuck on alendronic acid and that is generally it.

Gillymar profile image
Gillymar in reply to PMRpro

Thanks for your reply. Is there a specific site for osteoporosis sufferers ? The alendronic acid saga rumbles on . How many of you have experienced the trauma of fractures caused by taking it ? I should love to connect with fellow sufferers.

PMRpro profile image
PMRproAmbassador in reply to Gillymar

Not what you'd call entirely logical - Bone Health

healthunlocked.com/bonehealth

If you click on My Communities at the top of the page it gives a link to browse ALL communities so there might be other ones.

Gillymar profile image
Gillymar

Thanks pmrpro for your reply. I have done what you suggest and went into my communities and thence clicked on bone health and found masses of posts from osteoporosis sufferers. I now have to work out how to get myself on that site. Each time I tried I was sent back to my original site that I mentioned . But I am so grateful to you.

PMRpro profile image
PMRproAmbassador in reply to Gillymar

On that front page

healthunlocked.com/bonehealth

there is a box at the top right corner saying Follow - I assume you click on that to join the community because that then brings up two boxes, one says you are following, the other is to write a post.

Or isn't that working? Your name is listed under the followers - and you have been there since last December!

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