After reading some amazing info on here, l feel it's the only place I get answers. I was diagnosed late October last year. I had been suffering with a really stiff painful neck for quite a while, which my doc said would eventually get better...it didn't. My legs began to get stiff and painful and six weeks or so later whilst on holiday, I was struggling to walk and had to lift my legs out of bed. It was my osteopath that suggested I visit the GP and he sent a letter suggesting I had PMR which until that day I had never heard of. The GP just accepted his opinion and put me on 15mg Pred. Within hours I was getting my mobility back and the pain was disappearing. Anyway, to cut a long story short, I have had hip x-rays and shoulder scans, both fine. I was taken off Pred for blood tests just before Christmas and the pain started to return. I had to go and see another doc because I didn't want to spend Christmas in pain. This doc put me back on 15mg Pred and all was soon well again. An appointment was made for me to see a rheumie last Wednesday and hey-ho the hospital cancelled it and I have yet been unable to make another appointment as I can never get a reply. Anyway, I dropped my Pred to 10mg and was doing ok, but I am now starting to get muscle and joint pain. My arms ache as I write this, I have shoulder pain and get stange achy pains all over! My arms and legs feel a little trembly at the moment and a bit buzzy ( hope that makes sense). Do I need to put my Pred back to 15mg?? I have just read on here that it will do me more damage if the pain is not controlled. As I said earlier, I have had so many blood tests and seen 5 different GPs all of which don't seem to have a l it of knowledge or to be honest in some cases, no interest. Any advice would be truly appreciated. And I still haven't been given a definitive diagnosis, one says I have and one says I haven't......frustrating is not the word!!!!!