Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2017

Visit to Rheumatologist

Visited Rheumatology clinic last week received a letter today most of the letter is favourable, blood test results are as follows Neutrophilis 8,4 which I...

Visited Rheumatology clinic last week received a letter today most of the letter...

kingharold11

•7 years ago

2 Replies

Pins and needles

I have had pmr for about four years with present dose now down to 7mg. I'm finding it difficult to get the courage to lower the dose. I have mild dose of flu...

I have had pmr for about four years with present dose now down to 7mg. I'm find...

Sheribrim

•7 years ago

5 Replies

Pain several days after first reduction

So I am following the slow reduction plan. Trying to go from 12.5 to 11. First day at 11 some grouchy moments but felt OK. 3 days later all the while at 12.5...

So I am following the slow reduction plan. Trying to go from 12.5 to 11. First d...

bunnymom

•7 years ago

11 Replies

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Need some encouragment

I've seen my reumy yesterday. He suggested to keep the Prednison reduction at the same pace with 5 mg every two weeks. I'm on 35 mg and at the beginning of the...

I've seen my reumy yesterday. He suggested to keep the Prednison reduction at th...

Akino

•7 years ago

7 Replies

GCA flare how much to increase prednisone?

Hi all, I've had GCA/PMR for 4 years and gradually reduced by dead slow taper to 11mg. In January a flare started and I gradually increased up to 14. Eye pain,...

Hi all, I've had GCA/PMR for 4 years and gradually reduced by dead slow taper to...

coda123

•7 years ago

5 Replies

Feeling the pain (2)

This was written by PMRPro in 'Feeling the Pain' post. there are a few things that present very similarly to PMR and which respond far better to other drugs....

This was written by PMRPro in 'Feeling the Pain' post. there are a few things t...

Carrot1

•7 years ago

11 Replies

Adrenal Test - Convincing Myself

I've been mulling over whether I want or need to test my adrenal glands (via the synacthen/ACTH test) , having reached the 7mg Pred dosage level I consider...

I've been mulling over whether I want or need to test my adrenal glands (via the...

hopeful-1

•7 years ago

16 Replies

developed pain in groin and hip

shoulder better after 5months pred, still have some tweeks now and again, still feel like truck hit me many days, up between 5-6 daily,on 17.5 mg pred, have to...

shoulder better after 5months pred, still have some tweeks now and again, still ...

arvine

•7 years ago

4 Replies

rheumy won,t confirm gp,s diagnosis of pmr but keeping me on prednisone

well have told my story many times on this site already, but to refresh, gp diagnosed me pmr, based on symptons at onset, couldn,t raise arms,couldn,t brush...

well have told my story many times on this site already, but to refresh, gp diag...

arvine

•7 years ago

2 Replies

Alendronic acid

Hi I have read some worrying posts on here about AA. I have been taking AA along with the other meds since September 2016 but have never had any scans. I'm...

Hi I have read some worrying posts on here about AA. I have been taking AA alon...

Marlenec

•7 years ago

64 Replies

Feeling the pain

Hi all On day eight of reducing pred from 20 to 15 feeling rubbish today. The pain in my neck, shoulders & arms has returned feeling so tired. Could it be the...

Hi all On day eight of reducing pred from 20 to 15 feeling rubbish today. The pa...

Stanley123

•7 years ago

85 Replies

I am so thankful for these posts re PMR.

The comparitive experiences have been an eye opener. None of this is gleened at the doctors office. No suggestion of pamphlets, no helpful printouts...

The comparitive experiences have been an eye opener. None of this is gleened at...

Sunny465

•7 years ago

25 Replies

OUT OF BREATH UPDATE

Saw the heart doctor he said heart is ok but skipping beats and out of breath could be the prednisone since my blood pressure appears to be getting higher than...

Saw the heart doctor he said heart is ok but skipping beats and out of breath co...

jevuki

•7 years ago

8 Replies

Alternative therapy the ongoing story

Just realized it's been three months since I updated. I had hoped to phase out the low intensity light therapy (refer to earlier posts on my profile for...

Just realized it's been three months since I updated. I had hoped to phase out ...

HeronNS

•7 years ago

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I am new to this site

I was diagnosed with PMR two years ago but have only just discovered this site. I have managed to get down to 4mgs Prednisilone daily with just a couple of...

I was diagnosed with PMR two years ago but have only just discovered this site....

Hidden

•7 years ago

6 Replies

Information about flares

Hi. I am new to this site. I have had PMR 3 years and GCA 2 years. I have been on presnisone for 3 years, first 10 mg for the PMR, then started with 60 for...

Hi. I am new to this site. I have had PMR 3 years and GCA 2 years. I have bee...

dawnsgca

•7 years ago

24 Replies

Tapering from the top with Prednisolone and dose related to weight ?

Hi all I started on a very high dose of Prednisolone 50mg but for 3 days only - then 25mg for 4 days followed by 20mg for 4 days. My GP had said to stay on...

Hi all I started on a very high dose of Prednisolone 50mg but for 3 days only - ...

Rimmy

•7 years ago

6 Replies

Hair thinning, help

i have been on prednisone since oct, started 40 mg, now down to 17.5,since jan 18, noticed hair thinning about a month or so previous to that when i was on 20...

i have been on prednisone since oct, started 40 mg, now down to 17.5,since jan 1...

arvine

•7 years ago

22 Replies

welsh pensioner

I went to bed one night, feeling ok, next morning could not move without excruciating pain, left it a few days, then saw my doctor, blood test came back,...

I went to bed one night, feeling ok, next morning could not move without excru...

simfonia55

•7 years ago

15 Replies

Adrenals

I have finally got my appointment to see an Endo, but it's not until the end of May. As I am already taking 7.5 mgs of Pred. I can only assume I'm not a...

I have finally got my appointment to see an Endo, but it's not until the end of ...

bowler

•7 years ago

4 Replies

Full engorged feeling in neck and jawline

Hi - I was diagnosed with PMR four wks ago by a Rheumatologist. On 20mg Pred daily. I have generally been doing well as far as pain is concerned but in the...

Hi - I was diagnosed with PMR four wks ago by a Rheumatologist. On 20mg Pred dai...

Slosh

•7 years ago

5 Replies

Jaw pain

A couple of times now I have experienced jaw pain, it is of short duration and seems to travel in a line along my jaw line. It woke me up the other night but...

A couple of times now I have experienced jaw pain, it is of short duration and s...

SheffieldJane

•7 years ago

50 Replies

Infections & Flareups

I was first diagnosed with PMR 4yrs ago & During this time have had a pretty smooth journey. On 2 occasions I have managed to reduce down to 2mg of pred,...

I was first diagnosed with PMR 4yrs ago & During this time have had a pretty smo...

JOHNONE28

•7 years ago

1 Reply

Increasing my pred - didn't!

Thank you all for your support on my last post- here's the update. It was a stressful and extremely exhausting w/e as I needed to keep up or be left out and I...

Thank you all for your support on my last post- here's the update. It was a stre...

Marlenec

•7 years ago

17 Replies

At a loss

I started noticing pain in one shoulder at the beginning of October and then it moved to the other shoulder as well. Then pain began in my hips and thighs. I...

I started noticing pain in one shoulder at the beginning of October and then it ...

Bonnig

•7 years ago

16 Replies

PMR and now at 6.5 mg

Hi all, I reduced from 7 to 6.75 and now to 6.5. I know I am reaching that area when the Adrenals need to waken. I feel so buzzy, tired, and clumsy with brain...

Hi all, I reduced from 7 to 6.75 and now to 6.5. I know I am reaching that area ...

Ronswife

•7 years ago

4 Replies

PMRGCA Scotland

PMRGCA Scotland are holding their AGM on Friday 24 March at the COSLA Building, Haymarket, Edinburgh. Arrive from 12.30 for a light lunch followed by the AGM...

PMRGCA Scotland are holding their AGM on Friday 24 March at the COSLA Building, ...

sara4

•7 years ago

5 Replies

Is PMR coming back? I don't think so but value your comments.

In mid -December after being on Prednisolone for 3½ years I was down to 1mg every 7 days and decided to stop taking any. I felt fine, and generally do at the...

In mid -December after being on Prednisolone for 3½ years I was down to 1mg ever...

Thomas45

•7 years ago

4 Replies

Sweats

I am on 15mg of pred, having reduced from 30mg since Christmas. I am sweating for about 75% of the day, everyday and have horrible chronic fatigue. The return...

I am on 15mg of pred, having reduced from 30mg since Christmas. I am sweating fo...

vsapey

•7 years ago

7 Replies

STARTED ON METHOTREXATE ANY ADVICE WELCOME

Have had my first rheumy appointment since diagnosed nov2015 with temporal arteritis.16 months and four flares later my doctor said he couldn,t cope and i...

Have had my first rheumy appointment since diagnosed nov2015 with temporal arter...

denny-g

•7 years ago

31 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2017

Visit to Rheumatologist

Pins and needles

Pain several days after first reduction

Need some encouragment

GCA flare how much to increase prednisone?

Feeling the pain (2)

Adrenal Test - Convincing Myself

developed pain in groin and hip

rheumy won,t confirm gp,s diagnosis of pmr but keeping me on prednisone

Alendronic acid

Feeling the pain

I am so thankful for these posts re PMR.

OUT OF BREATH UPDATE

Alternative therapy the ongoing story

I am new to this site

Information about flares

Tapering from the top with Prednisolone and dose related to weight ?

Hair thinning, help

welsh pensioner

Adrenals

Full engorged feeling in neck and jawline

Jaw pain

Infections & Flareups

Increasing my pred - didn't!

At a loss

PMR and now at 6.5 mg

PMRGCA Scotland

Is PMR coming back? I don't think so but value your comments.

Sweats

STARTED ON METHOTREXATE ANY ADVICE WELCOME

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