I am in such a mess this morning. Could hardly use my hands and such awful pain in my shoulders upper arms lower back and hips. Feet and toes were painful too. Had some visual disturbance which has now gone. Have had pmr for two years. Am on pred 5mg and have been doing ok until a week ago. So fed up and feeling sick as well. The rheumy dept at my hospital does not inspire me with confidence. If I ring the helpline it takes them two days to get back to me and sometimes they don't. I have never messed with my pred dose by myself but am seriously considering going up to 7.5 mg without medical say so just to relieve the pain. It's now midday and it has improved a bit since this morning but I can only rest as everything causes me pain. Thank you for listening. I am so low.