I started noticing pain in one shoulder at the beginning of October and then it moved to the other shoulder as well. Then pain began in my hips and thighs. I thought it was from Pilates that I just started. Went to a Rheume and she said she didn't know what it was and sent me away. I googled and came across PMR. I ran to my physiatrist and demanded some steroids since I was in a good deal of pain. I just turned 53. I am use to being very active... gym easily 4x / week. And now I can't walk normally
I stared with 8mg of methylpredisone for two weeks. Had blood work and went back to the Rheume. The Sed rate was normal while the CRP was 5.2. Rheume said it wasn't PMR. Pain continued to get worse. She prescribed 20mg of prednisone .. still had pain. Then went up to 40mg. Within 3 days Most of the pain was gone but still had a little yet my face blew up like a chipmunk. I also broke out on my face. My hands shook all day and had diarrhea with blood in my stool and hemarroids. And I sweated all day and all night. I couldn't concentrate at work
Since Rheume didn't believe it was PMR I tapered completely off the prednisone .
Had blood work one week after completely off.. both tests normal. Had blood work again after three weeks off pred and the CRP was a little over two. Rheume still doesn't think it is PMR and thinks I should see a neurologist
I've been off pred four weeks. Taking Celebrex and Cyclobenzaprine. Pain was unbearable last night and this morning.
I can't get down to the toilet, pick up after my dog or even brush my teeth without agony.
The pain is now also in the knees ... front and back and my wrists are beginning to hurt.
I've been crying since last night. I can't Iive like this. I popped 15mg of pred this morning ... don't notice much of a difference.
I have appointments with my internist and a diff Rheume tomorrow. More blood was taken... tested for Sjorgens and Lupus. Don't know the results yet but based on everything I've read, it really does sound like I have PMR.
Any advice ???
Can all of you work a full time job?
I'm so so scared. I'm out of work since end of JAN and need to look for a job but I can't even think about that as I can't even properly function.
Anyone know a PMR expert in NYC who takes Cigna??
Thanks for any help!!!