I've seen my reumy yesterday. He suggested to keep the Prednison reduction at the same pace with 5 mg every two weeks. I'm on 35 mg and at the beginning of the second week. He also arranged for blood work and the CRP count is up again. It was around 59 at the beginning of diagnosis, 32 after two weeks treatment with Prednisione and now after 50 days on Prednisone it's up to 47 again. I'm so very disappointed and I can't imagine to live like this for ever. And I can't even be sure it is GCA, no typical symptoms and a negative biopsy. I don't know what to do. It's like being in a situation no one wants to be in and doesn't know how to get out again.
How do you deal with this emotionally? I have a prescription for 483 5 mg Prednisone pills till June!!! What will it do to my body?
Thank you all, Monika