Alternative therapy the ongoing story: Just... - PMRGCAuk

PMRGCAuk

20,777 members39,068 posts

Alternative therapy the ongoing story

HeronNS profile image
0 Replies

Just realized it's been three months since I updated. I had hoped to phase out the low intensity light therapy (refer to earlier posts on my profile for details) but it seems that if more than two weeks go by I do start to feel a return of PMR symptoms, so I'm in a bit of a holding pattern with that. Have got pred down to mostly 2 mg but every few days feel the need to have slightly more, usually 2.5. Had hoped to have results for follow up Vitamin D test, but despite having drawn the blood the lab refused to do the test as only nine months had gone by since last time - has to be a year! Had a very high reading last May so I am concerned. Have I driven it down too low by discontinuing all D supplements except what comes with the calcium, or maybe that's still too much and it's still high? On the plus side, as I posted earlier, my second DXA scan showed an improved t-score: -2 has improved to -1.6 without medication and no longer any recommendations for the meds.

Hope you are all doing well and those of us in the Northern hemisphere enjoying the return of the light and, someday, return of warmth! 🌝

Written by
HeronNS profile image
HeronNS
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

pmr advice

diagnosed with pmr 2018 been on pred all that time twice tapered to 0 and had to go back on. Been...

Prednisone, your dangerous little friend

You wake up to find your house on fire. Desperately you run from room to room but there is no way...

Should I try the 5 mg of prednisone increase for few days

well I have told my story few times over last months, most recently over 3 weeks ago have severe...

aching legs while tapering Prednisolone

I have been successfully tapering my Prednisolone dose by 1mg a month since October last year. My...

Lower back pain muscle or flare?

Hi everyone……Has anyone had lower back pain when tapering ….I was doing great Doctor lowered my...