Sweats

[vsapey]

I am on 15mg of pred, having reduced from 30mg since Christmas. I am sweating for about 75% of the day, everyday and have horrible chronic fatigue. The return of some pain , but not unbearable. Any ideas please?

[piglette]

I think the sweats were one of the most horrible side effects I had with pred. Now I have reduced I do have them very occassionally nowadays thank goodness. The fatigue is part of the autoimmune illness. I just give into it and have arranged my life around it.

[Mary63]

I have learned over the last year that sweats and fatigue are signs that I reduced too far too fast. For me severe pain does not come back apart from a bit of neck and shoulder stiffness. This may be atypical, but is definitely the case for me. You have reduced by 50% from your starting dose in slightly over 2 months, which may be too fast I guess. The experts will be along in a while.

[DorsetLady PMRGCAuk volunteer]

Hi vaspey,

Would agree that you have reduced very quickly, which probably isn't helping the situation. As you are getting some pain, that may indicate you have gone just a bit too low, it may only be a mg or two, but enough to make a difference.

Unfortunately sweating does seem to be quite common, as does the fatigue. The latter you may be able to help by really concentrating on pacing yourself, are you trying to behalf as you did pre Pred and pre diagnosis. You can't, so you need to take things easy, and if needs be give in the the fatigue at times.

[PMRpro Ambassador]

I think part of your pain problem may be the speed with which you reducing. Reducing 15mg in barely 2 months must mean you are reducing in big steps, which are likely to cause steroid withdrawal discomfort already.

I found the sweating was a sign I was trying to do too much - your body will try to tell you to slow down. The fatigue is an aspect of the autoimmune part of PMR - it isn't changed in any way by the pred, all the pred does is manage the inflammation the autoimmune disorder causes. It keeps chugging away in the background and has to be managed by lifestyle changes and pacing:

healthunlocked.com/pmrgcauk...

[suziq123]

I planned to reduce very quickly at first as well, the plan was 5mg every 2 weeks starting at 20 I changed that almost immediately, and went from 20 to 17.5 then 15 2 weeks on each and it was good then went my 1mg every 2 weeks to a month depending on how I was feeling, got to 6 and pain came back so am now back at 7 and doing a slightly modified VSNS and it seems to be working. Everyone is different, but if you are on pred, I say stay where symptoms are gone or damn close. My sweats stopped essentially below 10 and I never had fatigue, so once again it is obvious all of us are different. Good luck

[Amber1414]

If you get an answer please share! I have been sweating so much for years that I avoid going any place and shower several times a day. As far as fatigue goes, there are some days I don't want to get out of bed. The hardest part for me is my children not understanding that I am tired and can't help it or explain it! I have 4 daughters in their 30's and when I can't babysit or join them for whatever reason they don't believe me. Does anyone else deal with this?

[PMRpro Ambassador in reply to Amber1414]

You might be better starting a new thread - this one is 4 months old and only people who ticked "follow" at the top will get a notification of your post.

Loads of us suffer from the fatigue, it goes with the territory of autoimmune disease! In fact, it is exceptional NOT to suffer it. Here is a link to a post with a load of other links that are helpful to understand it:

healthunlocked.com/pmrgcauk......

Having 4 daughters in their 30 makes me feel tired thinking about it! My 2 about finished me off!